gavin
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Thanks for pointing out the location details etc Marion in all of the trial links. I know that will be of help to those who are just browsing through them. I’ll start putting in more details from now on with the link, where the trial is happening etc. I let Kathi know about this one eralier.
Hugs,
Gavin
Thanks for that Julie and real glad to hear you say that the pain meds are working a bit better for you. Hope that they do the job for you big time! Loads more positive thoughts coming your way and hugs as well.
Hugs,
Gavin
This is great news Mac, thanks for sharing it with us all. Hope as well that your dad gets more good news about everything and please let us know how things go. Glad to be of help and my fingers are crossed for your dad.
Best wishes,
Gavin
Thanks for that Hazel, great news. Please keep us posted on how things go.
My best to you and your mum,
Gavin
Thanks for the update on your sister Sally and a ton of positive thoughts are coming her way for everything. Keeping everything crossed for her and for the CT results as well.
And yep for sure lets hope that 2016 is the year for the cure!
Hugs,
Gavin
Sorry to hear this news Julie but thanks loads for posting this info as I know that it will be of use to many people over time.
I so hope that when you go back to Mayo on the 7th that they are able to do something for this immediately to help solve the pain issue. Keeping my fingers crossed for you on this and everything else as well and sending loads of positive thoughts as well.
Hugs,
Gavin
Hi Hazel,
Welcome to the site. Sorry that I missed your post. Sorry that you had to find us as well but glad that you have joined as you are so in the best place for support and help and you and your daughter will get a load of that here from everyone.
I too am from the UK, up here in Dundee and my dad was diagnosed and treated here in Dundee with PDT back in 2008. You said that your daughter sought a second opinion from the Christie in manchester, was it Prof Valle that she saw? If so then he is very very experienced in dealing with CC and indeed sits on our medical advisory board here at the CCF. He has also treated quite a few of the UK members here on the site.
Did you hear back from Helen again? I agree with what Marion says about Helen, she is a star!
Please keep on coming back here Hazel and keep us updated with everything. We are here for you and your daughter and we care.
My best wishes to you both,
Gavin
Dear Janet,
I am so very sorry indeed to hear of the passing of your beloved Jim. Please accept my sincere condolences. Please know that my thoughts are with you and your family right now.
Hugs,
Gavin
Hi Jack,
Great to hear from you again and thanks for the update on everything. Hope that you were able to have a great Christmas and it does sound like a busy one you had! Great stuff! Hmmm, top of the table indeed. Quite a season this is turning out to be. Leicester, who would have thought of that!
All the best,
Gavin
Hi Mac,
That sounds like a good plan and I do like how you are being proactive in all of this. The more treatment options you can find the better for your dad. Helen will be a great help to you with recommendations should your dad wish to seek treatment here in the UK somewhere.
Slaying the beat, yep, right up for that plan! Please let us know how everything goes.
My best to you and your dad,
Gavin
Mac,
Helen at AMMF will be of great help to you in seeking any treatment options etc that are specifically in the UK. And without wanting to put words in her mouth or anything like that I am sure that she would be very keen to help you if she can.
Gavin
Thanks for all of these posts Marion, you have been busy!
Very useful for everyone these posts from you are, thanks!
Hugs,
Gavin
PS-Meant these last few on here, all of your posts are useful and help all of us!!