clarem
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Dear Percy,
I’m sorry that this disease has you feeling this way. For me, you are one of those on here that got me through my darkest days asI learnt so much from your posts. Others will continue to learn from you – your mark on this forum is to huge.
XDear Judith,
I am so very sorry that John has passed. There is little I can say that will make this better but you and John are in my thoughts.
Hi Carolyn,
Welcome to the board although I am sorry that you have had reason to come here. There are so many people on here that will share their stories and support you through your treatment.
They can take a swab of the discharge/pus coming from the drain sites. That will show what infection is present and what antibiotics will/won’t be effective against the infection.
Hi Jules, sorry can’t help on the sirt tax but it’s good to see you here and glad that your mum is symptom free.
Hi holly,
I don’t have any nuggets of wisdom but I’m just dropping in to say hello – good to see you hear:-). I think about you often x
Hi Carla,
Welcome to the forum although I am sorry that you have been diagnosed with this disease. I echo what others have said – get a second opinion at a specialist centre. Everyone here will help you as you start to understand this disease and support is always here.
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Hi Chrisna,
What a great friend you are. Now you are here you will get so much advice and support.
I too am shocked at the complications risk post surgery. Yes, complications are a risk with some surgeries carrying higher risks than others but I would get that verified and ask specifically what complications does the doc mean.
If it were me or my friend/family member, as Marion has suggested I would start with seeking a second opinion at a centre specialised in dealing with CC.
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Hi Nikki,
I really do relate to where you are. I was 39 when my sister was ill. I am a nurse and whilst that put me at an advantage I guess in having some medical knowledge, it just made the burden of responsibility harder. I too knew more about my sisters disease progression before anyone else – partly because I worked it out but partly because her doctor was very honest with me. Looking back I was the driver for some very hard decisions that I wish the doctors has taken the lead on. Be involved – absolutely – but let the doctors guide you and don’t be placed in situations making decisions you are uncomfortable with without medical support. Xx
Dear nancy,
You are still giving Frank what he needs and can be there with him to hold his hand, love and support him without exhausting yourself on physical care. I am a nurse and it is physically demanding on an isolated shift to provide care let alone for you as a caregiver to do that 24 hours a day.
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