gavin

Hi Shanna,

Welcome to the site. Sorry that you had to find us all here and I am sorry also to hear about your mum. We have a clinical trial part of the website that may be of interest and use to you about all I think the trials that are available for CC patients. Perhaps doing some searching through will give you some idea of what is out there for trials. It can be found here –

http://cholangiocarcinoma.org/professionals/research/clinical-trials/

Also, please have a talk with your mums doctors, onc and medical team about possible trials and see what they say about things. I hope some of the info here on the site will be useful to you and please keep on coming back here as well. We are all here for you. Good luck with looking for trials and everything and please keep us updated on everything.

My best wishes to you and your mum,

Gavin

Someone is up late!!

Thanks for that Marion, this is brilliant news indeed! Away to go read about this and hopefully this will be going out on the FB page and twitter as well. Thanks!

Hugs,

Gavin

Hi Chinese Chick,

Yes, the box is right! For anyone who wants to try supplements of any type like this I would strongly recommend that they consult with their docs or onc prior to starting anything at all. I am not saying that this tea is bad, wrong or harmful or anything like that at all, but just that you should take advice from medical professionals before trying it.

For questions like this I always like to go to a reputable source for info on a product as I am sure you are aware that the internet contains a billion claims about a zillion products! I guess you know what I mean though!!

Memorial Sloan Kettering Cancer Center has this on Dandelion Tea –

https://www.mskcc.org/cancer-care/integrative-medicine/herbs/dandelion

Have you tried searching on the nutrition board for more info on this one? I hope that the above link is of use to you.

My best wishes to you,

Gavin

Dear Sally,

I am so very sorry to hear this news about your sister. Please know that i am keeping you both in my close thoughts and know as well that we are here for you as well.

Hugs,

Gavin

No probs Marion. Will try and find a free link that I can post here.

Hugs back at you,

Gavin

Great news Catherine, 3 years, excellent!! Now onto the next 3 years and much more too!!!

Hugs,

Gavin

Hi Bob,

Welcome to the site. Sorry that you had to find us all here and sorry too to hear what you are going through with everything. I just wanted to join in with the others in welcoming you here to the site and give you a few links that may be of use and interest to you.

As for the chemo combo of Gem/Cis, as Catherine says that is the first line standard of chemo that many start with and many of our members here have gone through that. And yes, we have had success stories from members or their loved ones that have had that to shrink chemo and then lead to surgery so please do not give up hope. There is a ton of info on Gem/Cis, much of which can be found here on the chemo board –

http://www.cholangiocarcinoma.org/punbb/viewforum.php?id=16

Fatigue with this cancer is very common and my dad suffered from that a lot. Here is a link that will be of interest to you on this –

http://www.macmillan.org.uk/information-and-support/coping/side-effects-and-symptoms/tiredness

http://www.cancerresearchuk.org/about-cancer/coping-with-cancer/coping-physically/fatigue/what-is-cancer-fatigue

As for the T Cell post, I think you mean this one from Melinda. If so, more info can be found here –

http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=11199

I hope that some of that is useful to you and please keep on coming back here and let us know how things go. We are here for you.

My best wishes to you,

Gavin