tiff1496
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Pam- You always know how to calm me down. haha. Thanks!! I just can’t help but to worry SO much ALL the time. Maybe its time to start taking something for this problem of mine.
I was going to update to let y’all know Dr. Kato said no to surgery right now. I’m ok with that, and will keep doing the chemo. Dr. Kato wants my right lobe to be clear for surgery, so I will keep him updated.
Yay for some smaller tumors!! We got to take the good news when we can get it!! Those other ones better watch out!!
Wow…guess i need to call my doctor. They did do the chemo via my port, I was just surprised when no blood came out.
When will she see the doctor again? I agree with Marion–she might have reached the max benefit, so it might be time to move on to something different. Keep us updated!
Its a little bag. Not sure how much.
Its not hooked up on the pump, is just a slow flow they set. But for some reason, the nurse raised my IV poll as high as it would go….I will be talking to my doctor about it at the next visit.Yes Lainy he is an awesome doctor! And this email was last night at 8pm!! Praying that God sends me on the right path.
OK Guys…I emailed Dr. Javle and he replied within the hour (what a great guy). Here is the emails-
Me- Dr Javle,
When we seen you last month, we didn’t talk much about surgery. I had a PET scan last Friday and the results looked good to me!
Here is some of the report:the left lobe intake is less confluent and overall decreased in intendity. Current max SUV is 7-8, previous was 12-13
Right lobe previous SUV was 6-7 now is 3-4.
No other foci of abnormal F-18 uptake.
Specifically, there is no evidenace of abdominal aoric aneurysm. No suspicious pulmonary nodules are appreciated.
Impression:
Locally positive response to therary without PET/CT evidence of nodal or distant metastases.With this being said, I would really like for you and your team to look over my case again for surgery. My goal is to have this cancer removed from my body.
Also, I had a small reaction to the Cisplatin today: After about 10 minutes my face got blood red, my temp went up, my heart rate was around 130, my bp went up, and I was having shortness of breath. They got it under control, and I got to finish the Cisplatin with it going in at a lower speed.
I also wanted to get you’re thoughts on radioembolization, is this something I need to look into? I want to be as proactive as possible with this cancer. I’m worried that the Gemzar and Cisplatin will quit working, and my tumors will grow.Thanks for your time and support
Dr. Javle- Hi Tiffany, Good news, I am very happy to hear of this. Regarding the cisplatin-this is not uncommon, but we will need steroids, benadryl and pepcid-like for taxol. Please discuss with Dr Shah. I think in future we should give as a slow infusion over 4 hours. The trouble is the amount of tumor in the liver. In your case, I feel we are going to see continued response for a long time. But surgery if less than curative can make things worse.
I do think in future, we will do PET scans whenever you come down. I definitely think Y90 should be considered. But we should get as much mileage from current therapy as possible. I do think its going to work for a while.
With all this being said. I got an email that Dr. Kato is looking at my scans today, and that I will hear today or tomorrow from him. Talk about stress! What if Dr. Kato says yes, and Dr. Javle said no to surgery. Advice. LOL
Ok, I just sent Dr. Javle an email, asking his team to look at me again for surgery. Maybe I will hear back from them soon. I also asked about the radioembolization.
Thank you everyone for your support! We are thankful that things are kinda looking up.
I’m on Tarceva. From what I understand, it isn’t really a chemo drug. Dr. Javle told me they don’t really know how it works, but it could help. I have been on it almost 4 months. No side effects other than a face rash. I take it while on chemo too. It was hard to get our insurance to pay for it. We were lucky someone donated us some while we were fighting insurance because its almost $5000.00 for 30 pills! OUCH!
