marions
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Alright, for those of us who don’t know anything about the customs in Scotland…what are neeps, tatties and haggies? Great sounding words. (The Whiskey I get)
Ron, would love to hear your explaination, also.
Hugs
MarionBarb….I agree with Carol. I believe that you are very proactive and yes, on this board we have seen tumors shrink. Others may be able to respond to this, also. I would however, send my records to another specialist or two (or three) familiar with this cancer. There is a paper trail for everything in re: to your condition. I would include any scan (CT, MRI, Pet-Scan, etc.) and search out the opinions from other physicians. You would want to inquire about any possible treatment such as Cyberknife or, Sir-Sphere, etc.
Good luck and please, stay in touchVincent…..Simon K. Lo, MD is Director of the Pancreatic and Biliary Diseases Program at Cedars-Sinai Medical Center. Dr. Lo is also an Associate Clinical Professor of Medicine at the David Geffen School of Medicine at the University of California, Los Angeles (UCLA). You might want to contact him, also.
Good luck and please, stay in touchHello Patty Kay….I would like to follow Jean in welcoming you to this site. Sir sphere has been used with members of this site therefore, you might find some answers by using the Search Function. Simply, type in the word Sirsphere and some posting will show up with some discussion about the treatment and some side effects. Hopefully, someone on this board will be able to address your questions due to personal experience. I am sending my best wishes to your sister and am hoping for her to regain her strengths real soon.
Dear fairydrop……I urge you to reach out for professional help as many of us have when things became too overwhelming to handle. Please, contact Dr. Giles on this site and also call the local Mental Health help-line. I don’t know where you are in Arizona however, every community has a special phone number specifically for these purposes. Remember, you are not alone in this. Please, make this call. I will be checking back with you per personal e-mail.
Hugs
MarionHello Vincente….You might also want to contact Dr. Lenz USC/Norris Cancer Center. Dr. Lenz is familiar with this cancer. Good luck and hugs to you and your Mom.
shodge…welcome to our site. I am sending all my best wishes to your Aunt Amy. As far as I can recall we have have three separate postings on this clinical trial study of AZD6244. Until others have a chance to respond to you it might help you to use the “Search Function” to find these threads. Simply, enter “AZD6244” and these discussions will come up for you. Please, encourage you Aunt to stay hopeful since many times we have read about the insurance companies reversing their decisions in re: to their payment of different treatment options. I am hoping for her to be one of those people. Has Dr. Saab been able to talk to the insurance company on your Aunt’s behalf?
Sending tons of good wishes your wayHi Gale…capecitabine (Xeloda) has been discussed frequently on this board. You might want to use the “search function” in order to read up on previous postings by other members. Also, Google has quite a few explainations. I think Gale, you might just want to call the physician in order to find out what exactly he had recommended. When then posting your questions others will be able to relate their experiences with you as everyone on here is the most helpful, understanding and supportive to all. Hugs to you and looking forward to your next posting.
Hello Barbara……I would like to follow Kris in welcoming a newbie to this site and although, as you may have seen from previous postings I wish we could have met under better circumstances. But, here we are, and together we stay. To answer some of your questions:
The Cholanciocarcinoma Foundation brochure describes:
What are the risk factors for developing Cholangiocarcinoma?
Research has shown that some disorders may increase the chances of developing cholanciocarcinoma. Disorders leading to increased risk include the following:
Primary sclerosing cholangitis: chronic inflammation of the bile ducts
Chronic ulcerative colitis: chronic inflammation of the bowel
Choledochal cysts: sac-like structures forming off the bile ductsWhat I have seen is that there are also other “possible contributers” leading to the formation of this cancer and you might want to “google” bile duct cancer or cholangiocarcinoma.
There are other postings on this site discussing lesions which have formed in the abdominal cavities. Seems, this cancer has a mind of his own and our JeffG describes it as liking to playing hop scotch in our body.
If you don’t mind me asking: where have you been diagnosed and have you considered more then one opinion, so far?
Please, stay in touch and again a warm welcome to you.Frogspawn….this is wonderful news. And, you can count on good wishes and positive thoughts for your brother. Crossing my fingers for a good consultation with the doctor. Hoping to hear from you, soon.
Dear vincently22…… I am extending a warm welcome to you. As Patty has been pointing out by perusing the different postings on this site it will become apparent that due to the location of the tumor (tumors) treatment options vary from person to person and favorable responses to those treatments follow that trend. Therefore, I believe in searching out the opinions of several physicians or medical centers specializing in bile duct cancer. As everything leaves a paper trail so you might want to request all records and forward those for 2nd, 3rd, or even 4th opinions. In the meantime hope is what drives us and many times we have seen quite a few positive responses and I am hoping for your Mom to be included in this, also.
Hugs to you and your family,
Marion
