pam
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I’m missing my Mom on Mother’s Day too. She died of a stroke Sept. Of 2008 and then my dad died of cc in Nov. of 2010. Big loses! I will have a delayed Mother’s Day when my son and husband come back into town next week. In the meantime, I plan to bicycle the neighborhood, get a little sun, and grill a steak for one. I’ll make the most out of the weekend! Happy Mother’s Day everyone!
Lainy, I have not heard of it on the thigh but the night my dad had his surgery he came back to the room with a morphine button he was suppose to press when he needed it. He could not even find his nose. I basically got into trouble by the nurse for pressing it for him when he was moaning out in pain. She said I could have given him medication when he really didn’t need it and it was his job to give it to himself. I was completely baffled.
Hi Andie, I’m so glad you can write on this board and get the support you need. It sounds like you have a terrific husband too. You hit the nail on the head when you said your mom acted like nothing had happened after she had become frustrated with you. She is overwhelmed and can’t figure things out just yet. She wants to be strong and tried to prove it by lifting those heavy stones! She is going to have to come to a place of acceptance and that just may take a while. Mostly importantly you are doing everything right! Staying calm, reassuring her you love her and are there for her, inviting her places, etc. is all you can do. I hope you are able to enjoy your FL trip and she might be better with the little bit of space! Please know you are a wonderful daughter.
Jen, I am so sorry your dad and family is going through this terrible time. Hopefully, the hospital can take care of your dad’s issues and he will be feeling better soon. I know everyone, including your Dad, wants to be up and chipper. I am sure the way you all take care of your dad he knows he is loved so very much. Thoughts and prayers going out to you. Pam
Yes, I’ve noticed all the off the wall posts in the last few days too. Good not to open any of the links.
When my dad became jaundice, his stent was still working. We were told it was the progression of the disease. His biliruben level fluctuated quite a bit. He hit 5’s to 10’s. My dad tried a prescription powder mixed with juice to bind bile and take it out of his system. He couldn’t drink much of it because stomach would get full too fast. Usually when biliruben levels are extremely high, the stent has stopped working. My dad lost a lot of muscle mass too. Margaret has some excellent food ideas to maintain weight while you wait for the biliruben
level to go down. Good luck on continued treatment. My thoughts and prayers will be with you.Excellent Samiee, your dad is a true fighter. He must be fairly young and in good health? Your dad’s surgery was what my dad needed, a whipple and resection. Unfortunately, my dad’s surgeon decided against it. I hope your dad has a speedy and uneventful recovery. Best of good wishes to you too.
Ashley, I can completely understand your concern. Looking back at some mild symptoms, we believe my dad had cc up to two years before it was discovered. After a consult, my dad went for surgery. The cancer had spread from his gallbladder to pancreas and into bile ducts. The surgeon aborted the procedure. It took my dad about six weeks to gain some strengthen back. Hard to say if putting his body through the assault gave him less time. Surgery was hard on him, but he knew if it was successful it would have bought him years. That’s what your mom is thinking. It’s hard on you because you do not want to see her suffer. Like everyone has said, she will have to build her strength before she can
have surgery, so it will give everyone time think about this decision. You are in my thoughts and prayers in the months to come. Try to rest and take care of yourself when you can. You are a wonderful daughter.Lisa, I am amazed by your courage, conviction, and positive attitude. Yes, you do have so much to live for! Wow, what a summer you are going to have with all the wonderful events that are going to take place with your children. And I also agree Hospice isn’t going to be a big switch but the extended benefits of massage, acupuncture, and better pain management will make a huge difference in your quality of life. You are an inspiration to so many! Enjoy your summer!
My deepest condolences to your family during this sad time. Bless all of you. You are all in my prayers.
My thoughts and prayers go out to Rick’s wife, children, and family. May they find strength and renewal in the weeks to come. He is no longer in pain and is whole again.
Kim, you are very justified with your rant. No need to feel guilty because you are torn in two! I remember the feeling quite well. I was in the middle of retiring and moving to another state when my dad’s cc was discovered. My husband had already moved and it was an additional six months before I could move. I had six months to spend with my dad but it took a toll on my marriage. Things are getting better but we still have work to do. So I can completely understand where you stand. I know it will be hard, but take a couple of weeks off from traveling to see your dad. He will understand. Have you made plans for when he can not live independently? My dad tried for a few months to live on his own. He became sick very fast and he agreed to move to my sister’s house. It was a big relief once we had a plan. I have another sister who lives in CA. She called my dad daily, sent texts, and emails. Does your dad use Internet or a cell phone? (some older people don’t)
. It might help you to stay focused and calm to talk him in some way daily. Most of all, your dad knows you love him! Time to take care of yourself and family. Plan something relaxing to do with them. I’m sending good thoughts your way. PamMy dad also had a fentanyl patch and liquid morphine for break through pain. One important thing the Hospice nurse told us about the patch was to take it off if my dad had a fever over 100. It will release too much medication with fever. Might be something you want to ask since often infections/fever occur with cc.
