lainy
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Marion, this is really wonderful news! There is an old Hebrew saying that translates in to, “From your mouth to G-ds ears!”
Dear Sandie, there is all kinds of news and I would consider this with the GOOD news. Sometimes a quiet Holiday is just right. Hope Mum continues her progress and wishing for another great report in January.
Gentleman Tom, so great to see your smiling face and just thrilled to see you come aboard again!
I miss you and hope things are going well with you. Have an enjoyable Christmas and Happy and Healthy New Year as that is just what Ben would want for you. Just so good to see you!!!!!Kris, remember when we went for that horrible Chinese Dinner???? UGH! Lets go back and maybe that will scare the CC out of you!!!!
Dear Friedrich, welcome to our remarkable family but sorry you had to find us. This is the best place to be for CC support. I see you are doing all the best you could do by getting other opinions. What kind of Birthday gift was that??? The gift is probably that they have everything under control, that it was small and they zapped the hell out of it! The best news is that they feel you are eligible for a transplant. That is excellent. YES, go on with your life as life is for the living. Have they mentioned what kind of protocol they want to do to keep their eyes on you?
Enjoy your retirement now as you are in a most beautiful city. Below is a site you may find helpful and please do keep us posted on your progress as we truly care.http://cholangiocarcinoma.org/newly-dx/
Ericka, sounds like you are doing all the right things, good work. Please keep us updated on how Dad is doing.
Dear Ericka, welcome to our remarkable family but so sorry you had to find us. My first question is, has your Dad had a 2nd opinion? We are big believers in 2nd, 3rd even 4th opinions. Also curious as to where he is being treated.
Yes, it is always a huge shock at first. like getting hit with a baseball bat in the stomach. When first diagnosed you will start out walking slowly and before you know it you will be running with the pack!
Did the surgery help the pain in his back?
Have you tried any nutrition drinks for him? My husband’s favorite was Carnation Instant Breakfast, the vanilla and I would blend in a banana. This can be had with a meal or as a meal and has all the nutrients he would need. He can even have it 3 X a day.
I am posting a link below that you may find helpful. Please keep us posted on Dad’s progress as we truly care and Please thank him for his service!http://cholangiocarcinoma.org/newly-dx/
Gavin, good article. I have always believed that the more we know from the beginning the less scary it is. I feel everybody has a right to know and to plan and get their “house” in order. Knowing erased any fear I may have had.
Victor, children see and hear these things because they don’t know NOT to believe. They are open to it. We have some members on here that have toddlers and after a Grandparent has passed they see them. I live in an apartment and in the bedroom ceiling is a fire alarm. It is run on a battery not electricity which a lot of spirits like to come through. From the time I had another surgery April 28th until the end of August Teddy came through the light almost nightly between midnight and 3AM. My bedroom is really dark and when he would come half that wall and my dresser would light up. If I left the room it would go dark again. Then he didn’t come around for about 2 months and one night I lay in bed and asked him why he has stopped coming and that I miss him. 2 nights later he came. My son and Teddy’s Sister have both witnessed this. I keep a log and am up to 120 visits in various ways in the 5 years he has been gone. It really brings me great comfort. But children have the ability to see beyond.
WOW. Victor! You really hit a chord with me. My family on here all know that I am a BIG believer in the Beyond and I also believe in “true” Psychics. My Daughter told me, 3 years after my Cancer (GIST tumor ) surgery that her friend who is a Psychic, told her I was going to have this surgery, that it was Cancer but I was going to be OK. Then after my Teddy “relocated” I went to her to see if Teddy would come through and he sure did. She told me things that NO one knew except me. I find that in believing in the Beyond it just lifts all the sorrow away as it brings so much comfort and I know he is around me all the time. We have many believers on our site. BTW, It was not CC but another very rare cancer and I just completed 6 years Cancer free.
Victor, if someone is having stomach surgery and the surgeon say OK, it numbs the torso for 24 – 48 hours. Mine lasted for 24 but even that helped as the first 2 days are usually the tough ones. Yes, you will be glad you have the Chloraseptic. You can even talk with a little spray. Teddy used to say, “now we know what’s wrong, lets fix it!” You have a great attitude too. Attitude has so much to do with it. I had a total colectomy last April and I was so ready for it after suffering for 4 years that even at 75 I sailed right through it. I was just upset with myself that I didn’t do it sooner. When one feel ill surgery is usually not as bad as the way we feel from being sick.
Victor, I know you are not going to believe this but it sounds worse than it is. I had Teddy ask for an epidural (I did also for another rare cancer stomach surgery) as it will keep the pain at bay for 24 – 48 hours. You will also have a pain machine that you can use while in bed after surgery. The surgery itself is considered large but not life threatening like heart surgery. The recovery is kind of lengthy as well. They had Teddy sitting up in a chair the next morning. BTW another little trick of mine is when I have had surgery that required a nasal tube I would order a throat spray like Chloraseptic as it can be sprayed even with a tube in place and it numbs the throat. Hope that helps. In a way be glad you can have this surgery as it is the best way to determine what may be hiding or not. Surgery is one of our favorite words. It will all be just fine.
Oh Gosh, Victor, I am so glad you got this second opinion!! You have what ever you have exactly where Teddy’s was. It affected his Ampulla Vater and Duodenum. It is true that the Surgeon cannot tell what he will or will not find until he sees the area. With Teddy’s Whipple they removed the Duodenum, ampulla vater, gall bladder and Pancreas head. The ampulla of Vater is the enlargement of the ducts from the liver and pancreas at the point where they enter the small intestine. Ampulla in Latin means flask. An ampulla was a flask used in ancient Rome to hold ointment, perfume, and wine. Thought you would like to know about your ampulla! We will all be cheering you on January 11th! Thank you for keeping us in the loop!
