tiff1496

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  • April 13, 2012 at 12:41 pm in reply to: Beyond thrilled to see Dr. Sonnenday post on this site!! #59939
    tiff1496
    Member

    He emailed me Pam. I’m going to mail my next set of scans to him. I will get it next month at MDA.

    April 13, 2012 at 12:10 am in reply to: Intrahepatic CC symptoms #59898
    tiff1496
    Member

    I have stage 4 intra…
    My main symptom was weight loss, and just not wanting to eat.
    The pain I had that sent me to the ER was under my left breast, kinda in my chest, but I could tell it wasn’t a lung. The pain in now gone.

    April 12, 2012 at 10:54 pm in reply to: Beyond thrilled to see Dr. Sonnenday post on this site!! #59934
    tiff1496
    Member

    Welcome to the site Dr!

    I’m always looking for more opinions on my cancer. Are you willing to look at my scans if I mail them? We live in Alabama, but will travel to any doctor that will give me hope. Right now I’m being seen by Dr. Javle at MD Anderson. :)

    April 10, 2012 at 9:39 pm in reply to: The low down on my new chemo. #59843
    tiff1496
    Member

    My body surface area is 1.77. I wonder if I need to ask about my gemzar dosage?

    April 10, 2012 at 6:54 pm in reply to: MD Anderson meet up!? #59846
    tiff1496
    Member

    Thanks Patty! I will give you a call a few days before! I hope we can meet up! I would love to meet you! I also have stage 4 intrahepatic. Do you see Dr. Javle too? I hope you will be feeling good.

    April 10, 2012 at 1:42 pm in reply to: Melatonin and Cholangiocarcinoma #59758
    tiff1496
    Member

    Thanks so much!! I will be talking to Dr. Javle about this!
    :)

    April 10, 2012 at 1:24 pm in reply to: The low down on my new chemo. #59841
    tiff1496
    Member

    Thanks Lainy. I feel good about this new treatment.
    I’m feeling ok today, and about to take my Xeloda.

    April 6, 2012 at 12:36 am in reply to: New chemo, at least to us #59786
    tiff1496
    Member

    Good news!! Who is his Dr @ MDA? We see Javle.

    The gem/cis was easy for me. I have had 10 rounds. I’m having to stop the cis, but will keep getting gem. ;) The biggest problem for me was the fatigue, but that might come from having a 6 and 3 year old! haha

    April 6, 2012 at 12:29 am in reply to: Low dose weekly infusion vs. High dose biweekly infusion? #59763
    tiff1496
    Member

    I had 10 rounds of gemzar and cisplatin. I went every 14 days. I started having allergic reactions to the cisplatin, so now I will be doing gemzar and xeloda. I believe Dr. Javle from MD Anderson puts most of his people on every 14 days…
    I will say I didn’t have many side effects, other than fatigue and some stomach problems.

    April 5, 2012 at 8:12 pm in reply to: Melatonin and Cholangiocarcinoma #59754
    tiff1496
    Member

    Is this talking about the melatonin I take to help me sleep? I’m confused by this. LOL Is melatonin good or bad?

    April 5, 2012 at 6:42 pm in reply to: Enlive #59129
    tiff1496
    Member

    Liz- I got the juice….its ok. If you think its something your husband might want to try, I can mail him one. That way he could try it before yall buy it. :o)

    April 3, 2012 at 6:22 pm in reply to: April 10th is the day #59468
    tiff1496
    Member

    Amy- I’m glad you found us, but sorry you had to.

    I will be praying for your mother.

    Just a side note—My husband and I lost our first child to HLHS. :( He was only 4 days old. Its awesome to hear your daughter is doing good!!

    Please keep us updated on your mother. We are here for you.

    April 3, 2012 at 2:46 am in reply to: Starting new treatment soon #59636
    tiff1496
    Member

    Thanks yall. Kris– day by day please! LOL you can tell me about it on fb. ;) I hope the insurance doesn’t give me any problems. The most I have to pay for any drug is $40. When they didn’t want to pay for my Traceva, my local cancer center gave it to me for free! They have people donate unused meds, it is $5k a month.
    I wonder why some doctors use Xeloda and some do the 5FU?

    March 27, 2012 at 12:43 am in reply to: Next step? Update from Dr. Javle #59452
    tiff1496
    Member

    I emailed him today, and told him whats going on. He said that he is going to call and talk to my local doctor. I know CA19-9 isn’t a total sign it isn’t working as well, but I just have a feeling.
    Our next appt at MDA is in MAy, but it may be sooner if I find out it isn’t working.

    March 23, 2012 at 4:22 pm in reply to: Green Tea for cancer? #56492
    tiff1496
    Member

    Just seen this! LOL
    No, I didn’t. I just can’t quit the Dr. Pepper. =/ I wonder if they make green tea K-Cups?

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