maryanne80

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Viewing 15 posts - 46 through 60 (of 88 total)
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  • in reply to: jaundice #19250
    maryanne80
    Spectator

    Hi Friends,
    Thanks you so much for all your answers to my jaundice question. I couldn’t get on the site for some reason so I couldn’t reply. I flew home from Bonaire yesterday because I just couldn’t stay away. Joe’s procedure was not really successful on Monday. They got a stent in the right lobe of the liver but the duct in the left lobe is twisted and they couldn’t reach it through the endoscopy. Tomorrow they are going to do a percutaneous transhepatic drain with an outside drainiage bag. His bilirubin is now 20. He is not in pain but just very weak and tired.
    Colleen, I was sorry to hear about Fred. Things change so quickly with this disease, you just never can count on the status quo. But we are not giving up,we are just taking one day at a time. Prayer sustains us each day and now we just want to get through tomorrow. I will let you know how it comes out. Mary Anne

    in reply to: Not the greatest news in the world #18707
    maryanne80
    Spectator

    Barb,
    We are praying for you and that you can get wsome better options from the doctor. don’t give up. You have a great attitude and will to live. I ‘m glad you feel well. God Bless Mary Anne

    in reply to: Philip McClelland #18566
    maryanne80
    Spectator

    Dear Pam,
    How hard to hear of another loss. this is such a tough time. My God give you strength to get through these days and fill you with happy memories you can cherish for a long time. god BLess you and the children. Mary Anne

    in reply to: David Cook #18523
    maryanne80
    Spectator

    So sorry to hear of your loss. You Dad’s story was one of the first I read when we came on the site 17 months ago. We will pray for your family tha God will comfort you in this tough time. God Bless Mary Anne

    in reply to: Update on John #18549
    maryanne80
    Spectator

    Hi Charlene,
    Just read of your problems with insurance and getting doctors to communicate with them. We have had some of that too. We will pray for both of you. How can anyone get through this without a God to pray to. I know we couldn’t. Sometimes we don’t know where the strength comes from and then we say, Oh yeah, people are praying and that is grace that is getting us through. God bless and don’t give up. Mary Anne

    in reply to: Has anyone had Radio frequency ablation? #18394
    maryanne80
    Spectator

    Hi Charlene,
    My husband Joe had RFA on a tumor in his liver that was 5 cm. He had the procedure last June and it was rough for a few weeks after but we really didn’t know what to expect. The doctor told us that there would be pain but I guess we didn’t realize how much. He was on a pain pump in the hospital and went home the day after the procedure but the next few days were rough. It did seem to do the trick. The tumor doesn’ts how up on the scans anymore. He still has two large tumors in his liver, to big to treat but not growing much at present. I hope that helps you. I think there are severalpeople who have had this procedure. Maybe they will answer you also. God Bless and good luck Mary Anne

    in reply to: Sad news!!! #18337
    maryanne80
    Spectator

    Rita,
    So sorry to hear about your Dad. The comforting thing is he is out of pain. Wewill be praying for you and your famiy in the days ahead. Just know you did what you could in the time you had. God Bless Mary Anne

    in reply to: Low Dose Naltrexone #18306
    maryanne80
    Spectator

    My husbandJoe started on low doseNaltrexone in July and there are no side effects at all. He is getting alternative therapy called Insulin PotentiationTherapy and the doctor that is doing it suggested lodose Naltrexone. He said that of people with Stage 4 cancer who strt on Naltrexone the5 year survival rate is 50% We thought that sounded good and it is only about $30/month. It is supposed to boost your immunesystemwhile you sleep. We will see. Good luck Mary Anne

    in reply to: Request for prayers for my dad #18007
    maryanne80
    Spectator

    We pray for cc sufferers everyday but like to know when something special is going on. Take care. Mary Anne

    in reply to: Using the forum and family members #17965
    maryanne80
    Spectator

    Hi Kris,
    I am the caregiver and my husband Joe has never been on this sight. He thinks it will depress him. I share some stories with him andsince we have a blog, I follow the blogs and tell him how those people are doing. I always mention Jeff as a long time survivor even tho he wa able to have surgery and Joe wasn’t. I need this site for info, support and to see how oehters are handling the situation. I am a nurse so maybe that helps me not get depressed about what i read. I see strength of spirit in cc patients and I know that we have changed our attitudes about how we live life becasue of this disease. We try to not waste time, or energy on unimportant worries, we try to see the good in people around us and enjoy the time we have. I need this website and thank the people who started it. I also appreciate the people who still come here even tho they hae lost their loved ones. mary anne

    in reply to: Ascites/Drain tube #17953
    maryanne80
    Spectator

    Hi Michelle,
    I thought Dirk had intrahepatic cc. I didn’t thin ascited happened with that but i guess it depends on what gets blocked by the tumor. Praying for relief for Dirk and will watch for your update. mary Anne

    in reply to: Tis the Season to be Jolly or Not ? #17851
    maryanne80
    Spectator

    Hi Jeff,
    Hope Thanksgiving was all you hoped for. Haven’t been on in a few weeks so had a lot of catching up to do. You are one of our long termers and we are all pulling for you. You put up a great fight with a great attitude. We pray for all cc sufferers that new treatments will eradicate this disease. God Bless you in the coming days and thanks so much for your poem. My husband Joe was diagnosed in July ’06 and is still doing well. Praise God. Mary Anne

    in reply to: Charlie’s surgery moved up to tomorrow (Tues. 11/6) #17678
    maryanne80
    Spectator

    I wil be praying for charlie and you tomorrow. It will be a long day and huge recovery but hopefully it will give Chrlie some quality time and good days. God Bless Mary Anne

    in reply to: The waiting game #17627
    maryanne80
    Spectator

    Hi Kris,
    What kind of scan did you have? My husband Joe always has pet scans and they send a DVD copy with us when he leaves. THe paper results usually gets to the doctor in a few days. I notice some people are getting MRI’s instead of PEt scans. I heard a doctor say they are better when looking at the liver. I know these scan take a little longer to get results but Joe hasn’t had an MRI since he was diagnosed. INput please. Thanks Mary Anne

    in reply to: Sharing Our Story #17450
    maryanne80
    Spectator

    Dear KD,
    I will add your husband to our prayers. I hope you can get the pain under control so he can enjoy the time he has. Don’t know if you are in hospice yet or not but they are usually great at pain control. That is the only thing my husband is worried about when the time comes is the pain control and our internist said he will take care of that. I’m pretty sure in this day and age that death shouldn;t have to be painful. God bless you and your precious little one and give you strength to be there for your husband. Mary Anne

Viewing 15 posts - 46 through 60 (of 88 total)