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Five years is wonderful, Nancy. Did you ever dare think? You are really showing what perseverance can do! Keep it up! So happy to hear the news.
Kathy
Randi..it’s so true about looking for nuggets of hope. I am having my 6 month scan in two weeks so the old nerves are still there and active! The one other thing I can’t seem to shake is going to the dark place if I have an ache in my side or under my ribs. I have to do a lot of talking myself out being convinced that it has come back. But it is a small price to pay for being well and enjoying the rest of my life.
This is the greatest support anyone could hope for.
Happy New Year, Everyone!
Please DO give yourself a big WHOPEE..So glad to hear about the 5 year anniversary….Wonderful news to come back to!
x0KathySteve…what did you all decide to do? I chose not to do the chemo…had clear margins…jury was out about effectiveness. It was a hard decision. I am 4 years out! Hope you are all well. Let us know how you are doing.
KathySuch WONDERFUL news, Randi. Take a deep breath, rejoice and widen the distance! So happy for you.
KathySuch good news Julie (except that toe!). Keep
Up the good work. Hopefully the kidneys will behave too.
Best wishes,
KathyGavin and Melinda. Thank you!!xxoo the only good thing for me about CC was losing 35 pounds! A lifelong struggle. And sure enough it all came back. Now to lose it and not worry that I am losing because of CC. The mind does strange things. At least mine does
Gavin, Kris, Karla and Sara (Willow)…Thank you SO much! I am trying to convince myself that life is normal now
whatever normal is….Marion..thank you for letting me know about Dr. C. I truly miss him. He had such a connection with his patients that is unique and goes beyond surgical skills and knowledge. Thank you for encouraging me to write. I have already looked up his address. I am glad to hear he is happy in his new position in spite of my trying to convince him that Texas was nowhere near as good a place to live as Maryland (sorry Texans!). When you see him again, remind him of his fan club in Maryland who owe their lives to him.
Congratulations! Just like you, I come and go on this site, but part of what brings me back are the messages of hope and success. I always looked for those when I was feeling most down. I, too, just passed the 4 year mark (diagnosis 4 years this month, surgery Sept 27, 2012)..and hope that people reading these messages know that there is indeed hope. May you keep getting those great reports.
KathyKris. Thank you! It is so comforting to know there is a cheering section out there. I love coming back to this site and recognizing familiar names over the four years.
Lainy. You are right. Time to get those innards under control and show them who’s boss. I am sorry to ear of this continuing struggle and hope your August appointment gets you more relief.
Big hug,Kathy
Hello, Sharon,
I had surgery 4 years ago at Johns Hopkins for a Klatskin tumor and was given the choice of chemo or no chemo. At the time my doctor said there was not enough evidence that it was effective. I decided against it. It was nerve -wracking to face that decision. Four years later I am so far clear. People who have had the chemo-radiation have had recurrences. People who did not have been cancer free and vice versa. It is a puzzle. I think every person’s situation is different and their doctors suggest different things. It makes the decision that much harder. It is a situation where you really don’t ever know and that’s what makes it hard to live with. In the end you have to do what feels right for you based on your research and doctor’s opinions. Good luck and keep us posted.
PS several years ago a man posted that he was 16 years from
His cancer surgery and his doctor still didn’t consider him out of the woods! It’s learning to live with that knowledge that is hard!Marian..have you heard anything about “my favorite surgeon?” I do miss him! I don’t know if he does any more surgery for cholangiocarcinoma or Is too busy being head of surgery The girls are 14 and 15 so I do have to hang around a bit longer for them! They are great! The 15 year old just went on an international dance exchange to Europe for a
Month so we were groupies and followed her to Denmark then spent 3 more weeks, 2 with our son, his wife and three young children (who live in Ireland) in a chalet in the Swiss Alps. Broke the bank but it was heaven. Life is good.
I was so pleased to hear about the new study being done on younger patients.
