willow
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Interesting and yet a bit sad as this practical, experienced Dr reminds us that we tend to paint ourselves a more hopeful scenario than is real. Is t this hope good for us (as opposed to despair or resignment)? Sure, we have to live in the real world and face motrtality when the time is right but how can she say when that is unless its obvious someone is passing?. As for the sale of outrageously expensive drugs with little statistcally proven benefit, i agree, that is a good discussion the Dr should address with the patient.
Great to hear! You’ve been through a lot but sound like you’re enjoying life to the fullest! I am also interested in your experience with PDat. How many TX does it require? Thank you for sharing your story. I truly hope your hospital doesn’t drop apDT as a tx option.
Gerardo, sending you and Ginger prayers for peace and comfort. You are such a loving husband. The school community who is showing so much support is a reflection of the love and good you both put out to the world through.
That’s great that you are going to be with her. Your gut was right on when you suspected an abscess. Here’s to her quick recovery from this awful complication!
KathyD,
I am sorry for the disappointing chemo results. I dont lnow the stats but have read that every persons tumors may respond differently to a given chemo. I can’t imagine all the emotions you’re going through and can understand why you’re scared. Many have stabilized even with similar stage as you so please dont lose hope! I don’t know about MD Anderson in Orlando but know the one in Houston has great reputation so Id assume the ine in FL also would. Just want to offer moral support. The Gem/Cis didn’t work for my sister either (well, mixed results; slt shrinkage of tumor in liver but growth of one in portal vein). Could be she wasnt on it long enough to get benefit because they dont let you have it if blood counts get too low (that happened several times). It helps to focus on next plan of action. For my sis it’s radioembolization and maybe different chemo or chemoembolization later. I know many have had success with smaller tumors using stereotactic radiation. I’m glad your Drs are quickly shifting gears. the ling-timers on this site always rec 2nd and 3rd opinions. Hang in there!Dear Amangeloff,
I am so sorry to hear your husband is in more pain and too sleepy from the meds to participate in family life right now. That has to be one of the hardest things for you. I read back your previous posts because we are in N. CA and my sis is being tx at Stanford, but like the rec. of more good Dr’s down there if and when she is ready for a 2nd opinion. Can you tell me, is your husband still cancer free? Just side effect from his surgery causing his pain? God Bless you and your young family. Willow
Clarem, this sounds better. I am hoping that now this more accurate diagnosis and aggressive treatment will bring her back to health so she can continue with treatments for CC. Will keep you both in my thoughts and prayers, Willow
Dear Bob, I am sorry for the loss of your sister and surprised at its suddenness. Please accept my condolences and gratitude for sharing your sisters story.
That’s spectacular news, Kris!!
So glad the stereotactic rad is working!! Such a relief to have that behind you!Clarem, I too am going to say a special prayer for your sister. Follow Your instincts. youre knowledge and background make you a wonderful advocate for your sister. Still, I’m sure it’s very hard to completely assess the situation and communicate with the doctors long distance. Sorry I haven’t medical advice. Hang in there.
