maria
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Thank you Eli and Lainy!!!! Did my MRI this morning, and now the results have to go through a bunch of doctors before it reaches me… That’s how it works here.
Again, thank you so much for support!!
MariaJoanna, this sounds really good! You’re going to make this.
I found out the same way you did, felt a hard mass in my abdomen. 10 cm tumor but also 10 small ones spread all over, therefore no surgery.
This was april-2010. I was 43 then.
Since that I’ve had 37 rounds of chemo, gemOx, Gemzar+Xeloda and GemCis. I also did 6 chemoembolizations.
I still work and live a normal life. Ran marathon now this june, andtwo halfmarathons these past two years. So I can’t say i’m a bit sick really.
The treatments are harsh but I have no signs of cancer (if you don’t look at the scans).
I’m SURE that everything is possible, but it is a war where you have to be smart, smarter then cancer.
I have since dx done everything in my power to support my body in this war, so it won’t leave space to tumors, and to tolerate the treatments. Mentally, physically, spiritually, food, herbs, in every way possible.
Hugs!
MariaTiffany, soooooo happy for you!! You give hope to the rest of us also!!! You enjoy these good things happening to you, and I’m sure it’s doing good for the rest of us as well!!!! Bless you!
MariaAnd here I am crying because I´m so tired of chemo and don´t want to go there tomorrow. For my 38th intravenous session. Sometimes it´s just too much. I´m so unsure if it´s doing me any good. I do know it harms me though, it always does.
I found more ayurvedic herbs that I take, and I sometimes I just want to go with the alternative thing. But I´m not sure.
Take care!!
MariaMarion, you are so welcome
. I agree, it is incredible. I hardly believe it myself… But I DO believe that the limits are only in our heads. Everything IS possible.
A big hug!!!Kathy and Gerry,
I ran my marathon, in a way I never would have imagined!
But as three days before I got the news that my tumors had started growing again and I’m back on chemo I didn’t post it in this section but in General discussions.The rained poured down constantly, it was +4 C and wind 10-18 m/s…. Even here in Sweden this is extremely rare in June!! But I was happy all the way, just by being able to start! I’m totally overwhelmed that I could do it in 4.27 h.
I must have very powerful angels around me!Take care!!
MariaKendra, I was never a candidate for surgery, and don’t think I will. I had ten tumors to start with in April 2010, and at most 15-20 (one big 8x10cm and the rest small ones) spread all over my liver.
Two years on chemo, 6 chemoembolizations later I’m still feeling very well, working (ambulancenurse, sometimes quite hard work) and as I wrote before, ran marathon a month ago.
That is the reality of this cancer, in my case. And I plan on staying this way.
To achieve this I work hard, everyday. Training 5-6 days a week, tired or not. I eat as my life depend on it, and I’ve done a lot of research on complementary medicin, and use it a lot.
I believe there is a way to stay healthy without surgery, and I do my best to proove it.Don’t loose faith!
MariaPamela, if it´s possible, can you ask the doctor why he says no to Curcumin?
If it´s just because he doesn´t know anything about it, or because he knows something about it I don´t.I ask you because the many studies (to be found in pubmed) of it´s efficacy to help the body to fight side-effects, protect the organs and reduce the risk of resistance against chemo as well as killin
My doctor, oncologist AND liversurgeon, says yes.
Hugs!!
I live very close to my wonderful dog, and I haven´t had any infections during two years on chemo.
//Maria
Pamela, I had 13 rounds of Gemzar+Oxaliplatin May 2010-Feb 2011 and then had to change it because of the neuropathy. It worked all the way though. I was able to work, train, travel etc during this period (And I´m so much older then Lauren!)
Why doesn´t she get a Gemcitabine-combo?I would like to recommend her to take Turmeric (curcumin), I have done this since I got my diagnosis, and there are lots of studies on it´s effect on cancer being done at the moment.
Here is a new one, very interesting, concerning neuropathy caused by Cis/Oxaliplatin. It´s done on mice, but as it´s not hamful….
The nurses where I am being treated was astonished that I tolerated Oxaliplatin for 13 rounds without worse neuropathy. Turmeric?? Maybe.http://www.ncbi.nlm.nih.gov/pubmed/22648527
Anyway, the neuropathy went away in a couple of months afterwards, and has not returned yet. I´m currently on Cisplatin+Gemzar.
Keep on fighting!!!
Love to both of you.
/MariaI would like to add that transplant IS an option in at least Sweden, at the transplant-unit at the Sahlgrenska University Hospital (where I am being treated) but with more or less the same criteria as in the US.
//MariaLove the runningpart!!
2 miles is GOOOD! Remember the GOAL of 10k. He´ll get there.
The body does get used to training with low counts and on chemo, PROMISE, but it takes a while.When I was on Gemzar and Oxaliplatin and running in wintertime (below -0’C, even in -18 C up in the north of Sweden visiting a friend) when you get the numbness of cold and my red were down below the floor I couldn´t run more then 500 meters sometimes. But I did it and took a break. Then I ran 500 m more. And so on. For 10 km. This was winter 2010. Those runs were harder then the marathon.
I NEVER would have thought back then that I could do it a year and al half later. Or the halfmarathon 6 months later (in 2.04). NEVER. But I was so so determined that I would and kept on running. Wasn´t sure if this slow running with all these stops would even count as training. But it did!Running with low counts is like training on altitude. Hard but pays off well!
He´s training like the pros, tell him that!
He can do it and he will.Sorry for rambling about running
but I just love it! AND it´s saving my life. Says my doctor.Best of luck!!
MariaPS they did a 5 page article about me in Swedish Runner´s world
this April. This was my favorite daydream since spring 2010 It even was on the frontpage as in my fantasy “Maria is running away from cancer”It does not have to be a tumor!! My experience of direct treatments in the liver is that there can be other complications afterwards, scars and necrosis. Stay positive! I had suddenly had TWO new lesions 4-5×1 cm last summer one month after embolization and it hasn´t changed my life att all – they are still not sure of what it is. But I´m still in best of health!!!! Keep it up!!!
hugs
Maria
