sophie
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Joyce, you and Butch are in my prayers and thoughts. I pray that God will bless you both with peace and comfort in your hearts, and Butch’s time will be so peaceful, and he’ll look at you and smile until you two are reunited.
Sophie
Oh Irene, I hardly know what to say except I know that exact feeling when you find out the surgery was aborted….too fatty liver, huh? Thank God, the first 2 or 3 days after you are mildly drugged so it doesn’t set it as horrific. Did he ever call it cirrhosis?
Irene, my surgeon from City of Hope called me just to see how I was doing and told me in just a matter of conversation that the Cedars Sinai Hospital here in Southern California does transplants. When I asked him why I wouldn’t be a candidate since I not only had cirrhosis but cholangiocarcinoma, he said that I had intrahepatic cholangio. If I had extrahepatic and with my fatty liver, I’d be at the top of the list. This is just what he told me. It may be something for some of you folks to check into.
My prayers for you, Irene.
SophieTomorrow is the big day, Irene! May God wrap his arms around you and hold you through it as well as lending that surgeon a hand. I have some old cats up there too so maybe they are friends with yours, and our moms will be watching each of us as we go through our trials. God Bless You!
Prayers for you,
SophieLisa, I’m glad you’re doing better. I’ve been thinking about you everyday. Would you tell us all what you mean by fevers? Would they come and go or be consistent? Were they high or random low grades here and there?
I read your letter again and again, Lisa; I’m praying for you, my friend.
Sophie
Hey Lainy, you certainly have my permission. I think Oprah is the better of the two because she carries a larger viewer base than anybody, and she sure does carry alot of influence. Thanks for the encouragement on chemo. I actually felt strong enough today to drive over to Trader Joe’s.
I’d like to meet you Lainy. I visualize you in a hula skirt dancing.
So far including mine, I have 4 letters. I plan to send them even if nobody else sends more.
Prayers and prayers and more prayers for all of you,
Sophie
Hey Lainy, I have only gotten 3 letters, and they are long. One is five pages. Let’s keep it to one page, dear friends, and try to insert something about orphan diseases to give Oprah some meat on this skeleton. She could tie an entire program into cc and a little something about other diseases.
Love and prayers for you all,
SophieDearest Irene,
I have been so exhausted I haven’t even checked the site, or I wouldn’t have been so remiss to tell you my heart aches for you and the loss of your dear mom. I wish I had a fond memory to tell you about your mom, but I know you must have been her pride and joy, and she would want you to fight, Irene. Fight, darn it, fight!!@! Let us be here for you, Irene. Vent, scream, cry; there are some on this site who have such beautiful words to give you some peace. Let them.
Prayers and love to you,
SophieHello,
I didn’t get a response on my last request so I’ll reword it.
Is there anyone who has a wonderful surgeon who was willing to take a chance on their liver resection? I need to know if that surgeon will accept all records and then let the person know whether they would be able to help them instead of having to travel all the way and not get any help. I need the telephone number and name of doctor.
Prayers for all of you,
SophieLainy wrote:Hello Jeff! By the way, I think all us girls owe your wife a huge thank-you for sharing you with us the way she does! You are the “other” man in our lives!!!
I went a step further this morning and I e mailed friends and family and asked them if they would like to just write a few words and I would combine their feelings in one letter as well.It might be a nice outlet for them. Taking it to the limit one more time. We love ya!!!Lainy scored when she said you are the other man in our lives. I don’t believe I’ve ever seen a more handsome, talented, articulate, poetic, intelligent, knowledgeable, athletic guy with a rapier wit. Let’s throw in snappy dresser, and I bet you’re one heck of a dancer.
Please friends, let’s do this letter thing. It sure can’t hurt. I have a letter from Lisa and one coming in from Patty and (ahem) Jeffy-Poo.
My prayers for all of you,
SophieGood Morning, oh you warriors of cc. I got Lisa’s letter. You go, Lisa! Let’s do those letters, folks!
You know what? I was diagnosed with this disease 6 months ago, and I spent so much time reading on this site crying…almost hating the site because it scared me so but drawn to it because I need the wealth of information so much. And now this site has raised my spirits. Even though I sometimes am fearful, my thoughts are more positive because of this site.
And here is something. I got so tired of everybody telling me the crying was bad for me, and I needed antidepressants. I looked at all my old report cards, and my second grade teacher gave me N’s (needs improvement) straight across the board for controls emotions. SO THERE!!! I’ve always been a crier.
I have every right to cry when I want to. Venting to myself here.My prayers to you all,
SophieOkay, thanks guys, I will be sure to clarify in my letter about cc as far as its ranking.
My prayers for all of you,
SophieNope Jeffy-pooo, I’m Swedish and Norwegian, and I’m notorious for dishing it out and not being able to take it; however, on this site, I am receptive to any teasing….anything to make me chuckle and keep my spirits up….which you do, I might add.
Prayers for you all,
SophieHi Friends,
It was good for me to read these posts. I have been guilt-ridden for the past six months because I have had these same feelings. Why me? I’ve been a good person. I don’t lie, cheat on my taxes or steal. I worked hard to teach my students instead of just collecting a paycheck. I raised my daughter by myself and put her through university by myself. I’ve been generous to family members because I love them. I don’t drink or smoke. I have been planning for my retirement so hard and everything is just screwed up. I see these people who do everything wrong and have no work ethic or morals, but I have cancer, and they don’t. I have felt like such a wicked person for having these feelings, and I have felt like God looks into my heart and sees this envy and jealousy of healthy people, and he is so disappointed in me.
Sophie
You guys are the best! I think Irene’s idea on focusing on all Orphan Diseases is wonderful, and my statistics about pancreatic cancer and cc might be off. I couldn’t find any specific information about that.
Lainy and Jeff – I am deferring to you in all matters. From now on, I’d like you to call me Grasshopper. (Get it? David Carradine and Kung Fu) You teach, and I shall follow.
My prayers for all of you,
SophieSo Lainy, you think every person should write his/her own letter version. I’d collect the patients’ letters and send them, and you’d collect the caretakers’ letters and send them. I can go with that. Serving as chairperson in more than I can count departments in school and committees for 35 years, it was a big headache to get teachers to do things like this. Nag! Nag! Nag! Then half of them just didn’t turn submit anything. Perhaps though in an instance so important as this, everyone will rise to the occasion. Count me in. Can you get it cleared with the board? I didn’t even know there was a board.
My prayers for all of you,
Sophie
