kate-g
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Carolan mate!
As far as I’m aware, the insertion of a stent is not a big worry in itself. My Mum had to have one put in last year before she had her resection (operation to remove the tumour), and it was quick easy and painless. I hope the Docs have explained this to you. The stent should allow the bile duct to open again and relieve her jaundice, which is caused by the bile not being able to flow through the bile duct, because the tumour constricts it.
I am going to PM you Carolann.Carolann! I am sorry you are having such a hard time! Please ask your Mum’s GP to get her refered to a Professor Peter Lodge in Leeds! He can’t help MY Mum, but he may be able to help yours! I have been told MANY times that he is THE MAN to see if you are in UK, and lucky you, he is not far away! Several people on this site have had dealings with him, and he is very experienced in CC…………
You can call his Secretary direct on 0113 2064890 if you want to ask her how to go about getting a referal.
The address for your Mum’s Gp to write the referal to is
FAO Professor Lodges Secretary
GRound Floor Lincoln Wing
St.James Hospital
Beckett Street
Leeds LS9 7TF.The lady was very helpful when I spoke to her.
I so relate to your panic and fear! I aws the same when my Mum was diagnosed a year ago!
Best wishes to both of you.I reckon it’s partly her age………plus it runs in the family!!
Jeff, best of luck with your treatment, hope it’s more tolerable than the last round!
Mum and I are off to London today to the liver unit at University College Hospital, to see a Mr.Webster. We’ll take all her notes with us, and CT scans from Greece. Not sure if she’ll have tests today, or if it’s just a consultation. Whatever. It will be good to get another opinion. She’s doing fine at the moment!
Good luck to you, lots of love!As if you don’t have ENOUGH to cope with, having CC!
The NHS is not without fault, I know, but I read stuff like that, and feel very VERY lucky that we have the NHS!(I refer to your health insurance nightmare).
Hope all is going well for you!I have no advice to offer you friend, but I wish your Mother, and you and your family all the very best, and hope she keeps strong, mentally and physically.
Thanks for your good wishes Jeff!
And thank you Sara, for the details, which do make rather grim reading, but it is good to know other peoples experiences……..don’t think I’ll share that one with Mum though!
Woody, I will email you!
Thank you again, everyone!
By the way, we saw our local GP today, and he is making a referal for Mum to UCH in London. Hopefully Mum will be seen within 2 weeks, all being well, for a second opinion.Welcome Meghan!
Glad to hear your Mum is doing OK at the moment. There is nothing wrong in remaining optimistic! I remained optimistic since my Mum had surgery last year in June. OK, so it is back. But why spend ANY quality time you have together, worrying about when it might come back! Best to enjoy the good times while they are there, and do the bad stuff only when you have to!
Much love to you and your Mum!Thankyou friends!
I was just wondering if this would say anymore than I already know.
As it is, I know a bit more now. I’m back in Greece now, due to return home to UK with Mum Sunday.
I left her yesterday, to travel to the mainland, back to the hospital, to pick up any notes/stuff that I can take back to UK.
Well, the Doc gave me a brief covering letter, a piece of paper with the aforementioned CA etc stuff, and a pile of her latest (2 weeks ago) CT scans.
I asked him why he wasn’t considering surgery again, and he said it’s because she has MULTIPLE lesions to her liver. Yes, there is a huge one, 10cm. But there are others too.
So, he said chemo is the only option.
I will take all the stuff back to UK, and see if we can’t get a second opinion, but to be honest, it doesn’t sound good.
When I asked her if (before I heard the MULTIPLE word), if she would consider surgery again if it were an option in UK, she said she isn’t keen to go through all that again. And she is also not keen on the idea of chemo. If it were going to cure her, she said she would give it a go, but as it isn’t likely to do much at all, she says she doesn’t want to have a potentially nasty treatment.
I tend to see her point. What is it likely to do?
The thing is, my Mum has had a good life, and see’s no point in having any treatment, if it isn’t going to cure her. She wants what time she has left, to be as pleasent and easy as possible. Unfortunately, if she stays here in Greece, she will most likely end up in hospital, where she would die. She wants to come back to UK, so that she will have access to decent palliative care.
She is looking forward to English supermarkets/food, and English TV, and some home comforts!! Her life is very basic in her caravan. No running hot water. No flushing toilet. A 2 ring cooker. I think it will just get more and more difficult for her here, and she will not have the services available that we have in UK.
Having said all this, I will urge her to get a second opinion when we return home. But I must also respect HER wishes! I might want to grab at any available option, because I don’t want her to die. But given the fact that she is happy to let go, who am I to try and talk her into anything that may reduce the quality of what time she has left?
I’m just glad that she has decided, for herself, that she wants to return to UK, and that I can be there for her, and can share whatever time she has left.
Just wish it hadn’t come back quite so bloody soon.So sorry to hear your Mum is gone Joyce. Can’t imagine how awful you must be feeling, but everyone here is sending you love and best wishes. I am so glad you were able to be with your Mum when she died.
Take care lovely lady, I wish you peace and freedom from your suffering.
XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXOh Jeff! Sounds grim!
What are PVAs and PVCs?
Valentines Day ay??!! How very sweet!
I hope you have recovered from the experience now, and that the next treatment is not so grim!I hope your husbands treatment continues to go well. He sounds like a fighter!! Best wishes to both of you, and I’m sure, like evryone who finds this site, you will find it helpful, compassionate and informative!
