thebompie4
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Kristin
my husband has CC in his liver, lymph nodes and lungs.
He is 44 and doing great on chemo.
After 6 1/2 mos they have sent him to an Interventional Radiologist
to discuss options like Y90 Radiation beads. He IS a candidate
for this as well as chemoembolization.Obviously both come with a new set of risks–but we have options
and that is good for now.
My husband is the CC patient and his has spread to lungs and lymph nodes
so he is not a surgery candidate ever.He is 44, also always healthy until this.
He has now been doing the Gem/Cis chemo regime for 6 1/2 months….
I wanted to tell you that HIS side effects have been VERY minimal.He is tired for the day or two afterward, but has kept his full time
job during all of this and been, for the most part, fine.There are a few others that post here currently on the same chemo
with the same minimal side effects. Hopefully they will chime in.He is going to be doing Y90 radiation soon, so I have no input on
that yet.best wishes to you.
DorienThis is not my personal experience—and I don’t even have a name,
but in mtg with a 3rd opinion onc. here in our home town who
actually said he sees A LOT of cc–he said he has a patient who
is 8 years out with this cancer and doing well!!The patient had a resection and after 4 yrs the cancer came back
and then this person has been 4 MORE years doing really good.Eight yrs seemed FANTASTIC to me. Just thought I would share.
Even though it’s “he said, she said” it is a factual example.
great article!
we have been discussing all these options w/kyle’s oncologist and have
had 2nd and 3rd opinions from 3 different drs.it’s really really hard
and scary.i know…hoping you get some good answers to help
you both soon.
Doriencarl
i totally wasn’t offended.
sorry if it came across that i was.
not even a teeny bit offended.
i still just think that *IF* there were other answers that really
worked–cancer would be cured. that’s all i’m saying.I have not seen any alternative treatments do any better
(and sometimes they are worse at stopping the progression
of cancer) than chemo or radiation.I know people who have LITERALLY sold it all to pursue
alternative treatments, and they died just like the guy doing
chemo.I *personally* have yet to be convinced that ANY treatment
(conventional OR alternative) is a cure for many types of
cancers. Cancer is seen winning the battle way too often
for my taste regardless of treatment options chosen.And for whomever posted about Doterra, I’m laughing…
we have a bottle of Frankensence (sp?) oil from them.Kyle still has cancer…darn it! It didn’t work. (that is just
some sarcasm in case you can’t hear my tone.!)
but really, he still does have cancer.
I just think if there was a ‘magic cure’ then no one would have cancer.
and everyone would be cured.
and if Steve Jobs couldn’t buy a ‘magic cure’ …well, then NONE of
us can.he had all the money and resources a person could have, and tried
conventional and unconventional treatments and in the end?He still died.
I have a hard time believing that big pharmacy has no relatives (sisters,
brothers, wives, husbands, children, etc) untouched by cancer and
even THEY wouldn’t want to find a cure if that was possible.but i may be wrong.
best wishes!! my husband has done very well on gem/cis with few to none
side effects (tired is about it)…..hope you mother does equally as well!PS–if i remember correctly Lainy’s husband survived the 6 months
without chemo–not 5 yrs without treatment.Lainy?
Pat
I just wanted to add that my husband has been on Gem/Cis for
6 straight months without ANY side effects other than being tired for
a day or two afterward.His quality of life has improved and he feels really really good.
Just throwing that out there, I have ‘met’ several others online that
have also had NO bad side effects from this chemo cocktail as well.It is 100% your decision, I just wanted you to know that there
are people out there that are not having bad side effects from this
combo.Best wishes.
dorienI have heard of the shoulder pain. My husband has had a bit, as well
as one of our “online” CC facebook friends. It seems to be a more common
complaint with CC.We (so far) only know Gem/Cis chemos…so no help there!
Best wishes on this ride….it’s very tough some days!
Hang in there!
DorienRenee
my husband is still working on a phone consult with MDA and a dr.
there….it seems like nothing is super fast in the world of doctors~Thanks for ck’ing …will for sure update when we get to that point!
Dorien
