gavin
Forum Replies Created
-
Posts
-
Hi Bev,
Welcome to the site, although I am sorry that you have to be here and sorry as well to hear what your husband is going through with all of this. I too am from the UK, up here in Dundee Scotland. Here is a link from Macmillan regarding constipation that I hope will be of use and interest to your husband.
As to this and everything else and also the nausea, I would definitely mention that to Prof Valle when you both meet with him next week as there are a wide range of meds that can be tried and also combinations of meds that you can try to help with the nausea. My dad suffered greatly with nausea when he had his CC and tried a load of them.
I am glad that your husband is under the care of Prof Valle’s team and that he is meeting with him next week. Your husband is in very very good hands. Please let us know how things go and my fingers are crossed for you both.
My best wishes to you,
Gavin
Some more links on fatigue and cancer from the UK.
http://www.cancerresearchuk.org/about-cancer/coping-with-cancer/coping-physically/fatigue/
http://www.macmillan.org.uk/information-and-support/coping/side-effects-and-symptoms/tiredness
Gavin
Hi All,
Please take a look at the Q&A session from this weeks 2017 Annual Conference Patient/Caregiver Q&A.
The link is here – http://cholangiocarcinoma.org/misc/2017-cholangiocarcinoma-foundation-annual-conference/
Click on the “Listen Now” link in the blue bit on the left hand side of the above page.
Thank you all!
Gavin
Hi Joviony,
Welcome to the site. I did some googling for you and came up with these links for you.
https://www.ncbi.nlm.nih.gov/pubmed/17895634
https://www.ncbi.nlm.nih.gov/pubmed/19571787
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2704234/
The last link seems to contain quite a bit of info there. Have you tried to search the forum here for more info? If not, you can go to the search forum function at the top of the page and that will throw up any posts here on the site about Beta Glucans if there are any.
Hope some of that is useful to you and my best wishes to you as well.
Gavin
Thanks for that Positivity. I hope that some of the links etc that I post are of use to people, even of they do go over my head much of the time! Hopefully you and your mum will get the answer that you need and also the right treatment as well.
If any of the links you see are are of interest to you and you want to speak with the onc or doctor about them then you could just print them off and show them to the onc rather than trying to remember what they say etc.
Marion, I think it was Andie’s dad that had the plastic stent inserted into the metal one one his metal stent started to clog. Thanks for bring that up as I had forgotten about that option.
Hugs to all,
Gavin
Hi Joe,
Keeping my fingers crossed for you and your mum here and of course, sending you both my best wishes as well.
Gavin
Hi there,
My dad had a metal stent inserted straight after his diagnosis of inoperable CC and that went along with the PDT as his treatment. He had the choice of PDT or chemo and he chose the PDT as he believed that it would give him a better quality of life for the time that he had left. His CC was deemed inoperable at diagnosis so that is why he was given the metal over the plastic stent.
The stent worked well for him in clearing up the jaundice and with that he started to feel a lot better. But this was always a paliative measure for him. In case you do not know, plastic stents last on average around 3 months or so before clogging can start to become and issue and metal ones around a year or so before clogging can start. Hopefully that will be of some use to you.
My best wishes to you and your mum,
Gavin
Hopefully next year Lainy. But, it seems that I say that every year! Honestly am not dodging getting over there but you all know how things are here for me.
A ton of videos on the youtube channel as well. I like this one from last years conference a lot. It has loads of you all in it too!
https://www.youtube.com/watch?v=fe-kD2VQ2Ac
Hugs to all,
Gavin
Dear Lynn,
I am so very sorry indeed to hear of the passing of your husband Gregg. Please accept my sincere condolences. I so wish that at times like this there was something that I could say that would help ease the pain that you feel right now. Please know that we are all here for you and my thoughts are with you and your family right now.
Hugs,
Gavin