kathyb
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Thank you, Jen, I loved reading about your dad. His attitude about God’s will and acceptance is what I strive for. To stay in that spot most of the time brings such peace.
I am was given 3-14 months (probably 12) and am now almost at 18 months. Symptom free at this time.
Kathy
I understand the hassle of insurance coverage. My secondary coverage is with United Health Care. They stall, stall and have outright lied to me – saying something is covered when they later deny. I think UHC would be fine for in network coverage. Fortunately my primary coverage is BCBS (an HMO). I have to have referrals from them every six months to go to Mayo, but they have continually approved the referrals. BCBS has been excellent coverage for me, and they are always so polite when I call them. UHC usually has me in tears by the time I’m done talking to them.
minkzy,
I don’t often read the “In Remembrance” posts as I have inoperable cc, but for some reason I clicked on yours. I think it was the word “blessing” that drew me to it.
Thank you for sharing your thoughts/feelings about your beautiful sister and the time you had together.
I truly believe God can bring good out of horrible circumstances. I hope I will always realize my blessings and be a blessing to others, like your sister.
Kathy
Tom,
I was diagnosed at stage 4, inoperable with 3 to possibly 14 months. That was over 17 months ago. I’ve had radiation with 5FU chemo in 09 and Gem/Cits in 2010. My tumor has never changed size and no new tumors have presented. I am STABLE!
The first year was the roughest with a couple of hospitalizations for blood infections, but most of the time I have felt great (except during the two months of radiation and 5FU chemo which were given shorty after diagnosis).
God bless you both. There is always hope.
Kathy
Yeah Theresa!
Stable is wonderful news!
We’ve just returned home from our cruise and I’ve been sitting her at the computer with many tears in my eyes reading some of the posts.
Thank you for sharing.
Kathy
Thank you Hans, for taking such good care of “our” Kris. An amazing woman.
My sympathy goes out to you, her family and friends.Kathy
Cyndi,
Linda was one of the people I always followed on this board. This is sad news for all of us; but we, too, “rejoice in her eternal healing”.
May God bless you and your family and hold you tight in His arms.
Kathy
I have an inoperable Klastin tumor and have had breaks between my treatment times. The first break was 7 months (it took me awhile to agree to chemo again when I was feeling so well). Now I am on another break. Oncology appt., blood test, and MRI scheduled 3 months after the last one.
If I had a problem, I would call my oncologist and probably go to my primary local doctor who would call my oncologist.
Normal treatment procedure seems to be different for every person with cc as we don’t take a predicted path. There is definitely a difference between doctors.
I’m glad your mom is doing so good and very glad she has such a good advocate. Keep it up.
I was told I probably had the tumor 1-2 years before symptoms appeared – itching without a rash, tired, and then jaundice.
Hi Brad,
So glad to hear you are feeling good. I’m probably a bit different from some people as it’s ok with me not to have surgery. As long as I feel well, it’s all good for me.
I am treated at Mayo clinic in Rochester. They agreed with others that I was not a candidate for tumor removal and did the testing for liver transplant. The tumor had grown too large in the month it took for insurance approval so I did not qualify.
I’m sure there are other excellent doctors and treatment centers, but we went to Mayo for chemo and radiation rather than have it done locally. I personally would always want Mayo to replace/clean out my stent. They are tops. My oncologist and GI doctor are so good to me. One big thing for me is always getting the results of MRIs and other testing on the same day. I’ve learned from this site that it’s necessary at many clinics to wait for results. That would so hard.
My original prognosis was 3 months to 14 months max. Tomorrow I will be at 17 months! I am presently off chemo and feeling very good. My main complaint is chemo brain. (My family keeps telling me I’ve always been like this, but I don’t think so
Kathy
My “metal stent wrapped in plastic” clogged 5 months after it was put it. They cleaned it out and it has been fine for 7 months now. The “roto-rootering” was much easier than stent replacement – for me anyway.
Nancy,
I do not think you said the wrong thing and it’s ok everyone felt bad for you. If they are caring people they should have, knowing you felt sad and uncomfortable talking about your son in that setting.
The elderly aunt asking questions was probably just being interested in you and she may be feeling as awful as you are, thinking she ruined your day.
Grief comes in waves.
You will always have two children. Nothing changes that.
Kathy
Lainy and Margaret had good suggestions. I often need to have something “rehearsed” in my mind for questions that take me off guard when I feel I can’t be or don’t want to be totally open with my real feelings.
Can you call your oncologist and ask what to do? Someone should be on call, if he/she is not available.
