ronidinkes
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thank you for listening and taking the time to respond. i sincerely appreciate it…
today is “new day” i will start it out with a smile!sending my thoughts and prayers to you, your dad and your family. CC is a sneaky disease, enjoy each day with your dad, and you can always call in hospice to make sure he is comfortable and they can support you as well. stay in touch.
ronidinkes@yahoo.comgood morning,
my mother had the whipple at johns hopkins with dr. richard schulick. although a very meticulous and challanging surgery she also had a portal vein recontruction. recovery was slow, but she is doing well, and starts chemo and radiation today. sending love, thoughts and prayers to you.
regards,
ronidinkes@yahoo.comdear lanne,
my mother was diagnosed august 2010. she is starting radiation and chemo this wednesday. she is terrified and scared. i live out of state with 2 kids, husband, house, and job. i cannot be there for her and it upsets me terribly. i fear what is coming and especially the sheer fact i cannot stop it. i am scared but am trying to be strong for her. at this time as well my father is very ill, and feel it almost 2 much to deal with. please stat in touch and know i a thinking of you and sending hugs, and smiles your way.
regards,
roni
ronidinkes@yahoo.comJohns Hopkins does more whipple surgeries than any other hopsital in the country. Dr. Richard Schulick not only trained at Hopkins, he did his fellow ship at Sloan Kettering. He is a fantstic physician and meticulous surgeon.
Please research him. My mother was diagnosed August 2010, she will start radiation soon.
Best wishes, and sending many hugs your way.
Roni
443-394-6163Hi Donna,
My mom is a vibrant, vivacious, spirited 65 year old diagnosed this August 2010.
Sending thought and prayers to you.
Regards,
RoniDear Worries Daughter,
I am a worried daughter too. My mother was diagnosed in August 2010.
Had whipple. No chemo, Just had CT scan yesterday with recurrence showing up where she had surgery. Her CA 19-9 is 120 which is elevated. and I am curious about radio-active pellits put in via interventional radiologists?My mother feels good, she did have a bleed over Christmas that required 4 blood transfusions but she is feeling better now.
That stats are scary, but each person is still a person with lots of fight in them. stats are just that numbers……
Please stay in touch
ronidinkes@yahoo.com
443-394-6163Sending many hugs your way,
Regards,Roni
judy,
my mother is also happy to be alone, she has not been eating, and she wants to also die at home with her dog.she says she is very weak. i am in maryland, she is in new york. my aunt is doing all she can to help but she refuses to have ensure or boost!
my father is also now in a pulmonary rehab, because his lower extremities have severe edema, and he has ascites in his abdomen. he is on lasix t.i.d but unless it is iv, they cannot clear the fluid and everyone is stumpted.
i am just beside myself, taking clonopin to keep me level headed, but even that is not working.
i just feel sad, out of sorts, and beside myself. both of my brother are in new york, but left for the holidays, one went to canada, and the other went to VA. so she is alone in new york, dad is alone in rehab. i ask why is everyone falling apart on me.
i fear 2011. i do not want it to come, i am scared. i am reading a book called “the year of magical thinking” in an effort to prepare for what is coming. but i do not think i will be ready….sorry to rant on and on?
happy holidays,
roni
ronidinkes@yahoo.comMy mother also is not currently interested in chemo either. she is staying positive but is frightened of what the future holds.
95% of the time she is upbeat, and holding her own, then 5% of the time she gets sad, and fears what the future holds.
I feel so sad, and overwhelmed not being to “FIX” this entire nightmare.
My father just spent 2 weeks in the hospital and was just sent to rehab prematurely, he has PAH and is suddenly critical ill, with severe edema in his lower extremities, and ascetis in his abdomen.
Dad cannot take care of mom, Mom cannot take care of dad. They are in New York, and I live in Maryland with my husband and two children.
Feeling overwhelmed at the fear of losing 2 parents in 2011. Can someone just “stop” the time for just a little while…..for me to catch my breathe.
Thanks for listening, sorry to vent.
happy holidays to everyone. wishing everyone a healthy new year.
RoniHi Julie,
My mother was diagnosed August 2010. We went to Johns Hopkins, Dr. Richard Schulick. She had a whipple with portal vein recontruction, very long 12+ hour surgery. At this time although she is stage 4, her scan was clean in October, therefore she is not interested in chemo at this time secondary to all the side affects. She is holding steady and is having scans every 3 months. This is a very complex disease and it creates chaos for everyone involved from patient to caregivers and family members. I just take it day to day, enjoy each moment, and am thankful for every second I have my mother. Stay in touch and good luck.
Roni
