Skip to content

wallsm1

Forum Replies Created

Viewing 15 posts - 1 through 15 (of 477 total)
  • Author
    Posts
  • in reply to: 5 years, wow, where did the time go? #93197
    wallsm1
    Member

    Glad to hear you are doing so well!
    I too am alive and kicking! My last ct was in April and cancer free.
    Take care!
    Susie

    in reply to: Back in the hospital #92228
    wallsm1
    Member

    Hi Kris,

    Sorry to see you have been in and out of the hospital but so glad to hear you are out. Hang in there .

    Susie

    in reply to: Sugar does not make your cancer worse #92062
    wallsm1
    Member

    Oh indeed it did, Gavin. I had another one today!

    in reply to: Sugar does not make your cancer worse #92058
    wallsm1
    Member

    Good to hear. Especially since I just ate a brownie. :)

    -Susie

    in reply to: Port is in…with a weird complication. #92003
    wallsm1
    Member

    I’m a nurse. I’ve seen that happen. Glad it’s taken care of!

    take care,

    Susie

    in reply to: CT scan Monday April 4 #92011
    wallsm1
    Member

    Best wishes for a good ct scan, Kris.

    Take care,

    Susie

    in reply to: Hello all #90519
    wallsm1
    Member

    Hi Cait,

    I haven’t logged in in forever but I just happened to and I saw your post. You are similar to me in many ways.
    I was diagnosed at 31 with Intrahepatic CC. about a 5cm mass. I had abdominal pain after eating too much pizza and it sent me to the ER.
    I was lucky enough to have surgery right away followed by chemo and radiation.
    I just had my 4.5 yr check up with my oncologist on Monday. I didn’t have a scan as I am now on yearly scans and the next one is in May. I did have my tumor marker checked and it was 11.5, down from 15 which is normal, so I was happy about that. My last scan at 4 yrs showed no cancer.
    It was really tough getting hit with this at such a young age. I was trying to have kids at the time of diagnosis so I know all about the fertility issues. I did meet with a fertility specialist and chose not to freeze my eggs as I did not want to delay chemo. Very long story short, but I know I still ovulate despite all my treatment.
    I really wish you the best. Please feel free to read my posts or message me directly with any questions. You will find a great support system here.

    And to the rest of my CC friends…Hello!!!!!!!!! I’ve missed you all and hope you are all well and had a fabulous Thanksgiving! I just got back from the Florida keys. My sister got married!!

    Take care!

    Susie

    in reply to: 5.5 year scan #88365
    wallsm1
    Member

    Great Randi!! Congratulations!!

    It is weird, trying to let go of cancer. I still think about it every day as well but not every second of every day like I used to. I also don’t cry as much. I think I cried every day for a year when I got diagnosed.

    Take care,

    Susie

    in reply to: 4 year ct scan #88224
    wallsm1
    Member

    Katrina, it was Gem/Cis and then I took Xeloda with radiation.
    What do you mean do many people get help with chemo/radiation? Like financial assistance?

    Take care,

    Susie

    in reply to: Drug boost in bile duct cancer battle #86892
    wallsm1
    Member

    Thanks for sharing, Gavin!!

    Take care,

    Susie

    in reply to: My Introduction #80242
    wallsm1
    Member

    Matt,
    Best wishes on the upcoming scan. I think it is very, very normal to get nervous around scan time. I have my next scan in May. That will be the 4 yr post resection scan for me.
    I still think about CC every single day but not all day every day like I used to. I still get nervous around testing time and every time I feel anything weird happening in my abdomen. I am accepting these feelings as the new normal. I think that is all one can do.
    I will be praying for you.

    Take care,

    Susie

    in reply to: Feeling down #85833
    wallsm1
    Member

    Porter,

    I’m so sorry to hear of the uncertainty. That can be so frustrating.
    I don’t really know what should be done but I think it sounds like your Dr’s have a reasonable plan. Please keep us posted .

    Take care,

    Susie

    in reply to: Radiation after chemo #85300
    wallsm1
    Member

    I think they would have preferred if I got radiation right after surgery and then got chemo. But I had already started my chemo before it was recommended I get radiation. So I did 3 cycles of chemo, radiation, and then the remaining 3 cycles of chemo.
    I had no lymph node involvement. My last MRI was in May and it did not show signs of disease.

    take care!

    Susie

    in reply to: Radiation after chemo #85298
    wallsm1
    Member

    Hi. I had I resection 3.5 years ago. I received adjuvant chemo and radiation.
    Radiation was recommended for me because I had a very close surgical margin.
    However, they wanted to do the radiation soon after surgery. I was actually started on chemo and I received 3 cycles, then got radiation along with an oral chemo, and then finished the other 3 cycles of my iv chemo.
    So, I think they like to perform radiation soon after the surgery. I’m not sure with her being a year out if they would recommend it but that is always something you can discuss with her Dr’s.
    I did get 3 opinions on the radiation and that’s exactly what I got, 3 very different opinions. Some recommend it and some don’t.

    take care and good luck!

    Susie

    in reply to: 5 Years Cancer Free this Month #85170
    wallsm1
    Member

    Congratulations, Lainy!!! So glad to hear it.

    Take care,

    Susie

Viewing 15 posts - 1 through 15 (of 477 total)
©2019 - All Rights Reserved, Cholangiocarcinoma Foundation
Scroll To Top