maria
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Hi Janine!
Also nurse
but 15 years older than you. I was diagnosed in April 2010 with a big tumor (like yours) and ten small ones (~1 cm) intrahepatic. Needless to say, inoperable.I found out because something was bothering me, and thinking it was gallstones I went to ER. Not the case.
I hadn´t lost weigth, I wasn´t tired and my liver wasn´t just normal – it was perfect.Today after 1,5 years treatment with chemo, and 5 chemoembolizations my bloodwork is affected, but because of treatment. No jaundice, however, no drains or stents.
AND – best of all – not sick!
I work part-time (ambulance, not always easy) I run 30-40 km/week, etc. I live a normal life, and NOBODY can tell (without knowing) that I have this kind of diagnosis.
I strongly believe in physical exercise, healthy food and everything that strengthens the healthy parts of the body.
I´m determined to stay healthy and beat this!!!Funny about nurses; I found out not long ago that a nurse I used to work with 11 years ago got the same diagnosis – two months before me! She was operated by “my” doctor and hasen´t had any recurrence. I´m one week older than her…
Stay strong and positive there is a way out of this!!
hugs
MariaSo GemCis didn´t work, well it doesn´t always. BUT as mentioned above, there are lots of other choices!! I personally know two women here in Sweden where GemCis had no effect but they´re living the times of their lives, travelling and working, with other coctails, in these cases Irinotecan, Cetuximab and other things. I had Xeloda+Gemzar for a while, with good effect.
I´ve had 5 o these direct-treatments you talk about, chemoembolization it´s called when you go through an artery in the groin to the liver, or directly to the tumor in the liver. With very good effect. My big tumor (like my fist to start with) is constantly shrinking not showing any signs of life. I think it´s somewhere 1-2 cmx4-5 cm now. I would really recommend this treatment!!
Normally here (University hospital of Gothenburg) that is the standard-procedure at the moment, combining chemoembolization and chemotherapy.
So Byron, a new pair of boxing-gloves, and up and go!
Maria
Simon, your wife is a strong fantastic warrior. A real survivor. I hope you´ll have a wonderful 2012!
MariaThank you all
!!Hopefully I will see my doctor the 19th when I´ll be in for more medicin. You can come, Marion
Lainy, I feel more and more sure that I will beat this. I know everybody says operation is the only cure (I´m never going to be operable, not with all my small “things” all over the liver. Nobody´s ever going to be able to say there´s nothing left) BUT I don´t care! I´ll do it anyway!
I´ve done impossible things before.Light, love and hope to everybody!
MariaHaven´t read your story before, and so glad I found it! What an amazing man, he sure has it his way!
I´m so sorry for his present suffering although I wouldn´t be surprised if he comes around this time as well.
Prayers for you and him!!
MariaOf course you´re scared. It´s a shock and it´s a threat.
It´s difficult to wait and see, but some times there is no other option.
Anyway, no matter the diagnosis, there is no way knowing how this will affect you. 20 months ago I was the one, and I could NEVER have imagined that I would be in the position I am today; still a cancerpatient but absolutely no signs of disease. Side-effects of medicin, yes, but not as hard as I thought it would be.
When you pass the shock-phase and IF you get a difficult diagnosis, decide whether you´re a fighter or a victim. I guess that your kids, if not anything else, will make you the fighter. Then you sharpen your sword, learn how to fight and just do it. It´s possible!!!!!! It doesn´t have to be as harsh as found with google!
Lots of energy to you.Lainy, that´s so beautiful! Made me cry. We are all going to leave this world, sooner or later. This was such a wonderful way!
MariaWalkingthepath, I love your attitude!
My big mass is also located just over the gallbladder, it was like yours but a little bigger when it was discovered 1,5 years ago. 10-15 small tumors made it unresectable. Chemo (first GemOx and now Gem+Xeloda) and 4 chemoembolizations (more or less the same procedure as Therasphere) has made it stable. The big one is not stable at all though, whats left of it is clearly dying.
I
