just_jill

Still have not heard a single word, via email nor phone call from this PAF.

Thanks Lainy and Marion.

Here is the thing. This time last year, same thing. I wish to get this resolved for all of us in Oklhoma. I have found where other state insurance commissioners, have taken them to court and ruled that the PET scan is not experimental. Our commissioner has sent me a form to fill out and send in and believe me, I am printing out the other states findings to send along with. We, paitents and familiy members , should not have to fight this every single time it comes up. GRRRRRRRR

Thanks for posting the link. I just requested help with medical bills. My Insurance , BCBS, of Oklahoma, just again denied paying for PET scan. Says this is a expiramental or investigational precedure. I had the hospital call me again last night, wanting payment, but, you see, this hospital, everytime you walk in the door, opens a new account. I have at this time 5 different accounts, so even though we are making paments, on the oldest account, they sent the others to collection. I am just getting overwhelmed with all the bills and have at this time, stopped going for my checkups, thus, even though it would be time for another ct scan or pet scan, I just can not handle getting one more medical bill. I certainly look forward to hearing from your organization, and will report back here if they are of any help ! Just sign me extremely frustrated at this point!!

Cool. I was just watching tv last night when an avon commercial come on showing their sponsership of breast cancer. Call me bitter or what have you, but, are there any freaken companies that don’t support breast cancer research? Better question, are there any companies that do support cholangiocarcinoma?

Now, don’t get me wrong, breast cancer reared its ugly head in my sister. However, she is cured. Not only did they cut the cancer out, she also underwent chemo and radiation, reconstruction, the whole nine yards. I am glad the research money was spent on figureing out which chemo to use, ect. It just makes me sick all the companies soliciting on all these walk for a cure, and the phone calls, and the commercials.

Is it wrong to think its gone very over the top?

Good Hearing from You! Thanks for checking in! Sounds like chemo is the right move for you. Sorry to hear about the kidneys. Gosh, you have had such a rough road back to recovery.

Hi Ger, I myself had that whipple surgery on Sept 21, 2008. It is not a day at the beach for sure, however, it is survivable. Depending on where your tumor is, they will remove either the head or the tail of the pancreas. It gets tricky when the tumor involves the portal vein, which if that is the case , surgery is generally ruled out before hand, however, sometimes they get in there and have a clearer vision that the scans and ercp allow. I wish you the best, and please if you have any questions, I would be most happy to relay my experiences.

Jill.

Just wonderful Jim. I will say prayers for your continued improvement!