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May 23, 2012 at 10:41 pm in reply to: My young 30 year old husband is battling cholangiocarcinoma #61161cmSpectator
Dear Lita-
I can only echo the words of support you have got already from our wonderful CC family. We are always here.
Chrissy McmSpectatorDear SandT mom-
I am so very very sorry for your loss and the terrible loss for your two boys. You are widowed too young. I have posted this book title many times, CS Lewis A Grief Observed which provided some comfort to me after my dear husband passed away aged 42, (I am 32).
Keep in touch- many of us here know the heavy burden of grief and we are always listening.Chrissy M
cmSpectatorWOW!!!! Amazing!
cmSpectatorWonderful Deb_ Well done you putting that together!
cmSpectatorBap23-
I am so very sorry. I don’t know what to say but don’t give up hope- you will have good times with your sister regardless of the information that you are given. All I can tell your for now is make good memories and remember to breathe slowly.
CMcmSpectatorWhat a bitter sweet day Deb_ your eldest turning 18years. Take care of yourself.
All my best,
CMcmSpectatorSpeak with doctors and bring with you the number of break through meds taken in the previous 24 hours- the regular medication should be adjusted to reflect this- and should be up-ed for the next day so he does not have break through pain as often.
Hope this makes sense- speak to pharmacist or medic. There should be no reason for excessive pain in this day with the excellent pain relief medication on the market. the key is to get on top of the pain almost before you need it- once it “breaks through” it is harder to get it under control.
cmSpectatorDear Elsie,
I am so sorry to hear of the lossof your dear husband. I wish your story had a different ending.
My thoughts are with you tonight.
Take good care of yourself.
ChrissycmSpectatorDeb-
I printed out loads, (and loads) of photos of my husband, our daughter and I for my little girl to cut and stick. She is much younger than your girl but she enjoyed making stick puppets and cutting out our faces and sticking the three of us on pieces of card.
It might be a nice thing to do if your daughter is into crafts. I also have plain pots we are going to paint together and plant seeds for “daddy flowers”.
It continues to allow her a way to say the word, “daddy” withou it being so directly related to him- if that makes any sense at all.I am very lonely here tonight too.
cmSpectatorDeb_
People are only as good as they are and you have to learn to direct them because i am sure many of them really want to help you but don’t know how.
This was posted on the merrywidow topic board recently. I’m sure they won’t mind me reproducing it (it didn’t mention copyright!)
HOW YOU CAN HELP ME
Please talk about my loved one, even though he is gone. It is more comforting to cry than to pretend that he never existed. I need to talk about him, and I need to do it over and over.
Be patient with my agitation. Nothing feels secure in my world. Get comfortable with my crying. Sadness hits me in waves, and I never know when my tears may flow. Just sit with me in silence and hold my hand.
Don’t abandon me with the excuse that you don’t want to upset me. You can’t catch my grief. My world is painful, and when you are too afraid to call me or visit or say anything, you isolate me at a time when I most need to be cared about. If you don’t know what to say, just come over, give me a hug or touch my arm, and gently say, “I’m sorry.” You can even say, “I just don’t know what to say, but I care, and want you to know that.”
Just because I look good does not mean that I feel good. Ask me how I feel only if you really have time to find out.
I am not strong. I’m just numb. When you tell me I am strong, I feel that you don’t see me.
I will not recover. This is not a cold or the flu. I’m not sick. I’m grieving and that’s different. My grieving may only begin 6 months after my loved one’s death. Don’t think that I will be over it in a year. For I am not only grieving his death, but also the person I was when I was with him, the life that we shared, the plans we had for watching our children grow, the places we will never get to go together, and the hopes and dreams that will never come true. My whole world has crumbled and I will never be the same.
I will not always be grieving as intensely, but I will never forget my loved one and rather than recover, I want to incorporate his life and love into the rest of my life. He is a part of me and always will be, and sometimes I will remember him with joy and other times with a tear. Both are okay.
I don’t have to accept the death. Yes, I have to understand that it has happened and it is real, but there are some things in life that are just not acceptable.
When you tell me what I should be doing, then I feel even more lost and alone. I feel badly enough that my loved one is dead, so please don’t make it worse by telling me I’m not doing this right.
Please don’t tell me I can find someone else or that I need to start dating again. I’m not ready. And maybe I don’t want to. And besides, what makes you think people are replaceable? They aren’t. Whoever comes after (if anyone) will always be someone different.
I don’t even understand what you mean when you say, “You’ve got to get on with your life.” My life is going on, I’ve been forced to take on many new responsibilities and roles. It may not look the way you think it should. This will take time and I will never be my old self again. So please, just love me as I am today, and know that with your love and support, the joy may slowly return to my life. But I will never forget and there will always be times that I cry.
I need to know that you care about me. I need to feel your touch, your hugs. I need you just to be with me, and I need to be with you. I need to know you believe in me and in my ability to get through my grief in my own way, and in my own time.
Please don’t say, “Call me if you need anything.” I’ll never call you because I have no idea what I need. Trying to figure out what you could do for me takes more energy than I have. So, in advance, let me give you some ideas:
(a) Bring food or a movie over to watch together.
(b) Send me a card on special holidays, his birthday, and the anniversary of his death, and be sure to mention his name. You can’t make me cry. The tears are here and I will love you for giving me the opportunity to shed them because someone cared enough about me to reach out on this difficult day.
(c) Ask me more than once to join you at a movie or lunch or dinner. I may so no at first or even for a while, but please don’t give up on me because somewhere down the line, I may be ready, and if you’ve given up then I really will be alone.
(d) Understand how difficult it is for me to be surrounded by couples, to walk into events alone, to go home alone, to feel out of place in the same situations where I used to feel so comfortable.
Please don’t judge me now – or think that I’m behaving strangely. Remember I’m grieving. I may even be in shock. I am afraid. I may feel deep rage. I may even feel guilty. But above all, I hurt. I’m experiencing a pain unlike any I’ve ever felt before and one that can’t be imagined by anyone who has not walked in my shoes.
Don’t worry if you think I’m getting better and then suddenly I seem to slip backward. Grief makes me behave this way at times. And please don’t tell me you know how I feel, or that it’s time for me to get on with my life. What I need now is time to grieve.
Most of all thank you for being my friend. Thank you for your patience. Thank you for caring. Thank you for helping, for understanding. Thank you for praying for me.
And remember in the days or years ahead, after your loss – when you need me as I have needed you – I will understand. And then I will come and be with you.
cmSpectatorDeb_,
I am so very sorry for your loss. I can feel the heaviness of grief in your post and I wish you didn’t have the physical pain of carrying this with you.I am a young widow too- I get a lot of support from the merrywidow website.
Please have a look for the CS Lewis book, A Grief Observed- it helped me in the early days. Winston’s Wish is the leading childhood bereavement charity in UK, (I know you are ROI)- you will find support there when you are ready.
For now all you can do is survive- my goodness that is very difficult.
Thinking of your family and especially you tonight,
CM
March 14, 2012 at 9:08 pm in reply to: My only child Patrick died after 4 months of this disease at 45 years. #58838cmSpectatorI am so heartbroken for you. I hope you find the support you need to carry on. There is a lovely reflection I’ll Lend You A Child by Edgar Guest. I have added this on the end.
Be kind to yourslef- the burden of grief is a heavy one.
C MI’ll Lend You A Child
by Edgar Guest
“I’ll lend you for a little time a child of mine,” He said.
For you to love – while he lives
And mourn for when he’s dead.It may be six or seven years
Or twenty-two or three,
But will you, till I call him back,
Take care or him for Me?He’ll bring his smiles to gladden you,
And should this stay be brief
You’ll have his lovely memories as solace for your grief.I cannot promise he will stay,
Since all from earth return,
But there are lessons taught down there
I want this child to learn.I’ve looked this world over
In search for teachers true,
And from the throngs that crowd
Life’s lanes, I have selected you.Now will you give him all your love,
Nor count the labor vain,
Nor hate Me when I come to call to
Take him back again?”I fancied that I heard then say,
“Dear Lord, Thy will be done,
For all the joy Thy child shall bring,The risk of grief we’ll run.
We’ll shelter him with tenderness,
We’ll love him while we may,
And for the happiness we’ve known
Forever grateful stay.But should the angels call for him
Much sooner than we’ve planned,
We’ll brave the bitter grief that come
And try to understand.”cmSpectatorI wish all the very best SPF- I cared for my husband at home in his final days which also came so very abruptly. My OH was only 42 and our little girl not quite 2years. These days are so very precious for you just take them as they come. I do not know if you believe in the Holy Spirit and I hope I am not speaking out of turn when I tell you that I got great strength from Holy Spirit in those final hours and days.
The priest at his funeral said, All lives are short just some are more short than others.
Do not waste your energy now worrying about grief- enjoy this time sharing memories with your Dad.
Chirssy
cmSpectatorHi SweetGreen-
You will find a wealth of experience on this website- post often and never hesitate to ask questions.
All my very best to you both,
ChrissycmSpectatorDear Shar,
I am sorry for your loss and I am sorry that your mother was widowed so young. Cancer does not descriminated for age or character.Do not regret the chemo- you made the right decison with the information you were given at the time.
All my best,
Chrissy. -
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