CCF Volunteer Program

volunteer-program

June's Volunteer Spotlight - Libby Wolfe

Libby Wolfe is a people person. She enjoys spending time with her grandchildren and is blessed to have them both just minutes away. She loves book clubs, all sorts of exercise (i.e. golf, biking, and yoga to name a few), and socializing. Early childhood education is her love and she made a career in that as she co-owned a Montessori preschool in Wisconsin prior to her retirement.

Nearly five years ago her world was turned upside down with the cholangiocarcinoma (cc) diagnosis. She was originally diagnosed with a urinary tract infection, but further testing uncovered a liver mass. Libby sought a second and third opinion after her cc diagnosis and connected with two patients mentors in 2016. After surgery she’s also had successful immunotherapy, chemo for only a short time as she suffered some adverse reactions, and radiation with little side effects. A retirement, a divorce, healing from a previous heart surgery, and a new cancer diagnosis were all on Libby’s plate in 2015. It was overwhelming and so scary. She felt so alone, burdened with challenge after challenge, and buried in unknowns of what to do for next steps. Today she feels her challenges and growth are experiences she doesn’t want to waste. Although it is so tough to deal with this diagnosis, she shares that the connections she has made with CCF have been so incredibly powerful. She volunteers because she remembers the dark place she was in once and she wants to change that for others. She doesn’t want anyone to feel alone or burdened with overwhelm. She hopes to share a little light at the end of the tunnel.

In 2017 she was touched by a particular Annual Conference presenter, as the CholangioConnect program was introduced, and has since been mentoring patients for nearly three years. “I feel good when I can direct people to the Specialist Map and I love Mutations Matter,” shares Libby. Part of the light at the end of the tunnel she shares includes the bravery of patients in clinical trials. “They are so brave, so outstanding!” she adds. “No trial they participate in is a waste. We give our all to learn about new treatments.” she continues. Libby credits others she’s met at past Annual Conferences to having such a new perspective on clinical trials. Libby never thought she would find herself back in education, but through her volunteer service that is exactly where she finds herself again - connected to her love of education, this time in benefitting cc patients. It is an honor and privilege to recognize Libby Wolfe as the Volunteer of the Month!

New Volunteer Opportunities

Cindy Thomas is the Foundation's Volunteer Coordinator.

Cindy received a Bachelor of Science degree from Brigham Young University and has enjoyed working with the Foundation since June of 2018 as a part time staff member.

If you have any questions regarding the Foundation's volunteer programs, please contact Cindy at cindy.thomas@cholangiocarcinoma.org.

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