gavin

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  • November 18, 2014 at 6:55 pm in reply to: Our Kris. #48036
    gavin
    Moderator

    Hi Hans,

    I so agree with the others that Kris will never be forgotten and I too think of her often. Thanks for checking in with us and I am glad to hear that you are moving on with your life. I so hope that you will be happy and enjoy everything that life gives you.

    My best wishes to you Hans,

    Gavin

    November 10, 2014 at 10:16 pm in reply to: 4 year scan not too good. Please help #85394
    gavin
    Moderator

    Hi Angela,

    Just a quickie to say re Maggies here in the UK, so AGREEE with that!!! They do excellent work and for our UK members, go have a look and see what they can do to help with everything.

    https://www.maggiescentres.org/

    Hope that you will get the funding for your therapy Angela. If NHS is funding it for Aberdeen and Glasgow then Lothian should do so as well even if you to have to go to Glasgow to have it. Looking forward to catching up with you and Juan again in Glasgow on the 23rd of Jan hopefully at the next meeting of SHBPN.

    Hugs,

    Gavin

    November 10, 2014 at 6:40 pm in reply to: Information about the Mayo Clinic #85412
    gavin
    Moderator

    Thanks for that Duke, sure it will be of help to folk.

    Much appreciated.

    Gavin

    November 9, 2014 at 8:23 pm in reply to: Blood Lab Results…post chemo #85401
    gavin
    Moderator

    Great news Julie, love hearing this and thanks for sharing! And starting to exercise again, love hearing that too! Life does indeed look pretty good right now as you say doesn’t it!

    Hugs,

    Gavin

    November 9, 2014 at 6:58 pm in reply to: 4 year scan not too good. Please help #85387
    gavin
    Moderator

    Angela,

    I have just replied to your email, things are hectic here at my end. Marion is right about what she says re thing getting quiet here at the weekend and also about viewings from unregistered people. We have tons of lurkers who read the site but have not joined and so can’t post anything.

    Keep coming back Angela and stay in touch as well. You know you can email me anytime at all.

    My best to you and Juan,

    Gavin

    November 8, 2014 at 1:22 pm in reply to: The upcoming 2015 Cholangiocarcinoma Foundation Conference #85373
    gavin
    Moderator

    Thanks for that Marion, very exciting indeed! Looking forward to hearing all about this and all of what will be ahppening in Feb next year as well. I always like February! Big line up at the think tank and i hope that you get your presentation ready for your talk on day 2!

    Hugs,

    Gavin

    PS – Hope there will be lots of pics this year of everyone! :)

    November 8, 2014 at 1:11 pm in reply to: Woman’s genes give clue for unique liver cancer treatment #85362
    gavin
    Moderator

    http://www.sciencedaily.com/releases/2014/11/141106113219.htm?utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+sciencedaily+%28Latest+Science+News+–+ScienceDaily%29

    November 7, 2014 at 8:40 pm in reply to: New to site #85345
    gavin
    Moderator

    Hi NolaPat,

    Welcome to the site. Sorry that you had to find us here and I am sorry to hear about your husband and what he is experiencing right now. Glad that you have joined us all here as you’re in the right place for support and help and know that you will get loads from everyone here.

    I missed your post when you first posted, my apologies for that. My dad too had PDT for his CC with a metal stent placed back in 2008 after his diagnosis and I wrote a bit about that here on the site. Here are a few links to my postings if you want to read them.

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1940

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1959

    I so hope that Neil’s med team can get to grips with the pain, no one should have to suffer through pain and pain can be controlled. How long ago did Neil have the PDT? My dad had the after effects of it for some time re sensitivity to light and all of that, I’m sure that you both were warned about that.

    Hope that the next scans show some good news for you both and please let us know how they go. We are all here for you and we care.

    My best wishes to you and Neil,

    Gavin

    November 7, 2014 at 7:12 pm in reply to: Could Use Some Insight. #85361
    gavin
    Moderator

    Hi Joe,

    Welcome to the site. Sorry that you had to find us all here and I’m sorry to hear about your mum. But glad that you have joined in with us as you are so in the best place for support and help and you’ll get loads of each from everyone here. Not much that I can add to what the others have already said to you but just wanted to say hi and welcome you here.

    I know that your head is spinning right now with everything that is going on at the moment, that is common and I went through that after my dad was diagnosed in 2008, we all go through that. But you have so done the right thing in coming here and seeking answers and the better informed you are the better all round you will be when it comes to helping your mum.

    Please keep coming back and let us know how everything goes. We are here for you and we care.

    My best wishes to you and your mum,

    Gavin

    November 7, 2014 at 7:07 pm in reply to: Back on track #85368
    gavin
    Moderator

    Thanks for the update Duke. Hope that you manage to find your way through all of the info that you got and hope that you get onto the trial if that’s what you decide to do. Good luck with everything and I know that if anyone can find their way through a maze of info it is you!

    My best to you,

    Gavin

    November 6, 2014 at 8:07 pm in reply to: New member Wendy from Holland #85255
    gavin
    Moderator

    Hi Wendy,

    Welcome to the site. Sorry that you had to find us all here but glad that you’ve joined as you’re in the best place for support and help and you will get loads of both from us all. Thanks as well for sharing everything that has been going on with you, you’ve certainly been through a ton of stuff haven’t you!

    Hoping that the 5FU works as it should and please let us know how that goes for you. Loads of positive thoughts are coming your way for that. So glad that moontje has replied to you as well.

    Glad to hear you say that you are feeling good right now and are ready to keep on fighting this. I wish you every success in finding further treatments or trials to do. I hope you will keep coming back here and please know that we are here for you always.

    My best wishes to you,

    Gavin

    November 6, 2014 at 7:11 pm in reply to: NCRI conference summary #85353
    gavin
    Moderator

    Day 4 –

    http://scienceblog.cancerresearchuk.org/2014/11/06/ncri-conference-summary-day-4/

    November 5, 2014 at 6:23 pm in reply to: NCRI conference summary #85352
    gavin
    Moderator

    Day 3 –

    http://scienceblog.cancerresearchuk.org/2014/11/05/ncri-conference-summary-day-3/

    November 4, 2014 at 1:02 pm in reply to: NCRI conference summary #85351
    gavin
    Moderator

    Day 2 highlights –

    http://scienceblog.cancerresearchuk.org/2014/11/04/ncri-conference-summary-day-2/

    November 4, 2014 at 12:57 pm in reply to: The Early Detection Research Network- National Cancer Insitute #85354
    gavin
    Moderator

    Thanks for that Marion.

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