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Glad to hear you are doing so well!
I too am alive and kicking! My last ct was in April and cancer free.
Take care!
SusieHi Kris,
Sorry to see you have been in and out of the hospital but so glad to hear you are out. Hang in there .
Susie
Hi Cait,
I haven’t logged in in forever but I just happened to and I saw your post. You are similar to me in many ways.
I was diagnosed at 31 with Intrahepatic CC. about a 5cm mass. I had abdominal pain after eating too much pizza and it sent me to the ER.
I was lucky enough to have surgery right away followed by chemo and radiation.
I just had my 4.5 yr check up with my oncologist on Monday. I didn’t have a scan as I am now on yearly scans and the next one is in May. I did have my tumor marker checked and it was 11.5, down from 15 which is normal, so I was happy about that. My last scan at 4 yrs showed no cancer.
It was really tough getting hit with this at such a young age. I was trying to have kids at the time of diagnosis so I know all about the fertility issues. I did meet with a fertility specialist and chose not to freeze my eggs as I did not want to delay chemo. Very long story short, but I know I still ovulate despite all my treatment.
I really wish you the best. Please feel free to read my posts or message me directly with any questions. You will find a great support system here.And to the rest of my CC friends…Hello!!!!!!!!! I’ve missed you all and hope you are all well and had a fabulous Thanksgiving! I just got back from the Florida keys. My sister got married!!
Take care!
Susie
Great Randi!! Congratulations!!
It is weird, trying to let go of cancer. I still think about it every day as well but not every second of every day like I used to. I also don’t cry as much. I think I cried every day for a year when I got diagnosed.
Take care,
Susie
Katrina, it was Gem/Cis and then I took Xeloda with radiation.
What do you mean do many people get help with chemo/radiation? Like financial assistance?Take care,
Susie
Matt,
Best wishes on the upcoming scan. I think it is very, very normal to get nervous around scan time. I have my next scan in May. That will be the 4 yr post resection scan for me.
I still think about CC every single day but not all day every day like I used to. I still get nervous around testing time and every time I feel anything weird happening in my abdomen. I am accepting these feelings as the new normal. I think that is all one can do.
I will be praying for you.Take care,
Susie
Porter,
I’m so sorry to hear of the uncertainty. That can be so frustrating.
I don’t really know what should be done but I think it sounds like your Dr’s have a reasonable plan. Please keep us posted .Take care,
Susie
I think they would have preferred if I got radiation right after surgery and then got chemo. But I had already started my chemo before it was recommended I get radiation. So I did 3 cycles of chemo, radiation, and then the remaining 3 cycles of chemo.
I had no lymph node involvement. My last MRI was in May and it did not show signs of disease.take care!
Susie
Hi. I had I resection 3.5 years ago. I received adjuvant chemo and radiation.
Radiation was recommended for me because I had a very close surgical margin.
However, they wanted to do the radiation soon after surgery. I was actually started on chemo and I received 3 cycles, then got radiation along with an oral chemo, and then finished the other 3 cycles of my iv chemo.
So, I think they like to perform radiation soon after the surgery. I’m not sure with her being a year out if they would recommend it but that is always something you can discuss with her Dr’s.
I did get 3 opinions on the radiation and that’s exactly what I got, 3 very different opinions. Some recommend it and some don’t.take care and good luck!
Susie
