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Peggy- life is hard on you- I have no words – I hope you find support from the website, your faith and those around you.
I know it is hard but try to use this time for good memories- as diffficult as this is there are harder days ahead-
Enjoy the relief that comes from a stent- even go ouit for lunch if your mum feels up to it. Quaility is so important for all of us, more so when the person you love has CC. Listen to Lainy’s wise words.
As for coping there is no way predict this- you will only get the strength the moment that you need it.
Until then when thing get tough- breathe in for 7 seconds and out for 11 seconds. this tip has got me through a lot and continues to work when I have fall apart.
Keep in touch- there is always hope.Very normal Suzanne- try not to worry but I know that is hard. the count can pick up just as quick- just watch out for any bleeding or unexplained bruising- if either occurs conatct doctor.
Pgaska-
Please don’t put too much pressure on your mum to eat & fight- sometimes it is just good enough to take the days as they come. The pressure of eating can worry someone sick- literally.My husband could barely manage much more than ice lollies for days at a time- then he started on low dose steroids. It was a life line for us and David’s appetitie and then energy level dramamtically improved on low dose Dexamethasone.
Ironically his appetite and energy levels were better from April until a 2 days before he apssed away than it had been for the 4 months before that.Good luck- ask about steroids early- it gave us a family holiday – we had to get a wheel chair out and by the 4th day of Dex he played a half round of golf!
(I think St Pio was praying for us that week too though!)C
Try not to use too much energy with worrying Mary- the truth is, reality is never what you expect even when you have read other people’s stories time and time again- they are exactly that, other people’s stories.
You will have the strength- I know this only too well. You and Tom won’t get the strength until the very moment you need it.
I am not able to pray yet but I am willing you both on.Thanks Lainy- we would have been married 3 years this month- I am only 32year- just starting out together. You really understand- everything you have said is how I feel- You are right David is still here in my heart. I will hold on to that thought. Thank you for your kind words. You have lifted me today.
Not good news- We were told that the cancer in hte liver has grown in size & number. It is not likely that David will be suitable for further chemotherapy. They are giving him high dose dexamethasone in an attempt to salvage some liver function but we were told this is not likely.
Looks like I indeed spoke too soon.
I know many of you will know so well the numbness that we are filled with.
ChrissyThank you all so very much. We are heading off soon- I will let you know how we get on. Things seem brighter already.
Thank you again.Thanks for your messages- I called the doctor and he has prescribed steriods- he will start them in the morning and hopefully they will do the trick. Plus too they need to be taken with food.
He gave my husband a pep talk. He is exhausted and not able to eat today but hopefully tomorrow will be a better day.
On the upside his bloods looked positive on the last test about 3 weeks ago.
Doctor thought the trip would be fine but stesses that he needs to eat.My husband is a wonderful man but he is a worrier. He isn’t stressing me out it is just so very hard for him- we were married less than 2 years when CC came into our life May 2010- our daughter is not 2 yet. He is a traditional man who always wanted to protect and support me it is hard playing the patient role but so many of you know this already.
I will keep in touch-
I am praying for brighter days to come- maybe tomorrow. It is good to talk which is so very weird for me.C
My husband was not great on his week off through the 6 cycles of chemo, the blood counts can drop that week. He got really exhausted and needed a couple of transfusions but then he got better again. I was the worst for this but try not to panic every time Barry isn’t feeling well.
Good luck.
Thanks everyone for getting back to me. He describes the pain as a tightness.
It may be muscle wastage he gets tired easily and he was in hospital a lot during chemo with infetions. We have a 18 month daughter and playing with her doesn’t help… but as all parents know, he feels it is well worth the pain.He is getting another scan in Feb so we can ask more questions then. It is controlled with strong pain killers. He doesn’t like asking questions becase a lot of he time the answers are hard to hear.
I will hopefully be posting good news in Feb of no further progression.
Thanks again,
CDear All,
I know this is an old thread but my husband has been getting worsening back pain over the past months. He was diagnosed in May 2010 with ICC with mets in bone & liver. He had 6 cycles of chemo finishing in Nov 2010.
The scans so far have shown no progression since May 2010- next scan Feb 1st, (St Bridget’s Day).
I cannot understand where the pain is coming from- He had no pain before his diagnosis until the stent was internalised. Is this normal?May Kris rest in peace- she was a beautiful person.
CDear Cale,
I am so very sorry to hear your story. My husband was diagnosed with CC in May as a total shock. Unfortunately surgery is not an option as it has spread to both lobes of the liver. We have a wonderful little girl who just turned one. She is our inspiration. There is a thread about long term survivors that you should look up.
Remember that the chances of doing well are better than the chances of ever getting this. Very unlikely good thngs happen as often as not so good things.I know only too well the fear and desperation in your wife’s prayers and thoughts and my prayers are with you too.
Take care.
Caroline
