sharonlee

The dancing sounds wonderful. Good for you. My prayers are with you.

Marion;
Thank you for the reply. At the top of the page there are catagories
Home, Newly Diagnosed, Cholangiocarcinoma, Patient Support, etc.

Can a new sub title be added perhaps under the Cholangiocarcinoma heading- Path others have taken – or something appropriate. I know there is a lot of information in the questionnaire. Do outside organizations gather and review any data? I am wondering if more people will fill out the questionnaire – if they are not looking in the general discussion area they perhaps will not see it.
I have not filled out the questionnaire yet because for some reason it took so long to get a diagnosis for my Mom that I feel I don’t have appropiate answers for some of the questions. Do you know how studies are done for cholangiocarinoma? Would a doctor fill out a form when a person passes and forward it somewhere for study? I was also wondering if someone can tell me if there is any sign in a person’s body that would indicate or give some clue that there is a problem before it becomes full blown. My Mom was always having blood work because of the meds she was on. This did not matter. It was still too late. Thank you again for the reply and thank you to the individual who started the questionnaire.

Lindsy;

I am sorry that your mother in law has passed. I am happy you were there for her every step of the way. Thank God for people like you – that care so deeply.

I am happy Lauren is doing better after such a scary experience. Please keep the good news coming.

Melissa;
I am so sorry that your Mom has passed. My Mom passed back in February; I miss her. I read your posts, your poem, the obituary. You were strong to be able to read your poem at the service. Your Mom had so much to deal with during her illness. She was in denial. I think she handled the situation in her own way. I am happy you were there for her.
Bless you.

I am so sorry for you. Another young person taken by this horrible illness.
There are many of who are angry and confused. My Mom passed back in Feb. I miss her and think of her everywhere I go. I am upset that the illness was all of a sudden there (inside of her). Where did it come from? Six months prior she was healthy. You are a wonderful daughter and must try to take one day at a time. It’s not easy, but we all suffer and try to help each other.

LisaAnn
My Mom was around your Dad’s age when she passed from this horrible illness.
She started with mimimal stomach pain, high liver numbers, jaundice. After way too many tests, lots of stents, talk of a possible operation, talk of no spread of cancer, she lasted 6 months. After a stent was placed the jaundice cleared up and chemo was scheduled. She went downhill fast after just one chemo treatment. I hated when she would speak at the end and I could not understand what she was saying. Your Dad sounds like a strong person. I am happy to support you and your Mom with lots of love. I don’t know where the illness comes from and had many unanswered questions. I am happy your family was involved with the church for so long. This is part of what made you all such loving, caring people.

Peggy;

I am very sorry that John has passed. Both of you were so strong. It was terrible that you had a bad experience at the end with hospice. I hope they learn something to apply in the future. My thoughts and prayers are with you.