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Home / Blog / Five for Friday – 5 items you can purchase to help support CCF’s anniversary On Jan. 21, 2021, CCF introduced a year-long celebration of its 15th Anniversary. The CCF Awareness Store recently added new 15th anniversary items. Here are five (5) items you can purchase to help support the anniversary and…

The Foundation’s International Cholangiocarcinoma Research Network (ICRN) and the European Cholangiocarcinoma Network (ENS-CCA) created two new mentoring programs…

CCF and TeamCCF are thrilled to announce our Second Annual virtual Turkey Trot. This Thanksgiving we want you to move for a good cause.

Any cancer diagnosis is frightening but when it is rare cancer with few treatment options, the diagnosis can be especially devastating.

Please help participate in CCF’s Light It Green For CCA project! Cholangiocarcinoma Foundation (CCF) hopes to share awareness far and wide this year!

Helping to raise funds for a grossly underfunded disease is something you rarely see from a theater company. Yet, that is exactly what Ruth Stage, Inc…

Cholangiocarcinoma patients and scientists need help generating funding for research and treatment of early-stage cholangiocarcinoma, a rare but lethal bile duct cancer. To help in that effort…

Subscribe to our YouTube Channel Title: Personalizing cancer treatments with the PARIS® Test for cholangiocarcinoma patients Recorded: Thurs., Sept. 23, 2021 4:00pm (Eastern) Presented by: SEngine Rare and aggressive cancers, such as Biliary Tract Cancers (BTCs), have a significant unmet need that current approved therapeutics do not meet. Conventional clinical trial-based approaches have been ineffective…

CCF officially launched its Newly Diagnosed/New to CCF program on Monday, Sept. 13th, to support patients and caregivers following a cholangiocarcinoma diagnosis.

The Cholangiocarcinoma Foundation (CCF) is proud to announce the launch of its Newly Diagnosed/New to CCF program to support patients and caregivers following a cholangiocarcinoma (bile duct cancer) diagnosis.

The terrorist attacks on Sept. 11, 2001, that led to the destruction of the World Trade Center and the loss of thousands of lives was an environmental disaster with long-lasting consequences. The dust and toxins that dispersed into the air and covered lower Manhattan set into motion a health crisis that will only accelerate in…

These volunteers spend countless hours reviewing patient materials, giving feedback on clinical trial design, and sharing their knowledge to help advance the science and better the lives of cholangiocarcinoma patients.

Partnership and collaboration are vital to our mission to find a cure and improve the quality of life for those affected by cholangiocarcinoma.

Cholangiocarcinoma Foundation CEO and Founder Stacie C. Lindsey has been named a finalist of the Cancer Community (C2) Awards in the category of C2 Catalyst Change.

The Foundation recently celebrated its 500th mentor/mentee relationship with the CholangioConnect program. This week we are sharing a more in-depth look into the CholangioConnect Program.

Just shy of the fourth anniversary of CholangioConnect, there was a celebratory enthusiasm as the administrative entry registered its 500th connection through the Foundation’s mentoring platform.

CCF provided patient insights into Servier’s development of TIBSOVO® as a treatment for individuals with IDH1-mutated cholangiocarcinoma.

CholangioConnect was my mooring in a hurricane. Life seemed impossibly full of information and emotions, and I was so grateful for my mentor.

Shaun Hope was diagnosed with extrahepatic cholangiocarcinoma in August 2019. He faced his diagnosis with courage and his famous mantra, “It could be worse.” Shaun was a geek at heart. Even while struggling with fatigue and pain, he worked as long as he was able to. He built an arcade, purchased a 3-D printer to…

Within hours of my dad’s cholangiocarcinoma diagnosis, I was online doing research trying to learn about this type of cancer. I soon found my way to the comforting and informative website for the Cholangiocarcinoma Foundation.

In anticipation of our upcoming Newly Diagnosed program, we would like to recognize several friends of the Foundation who have been willing to share their survivor stories.

The Cholangiocarcinoma Foundation (CCF) and TeamCCF sponsored its second athletic event, Moving for the Cure. The virtual fundraiser invited participants from around the world, of any age, and of any physical ability to raise money through an athletic event of their choosing.

CCF is excited to announce the 2022 Annual Conference t-shirt logo contest. CCF is now accepting logo proposals for t-shirts, which will be introduced for the Annual Conference.

A cholangiocarcinoma (CCA) diagnosis can be overwhelming when you have the burden of figuring out what treatment options are best for you.

Did you know that all educational webinars are recorded and added to CCF’s YouTube Channel?

It’s time to celebrate! July 2021 marks the creation of the 500th mentor/mentee relationship with CholangioConnect since its beginning in July of 2017.

Excerpt from the ASCO Post, by Mairéad Geraldine McNamara, MB, PhD.  When I interviewed for my current post as a first-time consultant in medical oncology in the United Kingdom, I was asked about my 5-year career plan. I remember some detail of my reply, but I don’t think it even remotely encompassed the depth of insight…

Keeping you informed and educated about cholangiocarcinoma is a priority for us at the foundation.

Join CCF’s 2nd Annual Moving for the Cure! Enjoy any activity, anywhere, and raise money for the Foundation. All ages and athletic abilities can participate.

This week, we are featuring five (5) events that the cholangiocarcinoma community has put together to engage with others, be proactive in facilitating awareness, and raise money for the Cholangiocarcinoma Foundation.

It is with extreme pleasure that we announce Dave Fleischer is near the end of his 15,000-mile Journey of Hope. On Wednesday, June 30th, he will make his way back to Utah and be greeted with a welcome back party at Ken Garff Honda Orem.

The American Society of Clinical Oncology Gastrointestinal Cancers Symposium (GI ASCO) recognizes the important role clinical trials play in cancer advancements, especially GI cancers.

Cholangiocarcinoma Awareness Matters! This year nearly 10,000 people in the United States and many more across the world will be diagnosed with CCA, many in a late stage.

In anticipation of National Cancer Survivors Day on June 6th, we would like to recognize several friends of the foundation who have been willing to share their survivor stories.

TeamCCF would like to take this opportunity to engage those who want to fundraise for the Foundation in a fun and positive way with a fitness component.

This is an important milestone for this community and specifically for patients with CCA harboring an FGFR2-fusion.

Our social media platforms allow us to tell your stories. Messages can help increase awareness, promote programs and initiatives and spread the word about our mission.

Each week we bring you the latest information and updates relevant to the CCF community through our live webinars and other events.

Join a vibrant community of donors helping to find a cure for cholangiocarcinoma and improving the lives of patients and families.

This is an important milestone for this community and specifically for patients with an IDH1 mutation.

While April is set aside to focus gratitude for volunteers, we recognize and appreciate their contribution every day.

Annual Conference sessions are now available on our YouTube channel and website.

Our 15th Anniversary volunteer committee has pledged to raise $150,000 to help fund critical research into this deadly disease.

Dear Friends, This year CCF is celebrating 15 years of providing love, comfort, and hope to the cholangiocarcinoma community. We are honored to serve as Co-Chairs of the 15th Anniversary Steering committee. We hope you have been enjoying the monthly “What’s Your 15?” opportunities to remember, reflect and give back to this community we have…

Join us as we explore our roots and applaud the many individuals and organizations who have contributed to our growth and impact.

If you haven’t taken the surveys, please take a few moments to complete them. These surveys are very important in our planning for the conference.

CCF has awarded the 6th cycle of funding for its Research Fellowship Program.

The Cholangiocarcinoma Foundation (CCF) announced the inaugural 2021 Poster Abstract Awards at its virtual annual conference.

The Cholangiocarcinoma Foundation (CCF) announced the 2021 Mark R. Clements honorees at its virtual annual conference.

We are writing to request your participation in a research study. The study is being conducted through the Winship Cancer Institute at Emory University in collaboration with the Cholangiocarcinoma Foundation and Ciitizen.

We encourage you to login before the conference starts to familiarize yourself with the platform. This week we are sharing 5 tutorial videos to help you learn your way around the platform.

CCF’s 8th Annual Conference is around the corner! We encourage you to use hashtags to help friends, family and colleagues know what is happening at this conference.

CCF’s 8th Annual Conference is 19 days away! Join more than 1,000 patients, caregivers, scientists, researchers, and healthcare providers from around the globe.

Awareness Month 2021 has been the most impactful yet! Thank you to all those that participated in shining a light on cholangiocarcinoma this year.

“This is an important milestone for this community and specifically for patients with an IDH1 mutation.”

Our conference is jam-packed with fun games, trivia and more. We’ve created several ways for you to feel involved and connect with other CCF friends.

CCF has partnered with the newly formed Japan Cholangiocarcinoma Association to serve patients, raise awareness, fund and create a network for research and healthcare providers in Japan and throughout Asia.

We teamed up with Mill Pond Communications, with support from QED Theraputics and Bayer to create several patient-friendly videos explaining important topics about CCA.

Josh Bloomfield was a top blues drummer and vocalist who contributed so much to his 41 years of life. Although short in stature, his large personality and musical talents made a splash in the Capital Region.

World Cholangiocarcinoma (CCA) Day is an international effort to raise much-needed awareness of CCA. This disease is increasing in incidence globally and we believe collaboration is crucial to move forward towards a cure.

This month, we invite everyone to participate in Cholangiocarcinoma Awareness Month. Let’s work together to raise much-needed awareness by shining a light on CCA throughout the world.

CCF plans to have some fun during the conference! We are excited to announce our second annual Music Video Contest and this year’s winning song.

The American Society of Clinical Oncology Gastrointestinal Cancers Symposium (GI ASCO) recognizes the important role clinical trials play in cancer advancements, especially GI cancers.

In 2021, the organization will celebrate its rich history and the many individuals and organizations who have contributed to the organization’s growth and the impact it has made in the cancer community.

GI ASCO is a global symposium that delivers the latest and most innovative science, research, and multidisciplinary educational content in the GI cancers field.

Collaboration is a core value at CCF and is fundamental to the Foundation’s growth and ability to provide high-quality programs and services to the CCA community.

You are the future of research, and we want you to know that your validated data matters. When you request your health records and share your data with Ciitizen, you are helping us find a cure for cholangiocarcinoma (CCA).

We hope you had a Happy New Year! Exciting things are happening at Cholangiocarcinoma Foundation (CCF) this year, including celebrating our 15th Anniversary and more.

Please help us participate in CCF’s Light It Green For CC project! We are excited to grow this campaign in 2021.

I am a 40 year old mother of two, Grace (9) and Connor (7). I am incredibly lucky to be married to my best friend and love of my life Jason, who is the pillar of our family.

“Let food by thy medicine and let medicine be thy food”.  Hippocrates is thought to be the source of this quote, but Dr. William Li, world-renowned physician, scientist, and author, reiterated this concept during his keynote speech at the Cholangiocarcinoma Foundation’s Annual Conference on August 4, 2020.  Dr. Li authored a recently published book entitled,…