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Hi Porter. I have only ever had one PET. It was right after my surgery. My situation was kind of backwards. I had surgery first for a tumor that the Dr’s did not think was cancerous. Then after surgery when they found it was cancer, I was worked up for a primary.
How big are the spots? I would ask if they are big enough to light up on PET. I’m sure if they were concerned about them they would order a biopsy. But you could ask about that as well.Take care,
Susie
Porter,
Congrats on your last treatment!
I have had very similar experiences to you. My liver hurt a lot during chemo. I was always afraid it was a recurrence. It never was and the pain went away after treatment was over. Every now and again I still get a random pain in my abdomen. Nothing has ever showed up on CT but it is still enough to cause me to worry.
I’ve debated since diagnosis going on an anti depressant but I never have. My reason is that I just don’t think a little pill is going to make me forget I had cancer and all that it’s taken from me. Just my thoughts. I know plenty of people use them and find them beneficial.
I did go to the OHSU young adult cancer support group and sometimes I still consider going there. It is just a pain for me to get there on time with traffic.
When I went, I had mixed feelings about it. It is a support group for cancer “survivor’s” but I’m not really sure what that means. A lot of the members were stage IV undergoing very aggressive treatment for various cancers. I don’t think there was much hope for them being cured. For me, it was difficult going there being cancer free and being around so many others who were not and probably never will be. It’s like you feel bad complaining. That’s how I felt anyway.We should meet up for coffee sometime! We’re pretty close to each other.
Take care,
Susie
Porter I asked our onc the same thing about the aspirin. She said it’s only been proven for colon cancer.
I had also discussed maybe getting pregnant so for that reason she said no to the aspirin.I have a small ulcer in my duodenum from radiation. I have no symptoms and only know it is there because I was scoped. So for that reason, I am thinking no aspirin for me.
Take care,
Susie
I saw the oncologist. Not much to report, visits are pretty short when you are doing well. I get blood work at 6 month and ct chest/abd/pelvis in one year.
I asked about my prognosis at this point and she agreed it gets better as time goes on. I believe she said 75% recur in the first 2 years. I think Mayo told me 90-95% recur in the first 2 -2 1/2 years.
She said I can have kids if I chose to do so, so we’ll see. It’s a big decision. I did meet with high risk OB about 6 months ago and he said I am not that high risk. He called me medium risk. Said my main concerns would be preeclampsia and growth restriction. Also talked about the possibility for issues if I need a csection due to my abdominal surgeries.I am so thankful for my 3 years of life. I am now 34 years old. Any questions, please feel free to ask.
Thanks,
Susie
