lainy
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November 30, 2009 at 9:43 pm in reply to: Meeting today at Winship Cancer Institute (Emory Hospital) #33408lainySpectator
Good to hear you have a plan and you sound very secure about it. A lot of the decision making is going with your gut feeling, it’s usually right. Good luck and keep us posted.
lainySpectatorWelcom Judip and so sorry you had to come here. To me, and I am not a doctor, this does not sound typical. I don’t know where you are but I do know that Rochester Mayo in MN is one of the best. You can gather his records and fax them over but first call and ask who to send them to. Where are these ONC that you mention? Yes, some CC is not operable even if caught early but definitely get a 2nd opinion. I would also suggest reading up on posts on our wonderful web site they can be very helpful. At the top of the page is a search button and if you type in a concern or word you will be directed to some help from other posts. Please keep us informed and we are all usually quick to respond to your questions.
lainySpectatorTo Kristi and her family, we are so very sorry to hear about your sister. How lucky she was to have you helping her along this nightmare journey. She will always be with you and will forever be watching over her children as mother’s really never leave. Our thoughts and prayers go out the the entire family.
lainySpectatorDear Ashish, has the doctor done any tests at all? MRI, CT Scan, PET Scan.
Where is the tumor? We need a little more information so that our brilliant family here can give you some better answers. So very glad you found us, sorry you had to.lainySpectatorThank-you Tess, we are sending his family special prayers and I will have Teddy light a candle Sunday at Mass.
lainySpectatorDear Ashley, I can’t think of a more wonderful way to start this Holiday Season. Thoughts & prayers going your way for a speedy recovery. What a magnificent family you have! A very Happy Thanks & Giving Day!
lainySpectatorHi Gavin. Don’t you just feel you have become a specialist in CC? Just what we never hoped for. Marion is right about the stress factor as last year my GP had me go for a Nuclear Stress test to make sure the heart was ok. As your dad’s needs increase you really do not think about yourself and you need to. Tomorrow as we all sit around our table celebrating Thanksgiving, I will give thanks to the many wonderful people I have “met” through our CC web site and am so proud to call them family. Wish I could Fed Ex a box to you with turkey and all the fixins. Always thinking about you.
lainySpectatorThank-you Saracita for letting us all know about Tiffany. It is so disturbing that anyone would get CC but when it’s someone so young, it just breaks one’s heart. Prayers go out to Tiffany’s Family.
lainySpectatorDear Su, I am so very sorry about your mother. You know, I am a firm believer that mothers never leave their children and I am positive that she is watching over you and thinking, “Wow, I did such a good job!” Please accept our prayers and thoughts and this little poem:
A Letter From Heaven
To my dearest family, some things I’d like to say.
But first of all, to let you know, that I arrived okay.
I’m writing this from Heaven.
Here I dwell with God above.
Here, there’s no more tears of sadness;
here is just eternal love.
Please do not be unhappy just because I’m out of sight.
Remember that I am with you every morning, noon and night.
That day I had to leave you
when my life on earth was through.
God picked me up and hugged me
and said, “I welcome you.
It’s good to have you back again,
you were missed while you were gone.
As for your dearest family,
they’ll be here later on.
God gave me a list of things,
that he wished for me to do.
And foremost on the list,
was to watch and care for you.
And when you lie in bed at night,
the day’s chores put to flight.
God and I are closest to you…
in the middle of the night.
When you think of my life on earth,
and all those loving years.
Because you are only human,
they are bound to bring you tears.
But do not be afraid to cry:
it does relieve the pain.
Remember there would be no flowers,
unless there was some rain.
One thing is for certain, through my life on earth is over.
I’m closer to you now, than I ever was before.
There are many rocky roads ahead of you
and many hills to climb;
Together we can do it by taking one day at a time.
And now I am contented….
that my life was worthwhile.
Knowing as I passed along the way
I made somebody smile.
When you’re walking down the street
and you’ve got me on your mind;
I’m walking in your footsteps
only half a step behind.
And when it’s time for you to go….
from that body to be free.
Remember you’re not going…
your coming home to me.
*******************************lainySpectatorGavin, you are so up on everything and I think you are fully prepared for what ever you now must face. We are all here for you with of course advise, to listen and just to show you we all care. I have a feeling that on this site you now have tons of Grandmothers, mothers, sisters etc. for we have all adopted you!
lainySpectatorHello, Heather: We are so very sorry to read about your sister’s turn. Teddy had cyber knife last December and I know that the tumor must be below 7CM and it depends on the location and amount of tumors. I know you are getting good suggestions here and perhaps you could ask the doctor about some of them. Our thoughts and prayers are going out to you and your family.
lainySpectatorDear JNORM, what an absolutely wonderful post and how fitting for the week of Thanksgiving. This is the kind of post that we love to see as it gives hope and encouragement to everyone. Have a stupendous Holiday. Stop in anytime.
lainySpectatorDear Gavin, we are so very sorry to hear your dad has reached this point. Unfortunately it sounds like you are the decision maker. Honestly, I don’t think at that point I could handle Teddy at home and don’t think your mum is up to it either. I think, if you could see her taking care of dad, then ok, if not then it could be way too much for her to take any part in it. By the same token I would not opt to stay home as well if it was me. I just would not put that on someone else. But that is me. I will tell you like I tell my kids…make a list of pros and cons and you will get help your decision. I do know that you are the most wonderful son in the world!
November 23, 2009 at 11:41 pm in reply to: identical twin_age 41- successful whipple surgery at DUKE #30814lainySpectatorHi Heather. We are so very sorry to hear about your sister. We are sending prayers and good thoughts your way.
lainySpectatorDear Gavin, we are so very sorry to hear your dad has reached this point. Unfortunately it sounds like you are the decision maker. Honestly, I don’t think at this point I could handle Teddy at home and don’t think your mum is up to it either. I think, if you could see her taking care of dad, then ok, if not then it could be way too much for her to take any part in it. By the same token I would not opt to stay home as well if it was me. I just would not put that on someone else. But that is me. I will tell you like I tell my kids…make a list of pros and cons and you will get help your decision. I do know that you are the most wonderful son in the world!
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