jathy1125
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Glad to hear things are better. I am a cc survivor due to 2 liver transplants. Any treatment to save our life will have negative effects, but we must focus on the “save”. The last 2 years have been full of bumps but I am AlIVE and cancer free. Diabetes can be a temporary conditon because of transplant and in my case wasn’t. (one less thing to deal with). I will be immuned supressed the rest of my life and take anti-rejection medicine, but no big deal I am ALIVE.
Keep all your options open and keep posting because there is so much “HOPE” here!
Lots of prayers-CathyGO GREEN RECYLE YOUR ORGANS-YOU CAN SAVE A LIFE!!
Ahna, Sorry you had to find this site, but it is a well of information. Jim is right about a major city. I am a cc survivor. I was diagnosed on July 31, 2008 with inoperable tumor. It was in my bile duct and involved my portal vein. I was immediately put in a clinical trial. My trial involve a total liver transplant. I have had the most amazing journey the last 2 1/2 years. I am alive because of (God of course) the most amazing doctor, Dr. William Chapman at Barnes-Jewish Hospital in St. Louis, MO. This doctor saved my life twice, I had 2 liver transplants. Get more opinions and you use this site for guidance because we have all walked in your shoes.
You can read my story at thetelegraph.com by putting in christmas miracle.
Lots of prayers-CathyGO GREEN RECYCLE YOUR ORGANS-YOU CAN SAVE A LIFE!!
I am curios if it goes the other way also, if you have cc will you have a greater chance for colon cancer? Cathy
Dear Brian- Welcome and like we all say here sorry you had to find us. I am a cc
survivor due to a liver transplant.I have the most amazing story to share. I was diagnosed July 31, 2008 and now 2 years later I am well and alive!! I was perfectly fine with my only sympton being incredibely itchy. By the grace of God I was put in the care of the most wonderful doctors at Barnes-Jewish Hospital in St. Louis, MO. Barnes is listed as one of the few cholangiocarcinoma centers. My amazing “miracle worker” was Dr. William Chapman (google him) and staff.
I had to undergo chemo, 24 hour chemo pump and radiation together before going on transplant list and oral chemo while waiting for liver. You can read my story by going to thetelegraph.com and typing in christmas miracle.
I would love to talk to you or your uncle so feel free to e-mail me or call at 618-567-3247. I love to share my story because it is the one way I can honor my donors (I ended up having 2 liver transplants), I am alive because 2 families gave selflessly in there time of trajedy. Lots of prayers-CathyGO GREEN RECYCLE YOUR ORGANS-YOU CAN SAVE A LIFE
Marion-I live in southern IL. so Chicago is just a train ride away. I am intersted in attending, I am sure there is lots of caretakers and people in the “fight” but what about cc survivors? I think it is important show there is survivors of this cancer, which unfortunately is very rare. Please tell me your thoughts-Cathy
Rudy, like everyone else soo sorry you had to find this site. I am a cc survior. I was also diagnosed by an ERCP and a doctor who knew what he was looking at, as you read this site you will realize how rare and how lucky you were. Also like you my only sympton was itchy and told to take aveeno bath and benadryl by GP!! I am cancer free because of chemo, radiation and a liver transplant (really ended up having 2).
There is so much expierence and information on this site, keep posting and reading.
If you would like more about my story, feel free to email me, jrdunnagan@gmail.com
Lots of prayers-Cathykelly-I post on here because I am the face “hope”. I was fine on July 30,2008 (just a little itchy) and the next day July 31,2008 I was told I had 6-8 months to live!! My saving grace was being diagnosed by a doctor who knew what he saw ,knew about clinical trial, and knew about one of the most expierenced doctoors for this cancer. It was literally minutes from the word cancer to what we do next. my expierence is very rare. I know if my GP doctor had not been on vacation I would have a very different out come. Kelly you will probably be overwhelmed for a while but there is HOPE out there and this is your first palce to find it .Lots of prayers-Cathy
So funny to hear about itchy feet, just thinking about that now is like nails on a chalk board!! I remember wondering if I had chiggers, I had so many sores from itching myself raw. I had 8 ERCPS while waiting for transplant and knew when they were clogged because my feet would be the first to itch. The amazing my part my doctors always listenned. The only reason blood work was done because I casually mentioned I got nauseas a lot. A nurse practioner told me to put ice on my whole body, it is amazing any of us get diagnosed! -Cathy
Hi Kelly-like everyone else so sorry you had to find us. This site will be your one sane place because everyone here will understand the craziness you are about to expierence. You can post anything here because someone will have seen done or heard of it.
I am a cc survivor and was completely blindsided when I was diagnosed, I was just soooo itchy. I was very lucky because I was diagnosed by a doctor who knew what he saw and knew my main hope was a transplant. I was immediately put in the care of Dr.William Chapman at Barnes-Jewish Hospital in St.Louis MO. He was involved in developing the Mayo-Clinics clinical trial for cc .You can read my story by googling thetelegraph.com and typing in christmas miracle.
There is hope, so take a deep breath, lots of notes and ask any question you can!! Lots of prayers-CathyDear SDAS-Sorry you had to find this site, but it will be well of information and support for you. I am a cc survivor and like most cc patients I was very healthy and only 52 when I became very itchy. My diagnose was sooo unexpected. I was very lucky because I just happenned to end up in the care of a knowledgable doctor. I was immediately put in a clinical trial involving a liver transplant.
You need to ask lots of questions (even if you think they are redundant), take lots of notes and get second-third opinions until you find one you are comfortable with. Please use this site there is so much expierence and love here, we are always here to help and vent.
Sending lots of prayers_CathyRick, so sorry to hear your news. My husband was also alone when the doctor told him, that I only had 36 hours with out a new liver. He says it was one of worst moments in the cc battle. It is so good of Jamie to offer companionship for Cindy. Lots and lots of prayers to you and Cindy.-Cathy
Mayra-So very sorry for your lost, we will keep you in our prayers. You know your cc family is always here for you. Lots of love and prayers-Cathy
Pam-Thats a great post, soo interesting. Its really scary for me because my family has 4 of those cancer in our history. Worried for my daughter, not great genes!! Thanks for the post-Cathy
