marions

Amilcar,

my husband also had immediate positive responses to steroids. His energy level and his all around well-being improved significantly.

Marions

The nausea and vomiting were the most difficult for us to control when my husband was battling this disease. We tried Prilosec , Kytril and other acid reducers and at times we felt to have found the answer with one or the other, but inadvertently, it would return.

Before any ingestion of food (

Dear soninlaw,

Of course, you are frustrated, as we all are. We want an answer and a cure for this disease.

As you may have already learned, due to the rarity of the occurrence of this cancer studies are limited, and in my mind, inconclusive in their respective outcome when applied to this cancer. Physicians, in most instances, heavily rely on the results of published studies in order to establish their treatment protocols as medicine and science have simply become too complex for any one physician to be an expert at both.

Working through the maze of information on this site, several cancer centers and physicians will become apparent as will numerous treatment plans with varied outcomes.
You will also notice the different approaches taken in the quest of treating this cancer may it be through surgery, chemo therapy; or alternative approaches, some with long lasting and positive results.

You might also want to target those physicians with a higher volume of bilary patients and those surgeons, who have performed a fair amount of resections associated with this cancer.

Foremost, don

Hello Colleen,

Thanks for sharing with us.

You mentioned the statistics, here are my thoughts:

Statistics are a branch of applied mathematics concerned with the collection and interpretation of quantitative data and the use of probability theory to estimate population parameters.

In other words: it calculates the

Dear Ted and Patty,

thank you so very much for letting us share this wonderful news with you. I am thinking of you and Patty and sending the best wishes for a speedy recovery.

Marions

Dear soninlaw,

Just wanted to share this with you.
Replacing a heart does not involve cutting in to the organ. Here, we are talking about reattaching arteries and vessels and circulating the blood throughout the body while bypassing the heart during surgery.

When looking at biological make up of the liver you will notice it containing thousands of blood vessels (the heart doesn’t), which bleed profusely when cut although, liver resections and transplants are being performed fequently.

CC is a different kind of monster.

Hoping for all of us to find more answers.

Marions

Dear sadandconfused

I would consider having a blood test at least once per year, and requesting the CA 19-9 results. Although, it is not conclusive these tumor markers are always elevated in the presence of CC.

If you are presently covered by insurance, you might want to establish a relationship with a physician who will initiate further testing at regular intervals.

You cannot be denied insurance for a pre-existing condition if the condition does not exist.

This is assuming you are covered by insurance at this time.

My heart goes out to you for having so many of your family members being diagnosed with CC.

My best to you,
Marions