darla

Dear Gail,

It sounds like you are slowly beginning to get things in order. I’m glad you had a lot of help and support as it is so needed in the beginning as we seem to be in a fog of unreality. The camp for the kids sounds like a good arrangement and your sons plans to be a counselor in the future are admirable. You are definitely doing a good job under these difficult circumstances.

Yes, only those of us who have been in your shoes and dealt with this rare cancer can truly understand. The effects it has on us never really go away, but it does get better with time.

Just keep on doing the best that you can and take things one day at a time.

Take care and know that we are all here to help and support you in any way that we can. We understand what you are going through and truly do care.

Lots of Love & Hugs,
Darla

Out of the mouths of babes. That tugs at my heart. Julie, I am hoping that it will be a long time too. Children do seem to be able to sense these things, even when they have not been told.

Short story. Before Jim was even diagnosed we were at a graduation party for our niece. They have a neighbor who has a young boy who is severely both mentally and physically challenged.. That darling little boy pulled himself up next to Jim, leaned into him and kept patting his leg as if to comfort him. Although at the time we had no idea that he was even sick. His symptoms started a few weeks later. He died 2 months after that. I still can vividly see that little guy with Jim. It was like he was drawn to him and was meant to be there for him.

Enjoy those little ones and live your life one day at a time. Take care dear lady and have fun furniture shopping.

Hugs,
Darla

Dear Jonas,

I am so sorry for your loss. It sounds as if Myrna was a wonderful person and meant a whole lot to you. I am glad she was surrounded by the love and support of family and friends. My thoughts are with you and all who knew and loved her at this sad and trying time.

Hugs,
Darla

Hi Jonas,

Welcome to this awesome group that no one wants to join but are so very glad the can. I’m sorry you needed to find us, but you will be glad you did as the support and information you will get is amazing. Unless you have been confronted with this awful disease, others just can not truly relate or understand. I am so sorry your sister has been cursed with this disease and that you and the rest of the family also have to deal with the reality of it all.

My husband died almost 9 years ago after only 2 months of illness and only 10 days after being definitively diagnosed, so I really can’t be of much help as far as suggestions or treatments as we didn’t really have enough time to even deal with any of that. I do know that things have changed a lot since then and there is much more knowledge and more options then there were back then.

It sounds like you have already gotten more than one opinion, but if not, 2nd or 3rd opinions can be helpful. Try to be cautiously optimistic as one never knows how things will go. No matter what direction her treatment goes in, the most important thing to me has always been that the patient be kept as comfortable and pain free as possible.

I’m hoping others will chime in soon with some suggestions and advice as to treatments etc.

Try to take some time out for yourself and your family when you can. My thoughts are with you all. Know that you have a lot of people here willing to help and support you in any way that we can.

Hugs,
Darla

Dear Gail,

Know that I am thinking of you and your sweet children this morning. I am so sorry for your loss. None of this is easy, but you are a strong lady. In time the pain and sadness will ease and you will be able to remember the good times before this terrible disease entered your lives. May those memories bring you comfort and peace.

Love & Hugs,
Darla

Theo,

What great news. So happy to hear this. We need more of this positive news here. Take care and keep in touch to let us know how she is doing.

Hugs,
Darla

Dear Ali,

I am so sorry for your loss. You have my deepest sympathy. Thank you for sharing her picture. She was a beautiful woman. You were a loving and supportive son and did all you could for her. Keep her in your heart and take some comfort in remembering all the good times before CC. There are no words to take away the pain and sorrow you are feeling, but know that we are here to help and support you in any way that we can.

Hugs,
Darla

Dear Gail,

I’m so sorry things have gotten to this point. I agree with Catherine. There is no right or wrong to this. Just take a deep breath and do what you feel is best for all of you. Take care and know that you and your family are in my thoughts as you travel this road that none of us wanted or expected to ever be on. You can do this. We are all behind you and ready to support you in any way that we can.

Hugs,
Darla