lilyamongthorns

She doesn’t have a stent. She has never had a bili problem or been ichy or yellow this whole time. She has just had trouble eatting b/c it hurt – like a gallbladder attack and that’s how we found out she had cancer.

I think the chemo has been helping her live longer, but it also seems to be killing her at the same time. Its all so over whelming.

Thank you for your response

Thank you all for your responses. Diane will have an 5FU pump and then get bi weekly treatments of Irinotecan and Leucovorin – I believe the 2nd too are the right names but I will double check.

I will use the search function to see if anyone else has been on those chemos – but if you want to tell me any side effects you had with 5FU that would be helpful. My mother in law has been tired, lost a lot of weight, and had breathing difficulties associated with the Gem / Cis, but hasn’t lost her hair. Are any of the new chemos I listed more likely to make her lose her hair?

Thanks again!

Thank you all for your help. There is a ton of helpful information here! My mother in law had a blood transfusion yesterday and feels worse today. She said she had a slight fever and some swelling in her face. I just hope in a few days she will feel as good as most of the people on here say they feel after a transfusion. Her nurse told her she might need one more transfusion before she feels better.

She also normally just gets PET scans, but I was reading that a lot of people on this board get CT scans instead and I was wondering what the difference was. Thank you PCL1029 for all of the information! That was very helpful!

Her tumor markers went from 1300 to 938 and then this last time the doctor said the markers went down again but did not tell us by how much. Her PET scan results said no change. Which is good and bad – no growth is good, but shrinking would be better than staying the same

Thanks again for all of your help! I love this site and am so glad we found it when she was diagnosed. There is so little info on CC out there!

Lily