marions

Dear Lisa….I am so very sorry to hear of your Mom’s passing. Please, accept my deepest sympathy.
Marion

andyuk…..hello and welcome. Reading through the lengthy posts can be time consuming however, I would like to suggest for you to read up on Professor Peter Lodge in Leeds. He has been treating several patients in the UK. You may enter “Professor Lodge” in the search function and several threads will appear wich I believe are worth reading. Your questions in re: to Dr. Lodge may very well be answered by members on this site, also. So sorry for you having to join us but, so glad for you to have found us. I have never encountered a nicer bunch of people who are so willing to share their experiences while sharing their knowledge with tons of support for each other. My absolute best wishes to your mum and you.
Marion

Charlene….hopefully, John is willing to talk to Jeff…..please, try to encourage him to do so. Also, have you called Hospice, personally? They will have an answer to the right approach with John in re: to accepting their help. Hospice encompasses many areas of pallative care and in some instances depending on the patient’s well being will retreat when the patient is stabilized. I called Hospice after explaining to my husband that I was not able to keep him comfortable enough therefore, medications needed to be administered with the help of Hospice. You might be able to come up with another solution however, as I have mentioned, calling Hospice and explaining the situation might be another way to go if John does not want to talk to Jeff who I am sure will have a great man-to-man talk with him. Sending all my love.

Lauren…welcome we are happy for you to have joined us. Patty makes many comments of value certainly, don’t feel discouraged as of yet. Please, forward the proposed experimental chemo regiment recommended by the attending physician. Most likely some, if not many others have been prescribed the same medication, already. Also, I might want to check against other information available as generally these chemo regiments are discussed and studies are presented at the major clinical symposiums. Most of all please, don’t give up hope. Also, others may very well share their own experiences in re: to fighting the insurance companies and how they were able to obtain coverage for experimental drugs. There also is a compassionate drug program offered by the Pharmaceutical companies for those patients who are falling in a particular financial bracket.
Marion

kevndevc…….so sorry to hear the news of your Mom’s passing. So many of us can relate to your loss. I am so much hoping for you to be able to treasure the memories allowing your heart to heal….one day at a time. My heart is with you.
It is those people like your Mom, the sisters, brothers, fathers, uncles, husbands, wifes, and children who make us strive to push forward in this quest of finding an answer to this disease. I wish for us to have met under different circumstances but be assured that your Mom is one more reason for us to be fighting harder, yet.

And all of us. Sending tons of good wishes from the CC family.

Mercedes…..it is very likely for this treatment to be available in Switzerland. You might want to contact your local physician for referral to a major medical center. Personally, I don’t recall meeting any physician from Switzerland however, the TACE treatment is being discussed and data is being presented at the major conferences which are attended by physicians and researchers from all over the world. Thinking of you and sending my best wishes.

haiminh, until others can respond you might want to use the search function. Simply, enter liver transplant, and you may be able to peruse this subject as it had been discussed in previous posts. So glad to hear that your Mum is feeling better.