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Home / Blog / 🤚🏻 Five for Friday – National Children’s Grief Awareness Day Yesterday, November 17, was National Children’s Grief Awareness Day. The Cholangiocarcinoma Foundation recognizes the children of many of our patients who may also be experiencing a wide range of emotions due to their family member’s diagnosis. Click these links to learn…

Home / Blog / 🤚🏻 Five for Friday – Vietnam Veterans and Cholangiocarcinoma Did you know Sheila Harrison was the first widow to have the Department of Veteran Affairs rule that her husband, Edward “Pete” Harrison’s death was connected to his exposure to liver flukes during his services in Vietnam? She helped make others aware…

Home / Blog / 🤚🏻 Five for Friday – Five Caregiver Perspectives November is National Family Caregiver Month (NFCM)! The Cholangiocarcinoma Foundation recognizes NFCM as a time to celebrate the contributions of caregivers. We are pleased to share five Caregiver stories this week: Caregiver Perspective – Jill Neubauer Caregiver Perspective – Laura Lee Caregiver Perspective…

Home / Blog / 🤚🏻 Five for Friday – Meet Five CCA Physicians The Cholangiocarcinoma Foundation realizes that the fastest way to advance research is by working together. As the leading advocate for patients, the Foundation is uniquely positioned to bring together world-renowned clinicians, researchers, and physicians to achieve a common goal: finding a cure.…

Home / Blog / 🤚🏻 Five for Friday – Meet 5 CCA Scientists Finding a cure for a disease as rare and complex as cholangiocarcinoma demands creative solutions. When clinicians, scientists, and researchers collaborate, their experience and knowledge advance research. Meet five cholangiocarcinoma scientists: Sumera I. Ilyas, M.B.B.S. Lewis Roberts, Ph.D Lipika Goyal, M.D. Juan…

Home / Blog / 🤚🏻 Five for Friday – Meet Some of CCF’s Valued Experts Collaboration is essential for cholangiocarcinoma research. This month, join us in appreciating our medical professionals. We are recognizing them each week this month. Here are six of those valued experts: Scientific & Medical Advisory Board (SMAB) R. Kate (Katie) Kelley…

Home / Blog / 🤚🏻 Five for Friday – 6 CCF Accomplished Medical Professionals CCF collaborates with many physicians, clinicians, and researchers whose accomplishments in the cholangiocarcinoma field have significantly contributed to the organization. This week, we are proud to introduce you to six professionals, alphabetically by last name: Dr. Mitesh Borad ICRN Chair Dr.…

Cholangiocarcinoma patients are eager to contribute to science and accelerate research because of this newly approved FDA process and share their experience enrolling in the International Cholangiocarcinoma Patient Registry (ICPR). The following testimonials from four patients and one caregiver refer to their experiences enrolling for ICPR and receiving emails/phone calls about the free regisration. Register…

Home / Blog / 🤚🏻 Five for Friday – 5 Questions to Ask Your Doctor About Biomarker Testing + 2 Biomarker Stories Knowing what to ask your doctor after a cholangiocarcinoma diagnosis isn’t always easy. CCF is here to help with five questions you can ask regarding biomarker testing and new videos to explain IDH mutations: Can…

Home / Blog / 🤚🏻 Five for Friday – 5 Ways to Support 21 Miles of Hope In 2016, Jonathan Whiting lost his wife, Lori, to cholangiocarcinoma (CCA). He is swimming across the English Channel in July to honor her memory and raise awareness and research funds for CCA. Tomorrow, he is swimming 12 miles…

Home / Blog / 5 Trials at ASCO 2022 The American Society of Clinical Oncology (ASCO) meeting took place in Chicago the first week of June. The Foundation provided an information booth and participated in premier scientific events for oncology professionals, patient advocates, industry representatives, and major media outlets worldwide. Some of the latest cholangiocarcinoma…

Home / Blog / 🤚🏻 Five for Friday – 5 CholangioConnect Resources Through peer-to-peer mentorship with a fellow patient or caregiver, CholangioConnect is creating a community of hope. Please consider becoming a mentor and making a new friend. Here are five resources for your consideration: Learn more about what mentors do Discover how CholangioConnect changed Jessica’s life…

Home / Blog / 🤚🏻 Five(+3) for Friday – 8 New Biomarker Stories Biomarker testing opens doors to personalized treatment options, including clinical trials, for cancer patients. The Foundation is proud to present eight patient stories for whom biomarker testing positively impacted their cancer journeys. Julie Thole Ben Lazcano Sharon Hockenberry Hadley Recor John Pierce Ivy Elkins…

Home / Blog / 🤚🏻 Five for Friday – 5 NCSD Activities that Celebrate Survivorship June 5th is National Cancer Survivors Day (NCSD). This year marks the 35th Annual NCSD, which is a day for cancer survivors to stand together and show the world that life after a cancer diagnosis can be meaningful, fulfilling, and…

Home / Blog / 🤚🏻 Five for Friday – 5 Episodes of Cholangio Heroes The Foundation is pleased to announce its first-ever video podcast, Cholangio Heroes. A wide array of guests impacted by cholangiocarcinoma are featured in each weekly episode. Cholangio Heroes can be found on CCF’s YouTube Channel, Spotify, Podbean, Frontliners TV, HeroGo TV, Local Now, VivaLive…

Home / Blog / 🤚🏻 Five for Friday – 5 Recent Articles of Interest The Cholangiocarcinoma Foundation is sharing news and research updates with the community to inspire hope. Here are five recent articles of interest: Zymeworks Reports Last Patient Enrolled in Pivotal Study of Zanidatamab The International Cholangiocarcinoma Research Network Initiatives Oncologist Stories: Lincoln…

Home / Blog / 🤚🏻 Five for Friday – 5 ways you can participate in Campaign for the Cure Here are five ways you can participate in the Campaign for the Cure: Learn More Campaign for the Cure (#C4C2022) launched this week and runs for the entire month of May. You can learn more about the campaign…

Home / Blog / 🤚🏻 Five for Friday – New Items in the CCF Store (and 25% off coupon) The Cholangiocarcinoma Foundation Store has new items! All proceeds from your purchases support CCF programs and services. Here are new items recently added with an opportunity to get 25% off using the code Mom25 from April 29 to…

Home / Blog / Five for Friday – Ways to Get Connected to the CCF Community to Find Support Having strong supportive relationships is known to provide emotional help during stressful times, give greater levels of happiness, and inspire hope. Here are five ways to get connected to the CCF community and find support: Virtual…

Home / Blog / Five for Friday – Highlighting 5 Volunteer Fundraisers April is National Volunteer Appreciation Month. CCF honors volunteers who are making significant contributions by donating their time and talents to raise money for research. In commemoration of Appreciation Month, consider supporting the following volunteer-organized events: 3rd Annual Quack Out Cholangio Racing for Hope…

Home / Blog / Five for Friday – Surveys that impact research Providing answers to a few research questions helps the Cholangiocarcinoma Foundation further research. There are four short surveys attached to this email that patients or their caregivers can take to help the research community better understand the natural history of this disease. Your…

Home / Blog / Five for Friday – 5 ways volunteers lead the change It’s time to celebrate how volunteers serve with #ccahope. The Foundation is thankful to all of the incredible volunteers who inspire us and work so hard day in and day out to support patients. In the past year, volunteers donated more…

Home / Blog / Five for Friday – 5 CCF Resources The Foundation’s website is full of important educational information for cholangiocarcinoma patients. Here are five (5) resources at your disposal. For more information, please visit the Newly Diagnosed/New to CCF webpage. Specialist Map Biomarker Testing CCF Blog 100 Questions & Answers About Cholangiocarcinoma E-book Discussion…

Home / Blog / Five for Friday – 5 ways to use nutrition to fight cancer Happy National Nutrition Month! “Nutrition is an important thing to consider when you’re getting cancer treatment. Eating healthy foods before, during, and after treatment can help you feel better and stay stronger. But cancer and its treatment can sometimes…

Home / Blog / Five for Friday – 5 Annual Conference Sessions The 9th Annual Cholangiocarcinoma Foundation Conference was a tremendous success! Attendees helped to assemble 1,500 care kits for newly diagnosed patients, 200+ people joined CCF’s Light it Green for CCA Walk, 250 participants joined the conference in-person, and 900+ joined virtually. Session recordings from the…

Home / Blog / Five for Friday – 5 pages to review in the CCF Annual Report Thanks to your support, the Cholangiocarcinoma Foundation community has continued to grow with its core value of putting patients first. Here are five (5) pages in the 2020-2021 Annual Report you may find of interest. Spotlight on research Spotlight on…

Home / Blog / Five for Friday – 5 ways to prepare for the Annual Conference The 9th Annual Cholangiocarcinoma Foundation Conference starts Wednesday, Feb. 23rd. The virtual platform opens at 8:00 a.m. (MDT) on Monday, February 21st. You will receive an email that morning with a link to log in to the platform. The Foundation…

Home / Blog / Five for Friday – 5 ways you can put your advocacy to work for World CCA Day World CCA Day is an international effort to raise much-needed awareness of bile duct cancer. Cholangiocarcinoma is increasing globally and the Foundation is acting with urgency with a concerted effort to support patients and…

Home / Blog / Five for Friday – 5 Cholangiocarcinoma Educational Videos Happy Cholangiocarcinoma Awareness Month! The Foundation co-founded the steering committee of the Global Cholangiocarcinoma Alliance to establish a global voice for cholangiocarcinoma. This alliance works to improve prevention, survival, and the quality of life of patients around the world. Here are five (5)…

Home / Blog / Five for Friday – 5 ways you can get involved in Cholangiocarcinoma Awareness Month In February, the Foundation invites everyone to participate in Cholangiocarcinoma Awareness Month, with February 12th marking World Cholangiocarcinoma Day, also known as World CCA Day. As part of February’s events, the Foundation will continue the Light It…

Home / Blog / Five for Friday – CCF in the news Raising awareness about cholangiocarcinoma can save lives. The Cholangiocarcinoma Foundation is grateful for its community members who help spread awareness about this rare cancer. Below are five (5) pieces of media coverage about cholangiocarcinoma: Cholangiocarcinoma Foundation on KTVX – ABC4 A Veterans Day…

Home / Blog / Five for Friday – 5 events to add to your calendar The Foundation hopes you are having a Happy New Year! This year, exciting opportunities are happening, including the 9th Annual Cholangiocarcinolma Foundation Conference and more. Here are five (5) events to add to your calendar as the new year begins.…

Home / Blog / Five for Friday – 5 milestones to cherish in 2021 Join us in welcoming 2022! It is going to be extraordinary. The Foundation is working on many more collaborative opportunities. Every project, partnership, and initiative the Foundation is involved with centers around patients. Supporting patients to render cholangiocarcinoma a treatable disease…

Home / Blog / Five for Friday – Happy Holidays As 2021 comes to a close, the Foundation recognizes it has come through a year filled with both unique challenges and positive developments. It has been reassuring to know that CCF can count on all of you regardless of what faces us. CCF celebrates the…

Home / Blog / Five for Friday – 5 groups that support the CCF mission Collaboration is a core value of the Cholangiocarcinoma Foundation and is fundamental to its growth and ability to provide high-quality programs and services to the cholangiocarcinoma community. The Foundation dedicates its efforts in cooperation with other organizations to supporting patients…

Home / Blog / Seven for Friday – 7 Cholangiocarcinoma Survivor Stories Cancer can take away a lot of things but never hope. There are so many positive, ongoing developments in cholangiocarcinoma research. Whether you are a patient or know a patient, there is more reason than ever to spread hope in the CCA community.…

Home / Blog / Five for Friday – 5 impactful ways you can make a year-end gift As 2021 comes to a close, there are a number of opportunities to support the Foundation. Your year-end giving does make a long-term impact. This week, we’d like to share five impactful ways you can make a year-end gift…

Home / Blog / Five for Friday – 5 ways to prepare for the conference Registration for the 9th Annual Cholangiocarcinoma Foundation Conference is open! The annual conference takes place the week of Feb. 23-25, 2022. Join more than 500 patients, caregivers, scientists, researchers, and healthcare providers from around the globe to learn about the latest in…

Home / Blog / Five for Friday – 5 Caregiver Resources Celebrated every November, National Family Caregivers Month (NFCM) is a time to recognize and honor family caregivers across the country. The Cholangiocarcinoma Foundation is proud to recognize NFCM and the individuals who support their loved ones through the cancer journey and beyond. Thank you,…

As the holiday season approaches, we invite you to look for ways to show gratitude and give back to the CCF community.

Home / Blog / Five for Friday – 5 industry projects that support our CCA community The Foundation’s core values are patients first, collaboration, innovation, and urgency. We want to share a few projects our industry partners are working on to support our entire community: Elevation Oncology – Podcast on biomarkers, new tests and new…