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December 4, 2013 at 2:19 am in reply to: Cholangiocarcinoma: treatment with sorafenib extended life expectancy #77621
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SpectatorThanks for sharing!
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SpectatorMary,
I am sorry to hear of the results of the scan. Lots of prayers for success with your new treatment.
Sometimes constipation can be caused by all the pre-meds of the chemo. I found Zofran really made me constipated. I used to take Miralax everyday while on chemo and radiation. It helped.Take care and enjoy your trip!
Susie
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SpectatorGreat news!!
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SpectatorHey Porter, bust of luck with the second opinion. I had 3. University of Pittsburgh, OHSU, and Mayo Rochester.
I did tell my oncologist at OHSU that I was seeking another opinion and they were fine with it. So, just in case you were curious, it’s not something you need to hide.
Keep us posted and glad to hear your tumor shrunk!Take care,
Susie
November 5, 2013 at 1:10 am in reply to: Does sugar, high body mass cause cholangiocarcinoma? #77001wallsm1
SpectatorWhen I was first diagnosed I was desperate to find similarities between cases. I figure there has to be something, but I have yet to find anything and am not as obsessed with it as I originally was.
I have always been healthy and had a good diet, no smoking, some minor alcohol use. Sure, I enjoy the occasional sweet, but I can’t name many people who don’t.
I am as skinny as can be. I’ve always been a runner or exercised in some form.
I had Mono in my early 20s. I have high cholesterol, which has been labeled as hereditary and I was never on medication for it.
I wasn’t on any medications at the time of diagnosis except I recently quit taking birth control.
My Grandpa had Prostate Cancer, but there is not a large cancer presence in my family.
I am the only non-smoker in my family and I am the only one who has cancer. I’m thankful they don’t have cancer, but I find it very ironic.Take care,
Susie
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SpectatorLots of prayers Tiff!!
And no you needn’t say more about the drama. We’ve all experienced some of that.Take care,
Susie
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SpectatorCan’t they do the MRI now if they think it would help determine if it is cancer or not?
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SpectatorI was on neupogen and had bone pain but not fibro issues. I was told Claritin helps. Not sure if it would help you, but maybe ask your onc. I dont see how it would hurt.
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SpectatorThanks for the update! Sorry to hear about your hip issues. It sounds like a wonderful trip you are planning. Please let us know how it goes.
I am 34 now, diagnosed at 31 and my husband and I have done lots of traveling since I’ve been diagnosed. It gives us something to plan, something to look forward to but it is also nice because it is not a long term commitment.Enjoy your trip and best wishes with your treatment!
Susie
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SpectatorLisa,
Lots of prayers for the upcoming PET scan.
Hang in there. It is never fun waiting to have tests done and then waiting for the results.Keep us posted,
Susie
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SpectatorOh my, I’m so sorry. Please keep us posted with what the plan is.
Best wishes,
Susie
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SpectatorI agree Lainy. The only issue is I am 34 and there are more issues that come along with pregnancy after 35. So, that is the reason I’d like to do it sooner.
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SpectatorGreat news!! Congratulations!
Take care,
Susie
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Spectatorsorry, the pain was actually AFTER chemo, not during.
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SpectatorI would get pain around my liver during chemo. It sent me to the ER once.
Take care,
Susie
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