suzannegm
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Thanks to all for the support! I have so many different fears about this, but I know it’s my best option. Knowing that so many people are supporting me will help me get through this surgery and recovery. I wish I could adequately express how much it means to me. I’ll possibly be posting again before Feb 18, but if not I’ll see you guys again in a few weeks!
Kris and Hans,
My biggest positive thoughts are going out to you both! I’m originally from South Carolina and I think I remember Kris also lived there at one time.
I think all here on this web site are the biggest realists on the planet, but we are strong, strong, strong! Be stronger than you ever thought possible, I know you can.
So glad you are now home. Quite honestly, being in the hospital sucks! Keep after your doctors to think outside the box. This is not your “average cancer”!
We are all with you.
Hi Sarah!
I’m the woman from Canton GA! Thanks for the info on Dr. Daneker. Based on my research I’m getting the most up to date care I could get. Do you know anyone that has been treated by Dr. Daneker?
Currently I am less than 2 weeks away from my second attempt at liver resection at Emory. So far I feel like I have had great doctors put in my path to help me. Everything I’ve been reading about on this web site and others regarding the latest treatments, my Emory doctors have been doing. But it is always good to have another doctor in the hip pocket, so to speak.
I read Dr. Daneker’s bio on the website you gave, and his credentials are VERY similar to the surgical oncologist I am seeing at Emory, Dr. David Kooby. I feel I am in very good hands with Dr. Kooby and the other doctors I see at Emory. I highly recommend Emory if anyone with this crazy cancer is in the SE region.
Thanks again!
Hi Sue – Be glad! It is a wonderful amazing thing you are beating it.
How often do you have a CT & MRI, and what blood test(s) are your doctors using to detect any reaccurance?
Keep fighting!
Hi David,
I agree with G. Ask them for a Neupogen injection to boost your WBC count. It works like a charm for me. I am able to give them to myself about once a month. It goes in the thigh, no problem so far for me.
Ports are great! Make sure to use it even on the days when you just have labs, no chemo. The veins need to stay flexible for as long as possible.
Keep on fighting! My doctors have NEVER told me I only had a certain amount of time left. I was diagnosed in July 2008, and I’m still here. For sure some days are really hard, for me the psychological hurdles are the toughest. But I wake up everyday and try to be “me”, which is all I know to do.
As Lainy said, stay strong.
Hi – I have not been on Taxol, but I looked it up on the following web site:
http://www.drugs.com/pro/taxol.html
It seems to be mostly for ovarian and breast cancer. There is a warning about using it if bilirubin levels are elevated:
“Hepatic
There is limited evidence that the myelotoxicity of Taxol may be exacerbated in patients with serum total bilirubin >2 times ULN (see CLINICAL PHARMACOLOGY). Extreme caution should be exercised when administering Taxol to such patients, with dose reduction as recommended in DOSAGE AND ADMINISTRATION, TABLE 17.”Hope this helps.
Thank you all for your support. I knew you would be there. I’m still finding it hard to believe that this could happen for me. To get this cancer out of me. I know the odds and I sure want to beat them!
I have no history of autoimmune disease or a thyroid problem. Also no history of any type of gastrointestinal problems, or liver diseases. I’ve often wondered what I did to cause this (too much mexican food, diet coke?). I would love to find the answer.
Thanks for the e-mails but I still had no luck. I’ll have to get my husband to solve this one for me.
Does the article show the quote that Wayne has on his original post?
I adjusted my cookies setting but still no luck. I have a Mac. I wonder if that has anything to do with it. Can someone send me the link to my e-mail address, suzannegm@windstream.net
Thanks!
Has anyone been able to like to the website that Wayne gave in his first post on this? I can’t link to it, and I would like to print it out. Thanks.
Hi Tony – regarding radiation or radiofrequency ablation, I was told the same thing. My tumor(s) is too big for radiation, and it would damage what good liver I have left. I definitely want to hold on to the good parts of my liver!
Sounds like your docs are going for shrinkage and / or stopping the growth. Remember, like Dave said, make sure to tell the docs everything about how you feel, but make sure they give you plenty of anti-nausea meds from the very beginning.
Right now, I’m looking at chemoembolization, but the interventional radiologists office is so disorganized, I’m questioning whether this is the guy I should have doing it. As others have said, if you don’t have a good feeling about what is going on with YOUR care, then speak up or move on to another doctor.
All the best, hang in there.Hi Guys and Gals
Quite honestly I haven’t even given a thought to medicaid. I’m currently insured under my husband’s work policy (BCBS). Without doing any research, I thought medicaid was applied for if you don’t have any other type of insurance. But given that I can’t even apply for regardless for another 2 years, I guess I’ll put it on the back burner for now.
Thanks for all the good info and support, as always.Hi Tony – I am currently on gemzar and cisplatin. No horrible side effects to speak of, other than severe fatigue and my appetite is not so great. The day of treatment, I am given 3 different types of anti-nausea meds, one of which is Emend. I’m not sure of the other 2. At home for nausea on the first 3 days I take a combination of ABH, Zofran, and compazine. I also drink 50-60 ounces of water each day for 2 days after my chemo treatment. The kidneys have a lot of work to do.
I am 43 years old. I have good liver function despite the fact that my entire left lobe is greatly enlarged due to my “tumor burden”. And I have 1 small tumor on my right lobe. So far the chemotherapy has not shrunk any tumors, but neither have they spread. I don’t have any lymph node involvement.
Not to tell you what to do, but you’re so young and seem to be in really good shape. I think you could handle chemo. I hope I have given you some useful information. Good luck and keep us posted on what you decide.
