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Hi Angelmar, I wanted to respond too I am just not quite sure what to say or what to offer. I too had quite the extended resection in January of this year. My scans have been good so far, but they are starting to see 2 small lesions that have been on the last 2 -3 reports around my incision area that they are referring to as scar tissue and nothing that is worrisome. So my question is the same as Marions, as far as do they think this is worrisome tissue that they are looking at? It sounds like you will be asking more questions on Wed. Could it be scar tissue from the resection? I don’t know much about this and whether scar tissue grows overtime or not (a question I will need to ask my surgeon and onc)
So sorry I don’t have more to offer. I wish you well and hope you get some answers you are looking for, then onward to head towards the direction you feel you need to go Blessings to you.
PorterJulie, well good news on numbers trending to where they need to be
I feel ya. You know Im months now post chemo and I am still considered anemic have a low hemoglobin and RBC. My docs like to remind me how harsh chemo can affect certain peoples blood work and counts and as many months as i was on chemo, it might just take that long just to see certain numbers get back to where they need to be. Nothing alarming, just a couple things for me that are a tad under normal range. My liver enzymes bounced around all over the place during chemo too and a little after. Like your docs are trying to reassure you, I am almost certain nothing is worrisome. Mine have seen pretty stable the last couple of times since chemo has ended. I will be thinking about you during scan time, mine is already coming up too!! I can’t believe it! Jan, will be a year for me since surgery! How time flies. Take it easy, and take care.
PorterI came across this article when CC.org shared it on FB. Julie I agree with what you have said. Duke, I really enjoy reading your posts (I know I don’t respond of post often these days) but I still try to keep “tabs” on everyone.
When I had my surgery in January I was considered multifocal; one main tumor and one satellite. They were both removed and the main tumor was measured at 13cm and the satellite, 2cm. Hugs and blessings to all.
PorterThanks guys. These spots are tiny. 6mm they say. They’ve been on the last 2 scans same spot no growth and no post contrast enhancement. So I am being assured its nothing alarming and just scar tissue. Other who have had resections or surgery, did y’all have scat tissue or spots show up on your scans? These spots were not there my first scan 6 weeks after surgery.
Thanks for the replies. And thanks for the input Marion. I guess I just wanted to make sure that it’s not out of the norm for me not to have another PET. Onc and Surgeon (both look at all follow upscans) say there is nothing worrisome and don’t feel a PET is necessary. She also did mention that after the last year with chemo and my resecion that a PET might also give off false positives. I am trying to trust in what they say. I was misdiagnosed when this all started in 2009 and I just want to make sure all the t’s are crossed and i’s have been dotted.
I am confident in the MRI reading and interpretations and this is the imaging they have solely used since I was diagnosed.Hi Serena, I had my resection in Jan. Clear margins and no lymph involvement. I chose to do chemo the gem ox regimen solely because it was a peace of mind for me that I knew I had done everything I could if anything ever came back, even though there is very little info on how effective asjuvamt chemo is for this cancer. That being said right before chemo started and after my surgery I felt pretty wonderful. For me chemo took a toll on my body this time around and I had a hard time with it and 3 months after completing my regimen my body is still taking its toll with side effects and low blood counts. Keep in mind everyone tolerates it differently including myself I has gem cis before surgery and tolerated it quite better.
Hi Darlene, I too wanted to welcome you to the site. I too was diagnosed with ICC last July. I started chemo and was told surgery would most likely never be an option. Well I proved them all wrong and had a major resection in January and they removed 6 segments of my liver. It sounds like you got a good team going for you but as others have said second and third opinions are very much encouraged. You just never know what one might say compared to the other. I wish you many blessings on your cc journey and sorry you had to find us. You will find that this group is extremely helpful, informative, and supportive. Many blessings to you.
PorterAw Julie, I am sorry your body is having such a difficult time. I too wouldn’t hesitate to go into the ER if you ever feel the need. As far as the hemoglobin (and I know everyone is different
) but I think it can take quite some time for some of us. Like I said my last infusion was the beginning of June and I had a low hemoglobin thoughtout my entire regimen, and as of today it is still low and not in range yet. It is slowly increasing everytime I have my blood drawn, but I am still not within normal range. I hope you are able to have a good weekend Julie and that you start feeling better soon. I know how tough and what a toll this can take on you physically and emotionally.Hi Julie, I understand all you are going through. I had my last infusion back in the beginning of June, and now just starting to feel a bit better (having more energy, counts are slowly bouncing back to normal, etc) It really takes a toll on our body as you already know
On top of the surgery you had before this as our bodies are also trying to heal from that. It sounds like you are starting to feel better. My platetles, hemoglobin, and hematocrit were mostly affected during my Gemox regimen. I too debated for a bit whether or not to complete my last infusion. On a couple of occasions due to my side effects and blood work, they did reduce my dose on 2 different occasions. Have you or your team thought of that? Could that be an option? Hugs to you.
PorterMine is Intrahepatic and I had an 18cm tumor in liver. The only symptom I ever had was intermittent abdominal pain on my right side. My pain was tolerable and I only found the pain got much worse after I started my first chemo regimen.
Hi Trish, I sent you an email, my post was kinda long. I was told in 2009 I had hemangioamas and had scans every six months. They watched them grow (which I have been told hemangiomas don’t even typically grow at all significantly) and eventhough everything in my body told me something else was wrong, I was told not to worry. I was diagnosed with ICC last July. I went into more detail in my email so if you have any questions please feel free to ask.
Take care.
PorterJulie, I am so happy that you had a much more pleasant experience this time and it seems like you have met your match with your new onc. I think I have mentioned to you that I have the same problem with my port. Sheesh I started chemo originally last August and it is still finicky (not as bad as it was) and at times it still take a while for it to draw blood. It’s the first thing I let the nurses know… that my port is stubborn and finicky. It is pretty well known around the floor that it can be a stubborn little thing
I hope you continue to feel well with this round and that things and side effects go smoothly for you. Hugs.
Porter
