pamela
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I knew you couldn’t stay away for long. Please take care of yourself, Lainy. We all want you to feel better. I know firsthand that it is better to let your feelings out than bottle them all up inside. I have never cried as hard as I do now, but I usually feel a little better after each time. Take care, my friend.
Hi Matt,
I just wanted to welcome you to the site and tell you that I am sorry that were diagnosed with cholangiocarcinoma. Try and keep your spirits up and never give up hope that a chemo, radiation, or something else might help. Please keep us informed on your plan. Wishing you all the best.
-Pam
Dear oceangirl,
I just wanted to let you know that I am so sorry to hear things are not going well for your brother. I know things can be so hard to deal with at times. I wish for your brother to have a peaceful, pain-free time in hospice care. May you find comfort in him being well cared for.
Love,
-PamPattimelt,
Have you checked out the website for Genentech, the maker of Xeloda. They offer discounts on the drug and when Lauren was on Xeloda we hardly had to pay anything.
Hi oceangirl,
I would also like to welcome you to this site and tell you I am so sorry to hear about your brother. I know it is so hard to watch a loved one battle this cancer. I’m sorry to say that my daughter, Lauren, passed away in June at the young age of 27. She was not hungry a lot of the time but always managed to love popsicles. There are some that are made from fruit and juice that have some nutritonal value. She also liked scrambled eggs, homemade chicken noodle soup, creamed chicken, and other comfort foods. It is so awful to not have an appetite when you need to eat to keep your strength up. I think Lauren was depressed as well, but didn’t want to take antidepressants. She did talk to a social worker and that helped a lot. I did need antidepressants to cope with everything and they are a lifesaver for me. I would also say to never give up hope. A good attitude goes a long way and hope keeps a good attitude going. You are among friends here and we are all here to help. Bless you and your brother.
Love,
-PamHi Jules,
My Lauren used to get pain in her liver after chemo as well. We always thought it was the chemo working. I would still ask your oncologist to be sure.
Best wishes,
-PamHi Lisa,
Please try and enjoy the great news that there are no new tumors and the others are all gone. The CA19-9 is not foolproof. Maybe it has something to do with your hives and all the steroids. Please do not dwell on those numbers. Be happy about the tumors being gone. I know it is so much easier said than done. I will pray everything is ok. I’m always here for you. Let’s get excited for the marathon next week!!
Love,
-PamDear Kathy,
I am so sorry to hear of the passing of your dear Dad. I know you are sad right now and nobody can take away your pain. Please know that I care.
Love and hugs,
-PamHi Kris!
Great news about the CA-19-9!! What’s up with the leg swelling? I hope it is nothing serious. I’m sure you will handle the hair loss like a champ. Here’s hoping it just thins a little and you don’t lose it all. Love you, girl!!Dear ghannam,
I am very sorry to hear of your Mother’s passing. I know how difficult it is to lose someone you love so much. It is a pain I wish no one had to endure. Please know that my thoughts are with you.
Love and hugs,
-PamHi Dakotabeann,
I just wanted to welcome you to this site and to tell you to never give up hope about the surgery. Your husband might have to do chemo first to shrink the tumor, but even if the doctor says no right now, that doesn’t mean it will never happen. As for getting the word out with what is happening with your husband, I found Caringbridge to be a little restricted for my taste, because I like to post a lot of pictures. So I started a blog for my daughter, Lauren on my own. I find blogging to be very helpful in getting my feelings out. Sadly, my daughter passed away three months ago tomorrow at the young age of 27. She always had hope in her heart. Take care and I wish you and your husband all the best.
Love,
-PamI am very happy to hear you are doing well, Mary. I know you have had a tough go of it in the past. May your good fortunes continue!! I am glad you got to meet Kris and the others. Lauren, Lisa, and I met Kris last year and we just loved her. Take care.
Love,
-PamHi Pat,
I understand if you or someone in your family has a bad experience somewhere, you might be reluctant to go there. I am very sorry to hear about your husband’s ordeal and the death of your dear nephew. I can only say that our experiences with U of M were all good and that they did everything in their power to help Lauren. It is very difficult losing a child. We think about her all the time and wish so much we could see her again. I hope that in time it gets easier because how we feel now is not easy to deal with. I do have people to lean on. My husband is a gem and I have two wonderful children and a son-in-law. I also have my Mom, Dad, and sister along with her family. My friends are great but I feel they would not want to be around a Debbie Downer, so I put on a happy face and pretend I am ok. I hope that you will find a place you are comfortable with and get great care. Best wishes.
Love and hugs,
-Pam
