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Barbara,
Thank you for sharing this great news about your fundraiser! Events like yours are a critical source of funding for the work of the Foundation.
May we also advertise it on the Foundation social media accounts (Facebook and Twitter)? I will send you a private message to get more details.
Andrea
We are pleased to announce that the Cholangiocarcinoma Foundation’s July 2014 Campaign for the C.U.R.E. has raised $77,000!
The generous support of our donors will allow us to continue our mission to find a cure and improve the quality of life for those affected by cholangiocarcinoma through Collaboration, Understanding, Research and Education.
Many thanks to all of you that joined the Campaign! If you did not have a chance to donate in July, it’s not too late to help patients and accelerate research on this rare and deadly disease. http://cholangiocarcinoma.org/donate-online/
P.S. Did you know that many employers have matching gift programs for charitable contributions by their employees? Check with your employer and double the impact of your donation!
Over the past year, the Cholangiocarcinoma Foundation has made tremendous strides in its mission.
Collaboration~Understanding~Research~EDUCATION
To educate patients, caregivers and medical professionals we have
• Published 101 Questions and Answers about Biliary Cancer
• Launched a new, improved website with enhanced content
• Created the Biliary Emergency Information CardWith your support, we can continue educational efforts such as these. Please donate in these final days of the July 2014 Campaign for the C.U.R.E. to improve the lives of those suffering from cholangiocarcinoma. http://cholangiocarcinoma.org/get-involved/campaign-for-the-cure-landing/
Sara,
Jason and I are keeping Nicole and you all in our thoughts and hearts. Peace and comfort to you all.
Andrea
The Cholangiocarcinoma Foundation has worked tirelessly over the last 12 months to further its mission.
Collaboration~Understanding~RESEARCH~Education
To further fundamental research by leaders in the field, we have
• Funded the Mayo Clinic International Hepatobiliary Neoplasia Registry Biorepository
• Convened our Inaugural Stakeholder’s Meeting
• Launched the International Cholangiocarcinoma Patient Registry (ICPR)Your continued support helps us build on these research accomplishments. Please donate to the July 2014 Campaign for the C.U.R.E. and bring us closer to a cure for this disease.
http://cholangiocarcinoma.org/get-involved/campaign-for-the-cure-landing/Dear Discussion Board Members:
On a more personal note, please help extend the reach of our fundraising campaign. Consider sending an email message or Facebook post to your family and friends. Share a personal story about what the Foundation means to you. The Foundation cannot continue its mission without the financial resources that come from supporter donations, large or small.
Don’t forget the link to the online donation form: http://cholangiocarcinoma.org/get-involved/campaign-for-the-cure-landing/
With sincere appreciation,
Andrea
Since the Foundation’s inception in 2006, we have provided invaluable resources to foster understanding by patients and caregivers. Help us continue this support by giving to the July 2014 Campaign for the C.U.R.E. http://cholangiocarcinoma.org/get-involved/campaign-for-the-cure-landing/
Collaboration~UNDERSTANDING~Research~Education
Our online reach is tremendous. In 2013, our website received 260,000 visits from 137,000 unique visitors, averaging almost 5,000 visits to the site each week. We have at least 6,600 followers on Facebook. Our Patient Discussion Board has more than 3,100 registered members, greater than 86,000 posts and receives more than 108,000 unique page views daily. http://cholangiocarcinoma.org/punbb/
“The information that I found here helped me and my dad so much, but perhaps more
importantly was the support that I got from all of the members here helped me through this and continues to do so today.”– Gavin, UK
Help us support understanding by thousands of patients and caregivers, family members and friends with your gift to the July 2014 Campaign for the C.U.R.E.
The Cholangiocarcinoma Foundation is a 501(c)(3) non-profit organization, Federal Tax ID# 20-5776861.
Sara,
So sorry to hear this news. I hope hospice brings her and the family much comfort and support.
Andrea
Inevitably Sad,
See the bottom of this web page for information about sources of financial assistance: http://cholangiocarcinoma.org/for-patients/resources/
You are a great boyfriend to be seeking out help and support for your girlfriend’s Dad!
Andrea
The Cholangiocarcinoma Foundation (CCF) has been advancing collaborative research on this rare and deadly disease. Help us continue these collaborations by giving to the July 2014 Campaign for the C.U.R.E. http://cholangiocarcinoma.org/get-involved/campaign-for-the-cure-landing/
COLLABORATION~Understanding~Research~Education
In February 2014, the CCF held its first Stakeholder’s Meeting, attended by 56 physicians and researchers from 27 US and international cancer centers. http://cholangiocarcinoma.org/2014-cholangiocarcinoma-foundation-stakeholder-meeting-summary/
One of the nine collaborative working groups formed at the meeting has launched the Cholangiocarcinoma In The Young (CITY) research project. The purpose of the study is to identify cancer-causing genes in patients under 50 years old who have been diagnosed with cholangiocarcinoma or in families where multiple members have been affected by this rare disease. http://cholangiocarcinoma.org/professionals/action-alert-mayo-clinic-study/
The study will use blood and tissue samples stored in the Mayo Clinic International Hepatobiliary Neoplasia Registry and Biorepository, funded in part by research grants from the Foundation. http://cholangiocarcinoma.org/professionals/our-grants/
Help researchers collaborating to find the genetic basis for cholangiocarcinoma by joining the July 2014 Campaign for the C.U.R.E.
The Cholangiocarcinoma Foundation is a 501(c)(3) non-profit organization, Federal Tax ID# 20-5776861.
Lainy,
Another thing you could try is clearing your browser cache. On my Mac that means Reset Safari/Clear History. Rick might have already suggested this and/or could tell you how to do it on a PC.
More info from the Registry web page:
Who can participate?
Any person who has been diagnosed with Cholangiocarcinoma (current patient or survivor)
A family member (spouse, child, or sibling) who has permission to enter health information about a person who has been diagnosed with Cholangiocarcinoma (including patients who have passed away)
Andrea, Jason’s wife
