devoncat

Hi Matilda,
Welcome to the board. Our Gavin is a great resource on PDT. I am curious as to why you are looking for another treatment when chemo seems to be working for your father?

I think I probably have a different perspective than many here on going to Britain for treatment. I live in a foreign country with the most wonderful caring husband and I have some good friends. However, I would never chose to be away from my home during this time. I dont know how much longer I have to live and considereing cc is usually not curable, I would much rather be home. I ask a simple question…what are you hoping to accomplish? Is more time worth it if it is spent alone in a foreign country without the support of other family members and the joy of being around your friends?

I am not trying to be negative, but I know that I would rather be at home in the US instead of in Sweden right now. Depression is a magor side effect of having cancer and moving to a new country during this time could cause this.

Best of luck.
Kris

Betsy,
Let us know what happens. Hearing others experiences means we can offer more insight to the next person. Good luck on mending (without major surgery)

Kris

This is very coonfusing to be sure. I just talked to my surgeon today and asked about RFA if they cant remove the tumor. He was very negative about it and suggested SIRT spheres instead. Basically he said RFA wasnt so good with this type of cancer, yet I too have read the studies that say it is. perhaps each drs ideas are based more on their eye-witnesses than in studies that are usually small.

Kris

Hi Thomas,
Good luck on your journey.

Kris

Linda,
I havent heard of it before, but that doesnt mean it isnt what happened. That is probably something that is so recent and cc being so rare that it will take awhile for any connects to be made if they are there. Good that you pointed it out to your doctors. If there is a connection, it might make him look out for it.

Kris

Great news Jeff. How is Marc doing liquid wise? I ran all types of fevers and had severe pain when I got dehydrated from chemo. If Marc is having problems with his stools or is not drinking enough, perhaps this could be the problem? I know it sounds funny, but I know this is the case for me.

Kris

Slester,
Are you a teacher? My sister is and she is learning all about how school can run without her. It was hard for her at first, but now she is learning to put herself first. She actually asked me if I wanted her to come for my surgery. Although I said no, this was a big step for her. So many teachers need to learn that they are as important as their students. So hats off to you for taking care of yourself.

My blood counts drop on this chemo sometimes, not always. This time they really got wacky and despite I havent had chemo in 4 weeks, my bloodwork is still on the wonky side. I guess that just shows that chemo keeps working for weeks after it is infused.

Let us know how it goes.

Kris