tiff1496

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  • January 27, 2012 at 11:42 pm in reply to: CC Request/Suggestion #56974
    tiff1496
    Member

    I think Lainy might have us confused! 😎

    January 27, 2012 at 10:14 pm in reply to: CC Request/Suggestion #56971
    tiff1496
    Member
    goodheartedmommy wrote:
    https://www.youtube.com/watch?v=_6x3zDRvyYU&feature=youtube_gdata_player

    This is my four year old daughter. We made the video to share on the facebook page we made for my dad. Someone whose dad has cc.saw it on facebook, and I’ve had over 30 friends share it. Our fundraiser is focusing on really raising awareness.

    I seen the video on facebook! She is so sweet, and smart!

    January 27, 2012 at 9:48 pm in reply to: CC Request/Suggestion #56969
    tiff1496
    Member

    Yes!! We used the name CC when doing our flyers. :-) And also on the radio when talking about my fundraiser.

    Can we buy the trifold brochures? Like the one that came with the wristbands?

    January 26, 2012 at 10:56 pm in reply to: Bringing back a post from the past: Pet peeves of cancer… #56925
    tiff1496
    Member

    When people I haven’t talked to in years ask me what my prognosis is.

    January 18, 2012 at 9:12 pm in reply to: And now… it’s on for Chemo! #56668
    tiff1496
    Member
    HamptonSarasota wrote:
    I do Gemzar this Friday, off next, and then we do the double with Gemzar and Cisplatin which I’m told takes a LOT longer… Talk to you soon.
    Derin

    Cisplatin does take a lot longer! My Gemzar is about 30 min. The cisplatin takes a little over an hour. Plus I get potassium and magnesium they also take about an hour each. Glad I only go every 14 days! LOL

    January 18, 2012 at 3:20 am in reply to: Wristband #56339
    tiff1496
    Member

    Got them today!! LOVE them, and the shipping was fast….it said 3 weeks, but didn’t take that long. :)

    January 18, 2012 at 2:42 am in reply to: Chemo #5 today. #56674
    tiff1496
    Member

    Pamela- My doctors don’t really worry about the number too much, but we are happy to see it go down. She did say that it could be a sign that the chemo is working. And as we know from Lauren—-it is!! WooHoo!

    January 18, 2012 at 1:52 am in reply to: Chemo #5 today. #56672
    tiff1496
    Member
    marions wrote:
    Tiff….absolutely, this looks hopeful due to the downward trend of your CA 19-9. Congratulations.
    On our site we have seen, in rare cases, shortness of breath. Cisplatin also can cause breathing difficulties. In order to rule out anything significant I would consider making an appointment with a lung specialist.
    Keep up the good numbers.
    All my best wishes,
    Marion

    I will look into seeing a lung specialist! Thanks for the advice. When they put that thing on my finger (not sure what its called LOL) it shows my oxygen is 100. So I’m not sure whats going on.
    BUT…I am excited about my CA19-9 going down. :)

    January 8, 2012 at 3:10 am in reply to: Wristband #56336
    tiff1496
    Member

    Got some!! Can’t wait to get them. :)

    January 7, 2012 at 9:33 pm in reply to: Wristband #56333
    tiff1496
    Member

    Thanks!!! :D :D

    January 5, 2012 at 3:46 am in reply to: Treatment Centers/Physicians #29964
    tiff1496
    Member

    I’m seeing a local oncologist in Huntsville AL, and then I got to MD Anderson to see Dr. Javle. We will be going next month for scans and meeting with him again.

    January 5, 2012 at 3:37 am in reply to: Asking for prayers #56153
    tiff1496
    Member

    Praying! I just know she is going to get good news! :D

    January 5, 2012 at 1:33 am in reply to: Tumor shrinking #56173
    tiff1496
    Member

    Awesome news!! I’m so happy your tumor is shrinking! :) Do you just have the 1 tumor? What size did it start out, and whats its size is it now?

    December 29, 2011 at 2:06 am in reply to: New CCA Patients Register On This Web Site (N0v.1-Dec.18,2011) #55800
    tiff1496
    Member

    Thanks for this info! I think I’m the baby on the list! 😎

    December 29, 2011 at 1:58 am in reply to: Pathology Report #55955
    tiff1496
    Member

    LOL Cathy– Your right. I just hate talking to doctors about it, guess I don’t want to hear the bad news from them.

    Percy- I have had a full body CT @ MD Anderson, we see Dr. Javle. He was the one who told me I have CC. The pathology report came from Fox Chase, that is where my local doctor sent it. MD Anderson wanted to do a molecular biomarker on the tissue, but they didn’t have enough. After talking to Dr. Javle, he said we would consider doing another biopsy if the chemo I’m on now isn’t working.
    I hate all this not knowing…

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