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Hi Marion,
After the broken off surgery in May 2007 Peter got a metal stent. Later, in September, a second one. The specialist told us that chemo doesnot help in this type of cancer. Peter was offered one, but since it would deteriorate his quality of life and offered in the best case “may be a little help to fight metastasis”, Peter refused chemo.
These fever attacks appear about every 1,5 – 2 months. It seems to have to do with bacteria-growth in the bile fluids and an antibiotics cure of a week up till now solves the problem.
In the mean time, blood values keep going up a little with every 1-monthly controll and last month we heard there are little spots on the lungs.
Peter keeps doing and living as he allways did: working, doing sports and looks as if nothing is wrong. And then suddenly there is an attack like this.
As I understand you went through this process as a wife, you can understand how worried I am. I so much hope to keep my wonderful husband a while longer, but when these attacks come I am scared to death. Especially since he now says he has a slight but constant pain on the right side of his body.
Tomorrow we will have a talk with the specialist and we will see what comes out of this.
Thanks for reacting. Since Peter doesnot like to talk about his illness too much (he feels it is dragging him into a downward spiral), I sometimes feel so alone in my fears. And then this forum and your reactions is a huge comfort.
Iris.Hi Dutch, my husband Peter was diagnosed April 2007 and given 2-3 months after surgery failed. He is still with me. He works, goes the 9 km’s to his work on his bike, plays squash and runs. His spirit is high and happy, since every new day seems a gift. Don’t give up hope, maybe your mother has more time than you think now.
Let her eat small, healthy bites: small fruit and also in small but many portions the things she does like. Loss weight pulls her down.
Wish you and your family strength,
Iris.Hi Debrah, my thoughts are with you tomorrow and I’ll be talking to you. I know how tough it is allways to be the “strong one”, but I also know you can do it one more time. I keep all my limbs crossed that the outcome will be good!
Iris.May be they’re sold out and waiting for the next edition. You can also order it via http://www.nl.bol.com which is a Dutch internet bookstore.
And if that doesnot work, I could order it here and send it to you.
Iris.Hi Rank,
We got it in the Netherlands and it even is translated in Dutch. The first edition came out in 2007, the second in 2008. When you google “Anticancer Servan-Schreiber” you’ll get a number of hits. When you really cannot lay your hands on the book and want to know more about the diet, I’ll be more than willing to mail more info.
Iris.Hello Larry,
I am very sorry to hear that, after all you went through, it look likes the cancer is returning. One allways hopes that there will be a person who survives, but this cancer is a tough one to beat.I do have a little comfort, I hope. My husband Peter was diagnosed last year May, stage IV, with a life-prediction of 2-3 months. It is more than a year later now, and he is still doing very well. Sometimes a high fever attack, and last month we heard that the lungs probably are infected.
We went, however, on a very healthy diet. The idea comes from the book “Anticancer”, written by Dr. David Servan Schreiber. He has had brain tumors twice and started investigating the Western eating pattern very deeply. Peter (and I) are following a lot of his advices on eating now since about a month. Peter is feeling extremely well and he looks that way and the nasty little, persistent cough he had, disappeared.
I am not saying that Peter, or anyone with cc can be cured by this diet, but we do have the hope that with this healthy way of eating, he will live longer with a good quality of life. The good thing is, it has nothing to do with adding all kinds of supplements, just eat the good stuff as described in the book. The only thing Peter is taking as a supplement (advice from his specialist) is Omega-3.
Try to get your hands on this book. It has provided us with the hope that Peter can go on for quite a while in a high quality living.
I hope you will keep us informed about how you are doing.Regards, Iris
For me personally, it is very good to be on this forum. I have a tremendous admiration for all patients and caregivers who come here and share knowledge and feelings. It helps to keep me strong and be optimistic and a support for Peter, who by the way seems to need less support than I do. His is strong by nature.
I also would like to give a big hug to the moderators. There are a lot I feel warmly towards, but Jeff …. you really stole Peter and my hearts.
Thanks everyone
Iris.Hi Irene,
It is not so unusual to have no symptoms. In fact, the lower abdomen pain that you had, could be your survival. It seems to me that you are spotted in an earlier stage than normal and that makes the chance of survival much bigger.
Of course it is never easy to undergo major surgery, but if it gives you a chance to live longer, it’s worth it.
I wish you good luck and all the best. Go for it!
I’ll be thinking of you and hope to read good news from you in the future.
Iris.Hi Sophie,
That is wonderful news. I’ll keep all my fingers crossed that everything will turn out well. Your spirit sounds good to me, so you’re going to make it!
Good luck and wake up well,
Iris.Hi Jay,
I very much hope the chemo will slow things down. Peter and I just came back from 5 days Schiermonnikoog. Peter is tanned and looks great. He is still so much enjoying life that my best wish is that they will have at least that for the time being.
I like to keep hearing from you. Kind regards,
Iris.Hello SG,
I am so sorry for the reason you had to come to this board. CC is a very nasty cancer and according to the specialists in the Netherlands, even after a “successfull” operation it allways returns within 2-5 years. The fact that is spreading so much is not good. There are people who respond to chemo, but most don’t. It seems the most successfull when the patient tries to live on and be active as he used to. And taking extra vitamines and omega 3 helps slowing down the growth. Happiness is another thing that helps, a happy person has more resistance. Now I hear you thinking how can one with this cancer be happy?? Believe me, it’s possible. My husband was diagnosed last year and surgery was broken off because the cancer went to far into the liver. He went back to work, plays squash, runs and bikes and he is really enjoying every day. Instead of the 2-3 months lifeprediction he got, we are more than a year further now and we had a wonderful year, cause we see it as a present. And yes, by him too the cancer is spreading. But because he literally resists to lay down, but goes on doing what he did, there is no energy loss. And also no weight loss. He doesnot like eating anything as he used to, but what he likes he eats a little more of.
I wish you and your family strength and the will to fight. I sincerely hope you will have more happy time together.
Thinking of you,
Iris.Hi Jay,
My name is Iris and I’m also from the Netherlands. Nice meeting you, however it would have been nicer meeting outside this board.
My husband Peter was diagnosed Klatskin stage IV last year May. Surgery was tried, but broken off. His life expectancy was 2-3 months. We are more than a year further now and he is still doing wonderfully well. Though last week we heard that now his lungs are starting to show spots.
I hope your friend can do the same as we do: and that is enjoy every good day. Enjoy each other, enjoy the weekends when our boys come home. Next week we go for a midweek to Schiermonnikoog.
I wish you and your friend and his family strength and hope and a lot of good days to come.
Iris.Alice and John, my heart is with you. Peter and I are also married 33 years and now his lungs are starting to be infected I doubt there will come much more time. Peter says he will fight till he can’t no more and he is not afraid to die. My heart breaks that he will never see his possible grandchildren. Our 2 sons are adults, but there is no wedding yet in the near future.
I try to hold on to the fact that we at least had those 33 beautiful years and the boys that we are so proud of and happy with. But I can fully understand you wanting to go on with John, as I would with my loved one.
My prayers are with you both,
Iris.Hello Sophie,
Waiting is the most difficult thing in the world. But the good thing is: you also have hope. The fact they want to try and do surgery means you have a fighting chance. Hang in there, fight for all you’re worth and you will make it!
All my thoughts go out to you. Keep the spirit up girl.
Iris.
