taylorjm
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Thank you for the article. I did read it and at first I was a bit worried with the low percentage of accuracy, but when they got to the intrahepatic the percentages were very high with regards to accuracy. So that answers my questions with regards to how accurate a pet scan is.
I agree about the eating healthy part. The doctor that prescribed the medical marijuana said she needs to do three things to beat it. 1. was take the cannibis oil. 2. was to eliminate all sugar in her diet and 3. was to eliminate all processed foods.
You are right about the dosing issues, and nothing is set in stone. Our caregiver makes the oil, and he said he normally does a higher cbd strain but his other patients are taking it for pain and the side effects. My mil doesn’t have that so we wanted it made from a high thc strain. He’s making it out of girl scout cookie hybrid that is about 26% thc and 5% cbd, so the oil is very potent. With the capsules we would dose it for her by weighing it out and filling the rest with coconut oil. With the suppositories we are using cocoa butter. The goal is to get her to 1g (also about 1ml) per day for 60 days. Right now, she’s at about 1/10 of a gram per day is all. So we need to get that up higher. Hopefully the suppositories work better. They supposedly are more potent because as you said, ingesting it is different. So we’ll see what happens. It’s about $40 a gram (ml) here. So the 60 days would be $2400. Not a lot, but not cheap. But I guess if there’s a chance it will help, you gotta give it everything you got!
Thanks Mary!
We don’t know of any spreading yet. This will be the first scans done since she was diagnosed. I think they do chemo for 9 weeks, then a cat/mri scan. So we’ll see in a week if anything has changed.
My mother in law is taking cannibis oil with chemo. She’s taking the simpson type that is high thc low cbd. She just started and we put it in capsules with coconut oil for her to take. She’s only taking it at night right now and gets a slight buzz during the night, but is fine by morning. Once the buzz feeling goes away, she may see about taking another capsule during the day. Right now she’s at a very very low dose. 1/50th of a gram per capsule. She needs to work up to 1g per day. She’s not taking it for pain or nausea though, she isn’t having any of that with her chemo, she’s taking it with hopes it will help knock out some of the cancer.
Positivity, you are exactly right when you talk about inflammation. We have a friend that is a doctor and a nutritionist, and he says foods are are in two groups. Ones that cause inflammation, and ones that don’t. Sugars, wheat products, processed foods, all cause inflammation. Grass fed meats, farm fresh eggs, grass fed milk products, basically things are are home grown and don’t contain artificial ingredients do not cause inflammation.
For instance, my wife as always struggled with her weight since she was young. She ate low fat/no fat foods for years because that’s what you did to control your weight. You didn’t wonder what was in the foods once the fat was taken out. A few years ago, she had to have her gall bladder removed. She found out it was because of all the low fat foods. The chemicals they use to replace the fat, will tear up your gall bladder. That’s when we started on a paleo diet. You don’t eat anything unless you recognize every ingredient in it. After eating grass fed beef and pork every day, and at least a dozen farm eggs a week, my cholesterol went down 30 points. How is that possible? The medical doctors say that red meat and eggs will raise your cholesterol, because that’s what they were taught.
Sometimes, you need to do your own research, and double check your sources, and make a decision based on your findings instead of listening to a doctor who’s education came from studies paid for by the pharmaceutical companies.
I did quite a bit of research about the sugar part. Plus, the other thing to think about is the second a piece of bread hits your tongue, it’s converted to sugar. Bread/wheat products can produce more sugar in your body than a candy bar, so the wheat part is also related to the sugar intake.
My research was all over the board. Some say it’s fine, others say it’s not. Of course since there haven’t been any scientific studies on it (because nobody wants to pay to find something as simple as sugar can decrease cancer risk), then many doctors say it’s fine.
One point that really made me think was this. When they give you a PET scan for cancer, what do they have you drink right before it? A glucose solution, which is sugar. By drinking this pure sugar solution makes the cancer in your body light up like a Christmas tree on a pet scan. So, common sense would dictate that the cancer cells readily absorb sugar more than other parts of your body.
So do you want to make the cancer happy and give it something it wants? Or would you rather change your diet, and maybe starve it? With diabetes rising like crazy, it’s obvious that our diets are full of sugar. So reducing it would be an overall health benefit anyway.
marions wrote:taylor….my motto for those being treated for cancer is: if it helps you and doesn’t hurt you why not try it.
Everything seems to be moving along quite well. How is your MIL handling the current treatment?Hugs
MarionShe’s doing well. No real nausea, no hair loss. She’s changed her diet because the doctor that signed her marijuana script told her if she wants her best chance for beating this, she has to do three things, and has to do all three, can’t just do two out of three. 1. chemo 2. cannabis oil 3. cut out all sugar and wheat products. She’s trying to adjust to the diet part, but it’s hard for her. My family cut out sugar and wheat products and all processed foods a few years ago, so it’s pretty normal for us. We do still have things like hamburger buns with a hamburger, but we don’t have any bread, cereal, pasta, flour, etc. If we do have anything wheat based it’s organic and if there’s any sugar in something it’s organic cane sugar usually. No corn syrup or high fructose corn syrup. Basically, if we don’t know what’s on the ingredient list, we don’t eat it. The MIL was saying how she likes those rotisserie chickens from the store. We told her…ummmm, ok, but you can’t eat the skin. Of course, that’s the best part! The reason people are so addicted to them is because the seasoning they use has sugar in it. Pretty much everything American’s eat nowadays has sugar in it.
Well the MIL has been on chemo a few weeks. So far the only side effects is she’s tired for a couple days after. We got the dr’s signature and are signed up for medical marijuana. We have a lakehouse an hour north of us and the neighbor up there is a caregiver so we signed up with him. We are going to try the rick simpson oil treatment. The neighbor makes the oil himself so at least we know where it’s coming from. For the full treatment that’s recommended it will cost about $2500. So it’s one of those things that after you read about it, and know about it, do you take the chance and not try it? There’s really no negative effects except she might be sleepy the first couple weeks out of the 90 day treatment. If we don’t do it, we would always wonder if it would have helped. If we do it, and it doesn’t help, oh well, we tried, and are out $2500. If we were talking about $25,000 then that would be different. So I guess we’ll see!
Well so far the mother in law has had 2 chemo treatments and she’s not experiencing any side effects. She had some mild nausea but it went away quickly. The only thing that’s different with her is she’s sleeping 12 hours a night. Which basically means instead of her getting up a 5am, she’s getting up at 9am. So it’s not like she’s sleeping her day away. She’s not happy because she gained 7lbs in the last week, but she lost 14 lbs in the 3 weeks prior because of all the stress of dr appointments and not knowing what’s going on. So she’s worried she’s going to gain weight!
deadlift wrote:I thought i was pretty common to always start with gem/cis if it’s inoperable before moving on to trials. I know with the ag120 you had to fail primary treatment first. May as well get that out of the way.As to some being operable and others not. We’ve all been to high school. There are A students and D students. You never know what kind of surgeon you get. I’ve see seen that with my buddies wife and her surgical issues. She had her case presented to a team of doctors and nobody could touch it, then one doctors all “yah i can make that happen”
All depends on how good they are sometimes.
As to the oil and the cost. I’ve heard that it’s spendy. And insurance doesn’t cover it well etc. Though the oil can be more sleepy. My wife just smokes it old school from a bong. so depending on what she has sometimes it makes it harder for her to sleep cause it energizes her. Course she smoked off and on before cancer. The stuff I get for her is dirt cheap. Probably under 400$ for an oz, and lasts her a long time. Trick is to get the kind that keeps her low key. She’s said sour diesel makes her too energetic. She’s had good luck with purple haze and girl scout cookies.
Good luck!
Thanks. Yeah, I’ve read there are two different strains. The indica and the sativa. The indica is the one that is supposed to help with cancer and is more sedative. The sativa is the one that makes you hyper and gives you more of a “high”. I like your analogy about there being A students and D students. It’s very true.
BGlass wrote:Jeff,I looked at the article you attached, and want to make an observation.
The U.S. is a very large country, and there is need to be cautious when looking at stories that try to generalize from a small number of cases.
For example, there are about 1 million doctors in the U.S., and about 18 million health professionals of all sorts. The annual death rate for the U.S. population is about 0.8 percent, so in a given year, on very rough back-of-envelope average, about 8,000 doctors and 144,000 healthcare workers would pass away from all causes. If you divide this up by causes of death, then just for doctors, again with very rough averaging, there might be in the ballpark of 132 suicides, 101 gun deaths, and 419 accidental deaths in a year in the U.S. Widening this to more types of health professionals would expand the numbers even more.
It would then be very easy for someone to troll the internet and selectively find cases that fit ANY possible theory about circumstances of death for any group because there are always big numbers of cases to pick through.
Selectively picking a few cases that match a theory, however, is not proof of the theory’s correctness. Cancer is a terrible disease and it challenges people’s logic that a country that sent astronauts to the moon and figured out how to build an atomic bomb has not yet been able to solve the cancer puzzle, namely find a cure. My own belief is that cancer is just a much harder puzzle. Speaking for myself, this frustration is most intense when you are a patient or caregiver.
Regards, Mary
Hi Mary. I read the same numbers you were quoting on snopes. But snopes has been proven to be bought off by several large companies and their data is flawed. But to make your numbers more accurate, we need to just look at the holistic doctors. There are approximately 4000 holistic doctors in the US. If we take the 0.8% average death rate, that comes out to 32 die per year of natural causes. So in the past year, over twice as many holistic doctors died when compared to the national average. Does that mean something or not? It’s hard to say.
Jeff
There will never “officially” be a cure for cancer. There are billions and billions of dollars made off cancer patients annually. The cost for oncology visits, chemo, radiation, etc are all big money makers for the pharmaceutical companies. What about the 60 holistic doctors that are either dead or missing? Many of them were successfully curing different types of cancer, and when they get to the point where they can start publishing their results, they meet with an unfortunate suicide. People with families and a happy life all the sudden “fall” off a cliff, or hang themselves in the backyard, or shoot themselves in the chest. Or all they find is a vehicle and the person is never seen again. Of course, they always say it was suicide. I believe it was summer of 2015 when over 20 holistic doctors died of mysterious causes. How about the one cancer researcher in Washington who authorities said walked 1.5 miles through brambles and mud, climbed into a culvert, and put a plastic bag over her head, suffocating and committing suicide. Uh huh, yeah. Sure sounds like a lot of trouble for someone to go to just to kill themselves.
http://www.healthnutnews.com/recap-on-my-unintended-series-the-holistic-doctor-deaths/
positivity wrote:Yes! So true. People get desperate for cures, but please choose wisely if you go the alternative route. First, think about controlling the condition, symptoms, or cancer before the cure.Unfortunately, this is how most modern medicine works. Too many times doctors treat the symptoms and not the cause. They don’t want to treat the cause, they make more money just treating the symptoms and keep people coming back every month.
I believe it’s the same gem/cis that is talked about on here all the time. I’m not sure if I got that right or not, and don’t have my notes with me.
Hoping the side effect don’t make things worse. Hard to believe she’s walking around, eating fine, everything is fine, but someone says if you don’t do chemo, you have 3 months to live.
They have the forms and will be getting a medical marijuana card. Going to try the rick simpsons oil Figure what the heck. Worst case, she gets the munchies!
Thank you!
Well, they went to the university of Michigan today, and the doctor spent a long time getting all their questions answered. They were also the only hospital that had the slides from the biopsy. I guess there’s only one set and they were sent to u of m first.
So it’s not good news. It seems she has some form of systemic cancer. The cancer cells are throughout her body, they just happened to take up shop in the liver first as CC. That’s why they have been recommending systemic chemo. The other doctors just didn’t bother to tell us why that’s what they were recommending. This is also the first dr to actually give a time frame. She went to the hospital last month with a stomach ache, which went away, now they are saying she has 8-9 months with chemo, or 3-4 months without it. Hard to believe since her liver is still fully functioning and has no other symptoms. My wife is going to still try to convince them to try cannabis oil. So we’ll see.
