kmemoro
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genindle,
so sorry about your Dad. My Dad was diagnosed with Bile Duct cancer on July 12th and he has had some treatment and now is having so much trouble with his counts he cant continue. I wish we knew how long he has.
Tell him how much you Love him and anything you ever wanted to say. Remind him of some of the great times you had together and maybe remind him of something he once said to you that didnt seem like a big deal at the time but always put a smile on your face.
I reminded my Dad of the time he told me of the time he came home from the National Guard’s training and my Mom was pregnant with me. He said she had on a Powder Blue pleated top and a navy maternity skirt and he said when he saw her walking down the block that “she was the most beautiful woman in the world”. Years later I bought a similar outfit when I was pregant with my 3rd child and did my hair a little like she wore it then and he told me I looked just like my mother. I never felt closer to my Dad and I remind him of that story often as we lost Mom almost 5 years ago quit suddenlyBkat,
Sorry about ur Dad as I went thru the same thing with my Dad in July. His surgeon also came to us after just an hour too but Dad knew when he found out what time it was when he woke up.
My Dad just turned 78 in August and he bounced back after surgery we couldnt believe it. He has undergone 5 weeks of both chemo and radiation- 5 days a week and now they want to start him on the Gemzar.
I too would like to hear from the people that have gone thru this treatment and how they felt. I keep hearing horror stories about people having to have transfusions as their blood counts go dangerously low and I dont want Dad in and out of the hospital for the limited time we have with him.Byron,
He had 5 weeks of 5 days a week.
We went to the Dr. yesterday and it seems he has fluid in his belly. they will take it out Monday and then we will see what happens.
He know wants to start him on a regimen of Gem once a week for 2 weeks then off for a week or two. I am concerned as his blood counts have gone down already and I know that drug is known to lower the counts. I dont want him in and out of the hospital for transusions and getting weak all the time.
I would rather have him have a better quality for a shorter period than a sick couple of extra weeks-am I wrong?
I Love my Dad with all my heart and want the easiest course for him. 3 of his brothers have died of various types of CA and he always said that the treatments were worse on them than the disease.
Help me to understand the best course for all of us!marions
Dad could not have a resection and he has already had the max amount of radiation and he had 5 weeks of 5FU – 5 days a week and the numbers are still going up.
He cannot eat and when he does it runs out of him. He is tired and now he is saying he has pain(he never complained about pain before).
I cant sleep worrying over what the Oncololgist is going to tell us TuesdayI want to thank all of you for your kind words and support.
I am truly not looking forward to the CT results on Tuesday as I found out that Dad’s labs were not good. In August his CA19-9 level was 1321 and Monday’s number was 1649.7. His CEA is also up to 16.3, his RBC and HGB are low-he never had a low blood count before.
I know we are going to be told that the tumor has gotten bigger and I also am wondering about the liver and pancreas. When they tried to do the resection we were told they were going to remove at least 1/3rd of his liver then and that there were several unknown images in the pancreas but because they could not do the resection we never found out what they were.
I have been reading other posts and have not heard of anyone with the numbers that high, even my PCP had never heard of that high a number.
Can anyone give me some insight into knowing what these mean?
He had 5 weeks of 5FU chemo and 5 weeks of radiation(every day) so the Dr. said no more radiation but maybe more chemo but if the numbers are up that high after all that will it be worth it.
He says he has no pain but he takes 2 oxy’s a day for arthritis so that may be masking any pain he may be experiencing. He says he feels ok but he doesnt look like he is. His color is off and he isnt eating much at all. I have worked for Dr.’s myself for more than 20 years so I know when patient’s are not themselves.
