Forum Replies Created

Viewing 15 posts - 1 through 15 (of 277 total)
  • Author
    Posts
  • in reply to: Y’all remember me? #95132
    tiff1496
    Member

    Marion!! Hugs!!

    The kids are growing so fast.

    Carter was 5 when I joined and is now 11 and Madison was 2, now 8!! Can you believe it?

    I’m currently doing TAS120. I took a few months off treatment after BGJ398. And unfortunately had growth inmy lungs during that time.

    It’s amazing how much better TAS has helped me feel. My cough was out of control, literally making me sick. Now i don’t even have a cough. My scans last month said I had 13% shrinkage.

    I had something funny show up on the scan before this last one, on my liver. We are thinking it’s scar tissue from transplant.

    I’m so excited to reconnect. I miss you guys.

    in reply to: Our beloved Moderator Kris – kris00j #95123
    tiff1496
    Member

    Heartbreaking.
    RIP Kris.

    in reply to: Alternative advice #77049
    tiff1496
    Member
    kvolland wrote:
    Patti –
    I am with Lainy on this one. I have been a nurse for twenty years and have never seen anyone cured by some of these alternative treatments. I would offer that if it sounds to good to be true then it probably. I know we get stuff from family and friends that this or that can cure his cancer or his diabetes. For awhile it was aloe vera juice then cinnamon. The other concern that I have with some of these is that they may interfere with your chemo or other medications that you take as the interactions of many herbal medicines or alternative medicines have not been studied.
    That being said however, remember it is your life and your disease and if you want to try something then it’s your choice. I would just talk about it with your doctor first so it doesn’t interfere with anything.
    And I know I opened a can of worms here again. :)
    KrisV

    I agree here! Someone told me that I need to start doing coffee enemas. I was like….WHAT???
    Needless to say, I have coffee everyday. But it comes in a nice white (well right now red) cup from Starbucks.

    in reply to: My husband has cc #76904
    tiff1496
    Member

    Hi there!
    I also go to MDA for treatment. After about a year of my cancer being under control from chemo, my doctor there sent me to Houston Methodist to see if I could get on the transplant list. I did and was transplanted about 4 months ago.
    I will say, my transplant doctor said he would not do surgery (of any kind) if there was mets outside the liver. So they are 100% sure that the nodes have cancer?
    I’m so sorry you are having to go through all this. :(

    in reply to: MDA Consult #77089
    tiff1496
    Member

    I was out there within two weeks.
    My local MD called and had everything done for me.
    Good luck.

    in reply to: Scans coming up! #77016
    tiff1496
    Member

    Thanks everyone!
    I will for sure update asap.
    :)

    in reply to: Texas Medical Center New’s Article about my transplant #76610
    tiff1496
    Member

    Aww Thank You Ceci!
    I will tell you, it has been a long stressful journey, but with the help of my family (husband), and this site I have made it!
    A few weeks ago was my 2 year anniversary.
    I was stable on my chemo of about a year before my doctor sent me to my transplant team. Then it was about 9 months wait after that.
    I also had mets on both sides of my liver, and that is why I was stage 4.

    If Alison ever needs to chat, tell her to look me up on facebook, twitter, or email (tiffanyschwantes@gmail.com).

    :)

    in reply to: MRI results #76710
    tiff1496
    Member

    I’m so sorry the chemo hasn’t worked too great.
    What all drugs have you tried?

    tiff1496
    Member

    I’m so sorry for your pain. :(

    Trust in the Lord, and he will see you through this. I will pray for you.

    in reply to: Shrinkage!!!! #76231
    tiff1496
    Member

    Awesome news!! Dang I’m behind!!! Doing a happy dance tonight!

    in reply to: 2 1/2 years cancer free #76701
    tiff1496
    Member

    Been waiting to hear this good new!!!
    <3
    So happy!

    in reply to: Texas Medical Center New’s Article about my transplant #76606
    tiff1496
    Member

    Thank you all!
    That is why I wanted to share this interview from my team. A lot of people didn’t really understand everything about it. I feel like this is very easy to understand.
    I’m still feeling good. All liver functions and bili are normal. Had another round of chemo today. They are doing it just to “clean up”. From what I read and understand this is what MDA does for any person that has any type of liver surgery for liver / bile duct cancers.

    Marions- I’m not sure about superstardom. HEHE!

    The super star in this story is my God…who said Yes when doctors said No! I’m just an instrument that He has used to glorify Him. :o)

    I love you all :o)

    in reply to: New to the forum #76042
    tiff1496
    Member

    Hi Tanya!
    So sorry you had to find us.
    I’m glad the drains are working for your husband, and he can start the treatment to maybe getting the transplant.
    I just had a transplant a few months ago, so if you have any questions…..feel free to send me a message!
    -Tiff

    in reply to: Pain in liver during chemo? #75857
    tiff1496
    Member

    I never had pain in my liver. Not during or after chemo.

    in reply to: Phone Consults with MD ANDERSON (or other cancer hospitals) #75936
    tiff1496
    Member

    24K just don’t sound right. I looked over all my stuff from my very first trip out there, and it was not 24K!

Viewing 15 posts - 1 through 15 (of 277 total)