clarem
Forum Replies Created
-
Posts
-
Dear Nancy,
I am so sorry to hear that your brave husband has passed. I am thinking of you and your family. x
Hi Julie,
I’m sorry about this setback. I’m glad though they are on the case and can get the blood clotting sorted for you. X
Hello Wil,
Welcome to the forum. I’m sure others will be along shortly but congratulation on the surgery and on your recovery so far. We love to hear stories like this and I’m sure with time we can learn from your expertise too.
Hi Steve,
Sorry I’m coming to this thread late but as always, many have come to welcome and help you.
Marion has already mentioned AMMF – I cannot tell you how much support my family has received from Helen who set up the charity. My sister was 41 when she was diagnosed with Cholangiocarinoma – well one day and very suddenly ill the next. Surgery in relation to this disease is a great word to hear and if Oxford are a renowned liver centre then you are in good hands. The AMMF website has more information on specialist centres/specialists if you need it.
I also echo Angelmar’s comments about Maggies. It was a haven for all my family and again support, advice and place of calm to go to when we needed it
I would have been lost without the support of this family too. There is always, always someone to listen and answer.
I read everything I could to do with my sister and yes the stats do make for very hard reading. For me I needed to know head on what we were dealing with. However every person is different and there are some stories of hope and encouragement hear. Your fiancés, is already one of them.
Clare
Hi Kris,
You vent away – anytime.
I do hope Mark catches a break and that it eases up even if just a little for both of you. Good luck with the new job application. X
Dear Caroline,
It must be very hard to watch this when mom has decided on no more chemo.
I’m with Lainy, I’d have a doc review her care now. Not treating the cancer does not mean she does not need care. It may be that that your mom is at a stage where stenting wouldn’t be done but palliative care will help with her pain, nausea and whatever other symptoms she has.
Dear Crissie,
You are doing what your dad wants and needs but it must be so hard for you. I can only echo what the others have said. Dig deep – you can do this for your Dad. In the days before my sister died there were many things she needed to do – once she had gone through the last detail with the humanist minister it was like a calm came over her. Much love to you x
Hi Lola,
Good news on the surgery. I third what Lainy said about the pain. As a nurse, let them know as she doesn’t need to be in pain and there is much they can do to get on top of it. It is incredibly hard having to be away from your mum. I live 6 -7 hours away from my family and couldn’t always be with my sister when she was hospitalised.
It is difficult to not worry on the future but get through just now then hatch a plan with the docs and your mom.
X
Dear Kamisue,
I am so sorry that your mum has passed. The poem is just lovely – what a beautiful way recognise all she did as your mum.
xHi Ruali,
Welcome to the site although I am sorry that your mum has been diagnosed and you have had to come here. My understanding is that diagnosis can be challenging and that brushings can indeed come back negative when someone does indeed have CC. The stomach pain might be unrelated to the stent placement and there could be another cause for it which I would ask the docs about.
Hi Samira,
If bringing your Dad to the UK is one of the options, you might want to look at http://www.ammf.org.uk/ It is the UK based cholangiocarcinoma charity and there will be more information on UK trials. http://www.ammf.org.uk/helpful-links/
There is also information on UK based specialists. Apologies if this information has already been given to you.
