Bazel
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You’re really not too far off with this thought . . . my neighbor has 2 big dogs. I think they’re either Irish Setter or Reddish Golden Retrievers .. I can’t be sure because we NEVER see them .. they’re like stealth neighbors. I sort of think they’re the neighbors responsible for the occasional whiffs of marijuana that come our way so I kinda think their poor dogs are stoned all the time, they never bark. Anyhow .. the point of this is they (the neighbors) apparently do groom their dogs with some regularity in their backyard and we get big clumps of fur in our backyard – and pool
. Well this past spring my Aunt was visiting with her daughter and granddaughter and while in our back yard she found a Humming bird nest in one of our trees and it was a lovely golden red color as it was mostly made of the neighborKris,
I am, yet again, in awe of your strength and grace as you face this disease. To face the challenges this disease brings yet show the compassion you have for those who have lost a loved one is a testament to the woman you are.
I think it takes great courage to think about the concerns and fears you have for your Hans and even greater courage to share it with the cc family.
Bz
Heather,
One other topic to put in front of you as you begin this journey with your sister .. and that is wellness. Fighting any cancer is just that a fight and the wear and tear on the body can be significant. As you learn about treatments and options – also spend time learning about how to maintain wellness through the process. I think Duke offers some integrated health programs – I would look into those right away.
The things that come to mind right away though are diet, especially maintaining the gastro-intestinal tract and supporting liver health through supplements and even accupuncture.
As an aside my dad’s interventional radiologist was a strong believer in the mind-body healing realtionship and he suggested that dad read this book:
Bz
Ditto for my dad. They suspended “regular” chemo when he started the chemoembolization. Seems to me he went one round of regular chemo. Three rounds of embolization (got good shrinkage). Then started back on IV and oral chemo.
Bz
Part of my dad’s treatment included Chemoembolization. Because they use the femoral artery to reach the desired spot, for 6 hours after the procedure he had to lay in bed flat on his back. Going in to the first procedure dad had been quite active and generally felt good. The short version of this story is that dad ended up with a PE and was hosptialized much longer than planned.
So while not a direct correlation – I think it is a sound observation to state that dad probably was experiencing thinkened blood at that point.
Bz
Danielle,
I, too, went to the user list today to look for your most recent post. While my loss was diiferent (my dad) – your pain has felt tangible through your written words.
Please continue to come here, often. Sometimes the act of writing your feelings (alone) can bring healing. Your 5-mins of hope will grow with time and in the meantime know that there are those who pray for your strength and peace.
Bz
Stan,
I, too, come to this board because of my dad. I know exactly what you mean when you say sharing your experience makes you feel good. The lack of knoweldge and challenges associated with cc can make you feel as if you are on an island.
By now I am guessing that you have visited the different rooms available on this board. Know that the search feature really works on this site and if you feel like you need to know something you will likely find information in one of these rooms. And, of course, ask/post anything – someone here will likely know.
Take care,
Bz
Danielle,
The loss you are feeling cannot be put into words. And for many people around you knowing what to say, or how to help may be challenging at best. For those who have lost a loved one to this disease, we have each had to work (or are working) through our grief in very individual ways. You will find your way because we have seen your strength. If I can be so bold I will share two things with you and I have found beyond helpful:
Trevor,
I will second Marion’s comments. Tumor markers need to be viewed as a relative statistic. Alone they only tell a partial story. Your eligibility for transplant speaks volumes – all good! During this period focus on your wellness plan as much as your treatment plan.
Bz
Lady Bug,
I have read your posts and visited your family blog and thought I would share a “book” with you. My dad’s interventional radiologist was just super in the way he cared for my dad. He was so in tune with treating my dad, the person – and not just the disease.
At one of our early visits he suggested that dad read “Love, Medicine and Miracles: Lessons Learned about Self-Healing from a Surgeon’s Experience with Exceptional Patients” by Dr. Bernie Siegal. Like any self-help type book, it is up to each person to decide to what degree they can adopt the principals presented, but what is key to Dr. Siegel’s work, in this book and others, is the connection between the mind and body healing realtionship.
While this book is targeted at the patient – you may want to take a look and get a feel for whether or not this is something your husband may want to read.
Positive thoughts coming your way.
Bz
Liz,
A quick Google search will identify many suppliers of IP6. You will likely need to contact a few and see if they will ship to you. You will likely need to investigate the legality of shipping to Bahrain.
Bz
In addition to having provided care for my dad who passed away from cc, I also care for mom who suffers from dementia. With that said
Gavin,
I think you are experiencing a type of generation gap with your parents (as I did with my dad). My dad put his faith and trust in his doctor (who was quite knowledgeable about cc) and was hesitant to second guess or push him. Likewise my dad didn
Sorry you are walking this path. You mentioned in your post that your dad is on a waitlist for hospice, that surprises me. Are you in a smaller community with limited resources? We are in a metro area with multiple hospice organizations. Who is making the arrangements on behalf of your dad? I would start calling around to other providers if you have that option.
Bz
