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Dear Andrea – My arms reach out in hugs to hold you in these sad days. I am so happy that he passed peacefully and so sad that you had to suffer this loss. May you find comfort in your precious memories which I hope you will share often. Your dad will remain alive in the memories of all those that loved him. May you find peace in the days ahead in knowing that dad is now completely whole and no more cc. Blessings to you and your Mom, Susan
Lily – I’m glad that you find this site helpful and supportive. It has been posted so many times, but it still remains true – attitude, attitude, attitude. It really can carry one through. Blessings, Susan
Dear Bushra – I agree totally with Lainy. One thing we’ve seen over and over on this site is that second opinions or third or fourth can make all the difference in the world. Please seek out another opinion. There are also clinical trials available. My prayers are with you and your family. Blessings, Susan
Dear Andie – I am so sorry that you are going through this. We also experienced this and my “stubborn” beloved last act was to fight me on wanting to go to the restroom and not even try a bedside commode, let alone a urinal. I almost laughed but it was to sad. He kept telling me to get out of the way and I wasn’t in the way. I knew it wasn’t him and yet I appreciated that he maintained that personal sense of strength until the very end. I never thought he would allow a nurse to bathe him, but he did. I thought he would be furious with me, but it happened one time and he did very well. My thoughts and prayers are with you. Remember, he is not himself and the meds and changes in his body influence all that he says and does. I wish I had some wonderful words for you, but all I can say is my heart is with you. Blessings, Susan
Dear Beth – I feel the pain you are going through and it is compounded by the fact that your daughter is hurting also. I lost my husband to cc on January 29, 2011. I am so sorry for the loss you have experienced. I can only pray that God will give you peace and comfort for the moments, days, weeks, months ahead. Blessings, Susan
Dear Jtoro – Our hearts go out to you, You are so young and this cancer is such a roller coaster ride of ups and downs. It is easy to worry about the future, but each day becomes more precious when you are unsure how many there are. We each respond so differently in this situation, but as you said God is becoming more important and that will bring comfort. My prayers are with you and your family. Please come here often to express whatever you are going through. Many of us have been there. Blessings, Susan
Hello Rudy – What a blessing that your doctors were on their game and diagnosed you while there are still procedures that can be done. Please visit here often. You will learn so much and have tremendous support on this site. My thoughts and prayers are with you. Blessings, Susan
Dear Roni – I am so sorry that you are going through all of this. My prayer for you is that you find some peace in honoring each parent the best you can. Be nice to yourself. Take some time to care for you. M heart is with you. Blessings, Susan
From one more member of the PUSH club, let me encourage all of us to be patient with ourselves in this process and good for you Terry – you cooked. Hooray! for you. One step at a time, one moment – some are better than others. Thanks for sharing a good one with us. Blessings, Susan
Dear Alison –
So sorry about your dad. CC is different for each person. Often patients experience weakness, nausea, eventually pain. Hold him close and tell him how much you love him. Make the most of every good day. Take care of yourself so you can take care of him. My husband lived 6 months after diagnosis and we had some great opportunities to make wonderful memories and we don’t regret one single thing. We went to the beach, we went to Puerta Vallarta with our kids, we held each other and cried, but we loved each other and when he went into the arms of God, it was directly from my arms. It is hard to make the most of each day when there is weakness, pain and overall yuckiness, but you will be glad you did and dad will enjoy whatever time he has. blessings, Susan
So happy to see this. We are trying so hard to get the word out on CC. For my husband, we have asked donations go to http://www.cholangiocarcinoma.org in remembrance of him instead of flowers. My daughter has arranged to have her company’s cancer walk for her dad and cholangiocarcinoma in June of this year. As we work together, we can make a difference!
Stacey – I hope the doctors have something to offer you next week. My husband was told about a clinical trial that Loma Linda is participating in. There wasn’t any hope for my husband, but they are researching the effects of a drug used for prostate cancer on other cancers. Other hospitals are also participating in that trial. My husband did not qualify due to low protein levels. They said if we got his protein levels up, to come back in two weeks to be reassessed. Best wishes, Susan
Dear Joanne – Never give up hope. We were also told that there was no treatment for my husband, but he elected to try chemotherapy anyway. It added 3 months to the original prognosis and he was thankful for every day (even when he felt illtempered and angry). The chemo bought him time to see the grandson born that will carry on the family name. My prayers are with you. Blessings, Susan
Thank you all for your best wishes and loving care. A piece of my heart is already in Heaven and one day, when God calls me, I too will be joined with the other part of my heart and become whole again. In the meantime, I will cherish every memory and the remarkable love of this man.
