lainy
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As we all know now, Sugar feeds Cancer. But, this is all so strange. When Teddy had his Whipple and they took out the head of his Pancreas, he could not tolerate nor did he have a taste for sugar for about 7 months! He used to be a candy & cookie addict! Then his love of “sweets” returned. Now with the new spot of cancer (where his duodenum used to be) a dislike for anything too sweet has again developed. Also, for those of you with upset stomachs/heartburn, I again want to remind you of our fabulous find…Briosche.
Its an old Italian remedy in a blue plastic bottle at Walgreen’s. When Teddy had his hiccups for months or if he has ajadoo (Italian for heartburn) Brioshe takes it right away when nothing else would work. On another note he starts his IMRT radiation today! It has taken us 3 months to get to today and I sure hope things have not got out of hand. Mmmmmm One more note: Jeff, I so look forward to your notes! Stay strong as we are all pulling for you!For all the itchers out there: When Teddy was itching before his diagnosis it got so bad that nothing helped. We discovered Sarna Cream at Walgreens. It was the ONLY thing to give relief. Also we used to put ice bags on his arms and legs that helped for awhile. Hope you can find some relief.
To Jolene: We are very sorry to hear of your daddy’s passing. You did everything possible to aid and console your father into an easier journey. You are the kind of daughter we all hope to have and one of his biggest blessings he found in you. Remember, your daddy has only left the room he will always be in your heart! You and your family are in our prayers.
Hi Larry! WOW! You and Teddy might run in to each other at Dr. Kresl’s. He was supposed to start yesterday but the office called and changed it to today.
T/W/T he will be going in at 100PM and M/F he will go in at 1000AM. Sounds like Kresl has you on the same campaign as Teddy. I know it only takes a few minutes but if you see a short, VERY Sicilian looking guy, say hi to Teddy. Good luck to you. We feel we are in the right place and probably the only place to be with Kresl.Hi Gail: Us grandmothers need to stick together! My husband was diagnosed 3 years ago and the first thing I learned is not to sit and wait! If I don’t hear from a doctor after a day or so I keep calling until I get a response. It is so unfair to make our people wait! One of the worst parts is the not knowing where you stand. Strange but once you know you feel better in as much as you then know something is being done and if you have a game plan I find that also helps a lot! I would keep calling, and I personally would get a second opinion. When Teddy was diagnosed in one week in which he had all his tests and the next week he was scheduled for his Whipple. We have learned that we have to take things in to our own hands. Be strong and persevere. You will find strength you never knew existed. Good luck on pushing for what you need.
Everyone deserves a break now and then. I wish there were a thousand Jeffs and we could each take one with us when we visit our doctors. You are something else. With your positive attitude and due to the fact that we honestly do need you, you will be around with us for awhile yet because your job is not done!!! Always thinking about you and wishing for the best. Come to think of it, we will not let you rest, we will keep you plenty busy!
Hi Kris: I have crossed my eye, arms, legs and everything in-between in wishing you a good report! Stay strong and enjoy your holiday!!!
Hi Patti: Glad you found this web site, but so sorry you had to even look!
My husband had a Whipple (you can see everything under Lainy) 3 years ago at the age of 72. It is the largest surgery to the human body. Not life threatening but huge! The doctor had told us that if he gets in and sees the cancer has spread beyond the bile duct valve he would abort the surgery. We were lucky the cancer was contained. IF we had not taken this chance we would have had months with Teddy and instead we have had 3 quality years. It has reappeared where his duodenum used to be and he is starting radiation Tuesday. Again not a life sentence. Everyone seems to battle their CC one war at a time. You might also want to get a second opinion. In the end it seems we all make the right decision. This is a very special group of people here and I am sure you will get some good suggestions. We will be thinking of you so keep us posted.We are very lucky as Teddy works for some guys he knew as babies who have a big produce company here and he goes in 3 days a week and does financial
work for them. But what an IDEA you have. We should do a circuit of TV talk shows and bring light to this monstrous disease!!! Have an entourage of say
2 moderators a patient and a caretaker. What an idea!!!! If ya don’t yell out no one will hear you!!!!!Carol, everything you are feeling is sadly, normal. When Teddy had his Whipple
3 years ago I totally took everything away from him and never gave it back. Paying bills, anything to do with the household, you name it I do it. Now that the cancer is back NOBODY knows how stressed I can get. I hide it well, if I am going somewhere in the car alone I can let out a scream and that helps. He is still pushing to work part time and its the best thing for him. Its the best thing for me! What about giving Charlie a project like taking as many photograhs of
the family as he can and making books of them for the children? He needs to do something special, anything. I know its hard but you are feeding negatively on each other. I put together a girls night out where we live, there are 8 of us and once a month we go out like to a dinner and a movie. Honestly it gives me something else to look forward too. One of Teddy’s daughter’s organized a family weekend over Labor Day and there will be a lot of kids and grandkids flying in to spend the weekend with him. The nice things is they are all staying at a hotel and are not letting us do a thing. There will be 25 of us and he is so
thrilled and is concentrating on that. If you both could just get over this one huge hump then your stress would be a tad better because you once again would be leaning on each other. Sorry, I didn’t mean to dribble on, I am not a psychiatrist or anything, just unfortunately my own experiences. I am thinking about you!Carol, we have just put our house up for sale and when sold, we will be moving to an apartment. I want the freedom and non stress of not being tied to the house and I want the equity in the house just in case Teddy has to stop working. To me a house is just an object, a home is where ever you make it. We don’t have any animals so that is not a problem. 10 years ago my daughter got divorced and moved to an apartment with 4 kids and took in day care. It got her through. Selling a house and moving to an apartment is not the end of the world. I know these are mere words but I always have told my kids that just when things are at their lowest something happens that turns it all around. They tell me its true. You have to stay strong for your children and know that the decisions you make will be the right ones. Perhaps Charlie feels he has failed all of you and that is hard for a man to feel that way. I look upon it as a new adventure, the next progression of our lives. We will pray for you and your family that things will turn around for all of you! You can make it happen!
What do you know? I did get a call this morning and they set us up for Monday for a CT Scan (required) and set up, as they call it. So we are on our way! Never in my life did I think I would welcome the word Radiation! How our values change!! Also never in my life did I ever dream of such strong and caring people as you all are!!!
