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March Community Member Spotlight

Kathy was diagnosed with cholangiocarcinoma in November 2021. Like many diagnosed at later stages (3B) with portal vein involvement, her cancer was deemed inoperable. Initially, she was given a poor prognosis. Throughout 2022, she underwent treatment, and she is thankful to share that her disease has remained stable with no progression since completing treatment.

Early in her diagnosis, one of Kathy’s daughters discovered the Foundation. She encouraged her mother, saying, “There are a lot of stories and information, and there’s more hope than we were presented with initially.” After some time, Kathy requested a mentor. “It was positive to connect with someone who truly understood some of what I was fearful about. Someone with fears and anxieties but could offer me real support and encouragement.”

After treatment, Kathy carefully considered becoming a mentor herself. She shared, “For some time now, my cancer has been stable, and I’ve been feeling really good. I didn’t want to waste this valuable time. I realized I was ready to open myself up more, get outside my head, and be there for others whose lives, like mine, have changed with this diagnosis. I aim to be a voice of understanding, encouragement, and empathy to others going through this difficult diagnosis. My mentor has helped me a great deal, and I see this as a chance to ‘pay it forward.’”

Kathy is retired and full of interests. Her first love is spending time with her daughters and grandchildren, and she tenderly shared, “I enjoy getting to know my grandkids as people as they get older.” Musical her whole life, Kathy has learned to play the ukulele. The ukulele is a communal instrument, and across the world, there are local groups called Song Circles that join together to play. “Music is so valuable to sustain oneself during difficult times. Not only the music but the people have been so supportive and positive.” Kathy’s combined joy for life and heart for others make her an inspiring figure in our community. The Foundation is grateful that Kathy shares her vibrant take on life with others facing CCA.

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Volunteer Opportunities

If you have any questions regarding the volunteer program, please contact Claire Condrey, Volunteer Coordinator, at claire.condrey@cholangiocarcinoma.org

Claire Condrey

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